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Gf And Dairy


Caroline's mommy

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Caroline's mommy Rookie

How often do gluten-sensitive persons or Celiacs have sensitivities to dairy products? We have now started our 22 month old daughter on gluten-free (not as difficult as I thought it would be! :D ) and are wondering if we should consider dairy free as well if things don't change solely on gluten-free. From reading here, it seems there are also a fair number of dairy sensitivities/allergies.

Thanks,

Erika


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lbsteenwyk Explorer

Many people have secondary lactose intolerance when they are initially diagnosed with celiac disease. This is simply because they are malabsorbing and thus not digesting lactose. It may be beneficial to avoid dairy or try lactose reduced products for several weeks. You should be able to reintroduce dairy once your child's intestines have healed.

Indea88 Newbie

I might be wrong only going by what the pediatric GI specialist said ( he also has Celiac) "Celiacs are lactose intolerant" I was hoping this wasnt lifelong I want to be able to reintroduce diary at least cheese and yogurt...

Carriefaith Enthusiast

A lot of celiacs are temporarily lactose intolerant until their villi heal. Gluten damages the villi and the enzyme that breaks down lactose is located at the tips of the villi, so when lactose is injested it cannot be fully digested. Other celiacs can develop a permanant lactose intolerance or a casein intolerance (milk protein). I personally avoid both dairy and gluten.

nogluten- Newbie
I might be wrong only going by what the pediatric GI specialist said ( he also has Celiac) "Celiacs are lactose intolerant" I was hoping this wasnt lifelong I want to be able to reintroduce diary at least cheese and yogurt...

<{POST_SNAPBACK}>

I miss dairy more than gluten. I wish they'd come up with a pill for allergy to dairy. I'd pay big for that!

Claire Collaborator
How often do gluten-sensitive persons or Celiacs have sensitivities to dairy products?  We have now started our 22 month old daughter on gluten-free (not as difficult as I thought it would be!  :D  ) and are wondering if we should consider dairy free as well if things don't change solely on gluten-free.  From reading here, it seems there are also a fair number of dairy sensitivities/allergies.

Thanks,

Erika

<{POST_SNAPBACK}>

If you check out diary information you will find that the molecular structure of the wheat protein (gluten) and the milk protein (casein) are virtually identical. The implication being that the body can all too easily react to either of these proteins. The lactose intolerance may well diminish with healing but the casein issue remains. Some would choose to eliminate dairy to be on the safe side. Claire

tarnalberry Community Regular

You could also do an elimination diet to determine if casein is causing a problem. It bothers some people (celiac or not) but not others. It does *not*, however, trigger the same autoimmune reaction that gluten proteins do. (There is a rare condition where dairy can cause enteropathy, but it is rather rare.)


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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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