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Gf And Dairy

Caroline's mommy

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Caroline's mommy Rookie
Caroline's mommy
Posted

How often do gluten-sensitive persons or Celiacs have sensitivities to dairy products? We have now started our 22 month old daughter on gluten-free (not as difficult as I thought it would be! :D ) and are wondering if we should consider dairy free as well if things don't change solely on gluten-free. From reading here, it seems there are also a fair number of dairy sensitivities/allergies.

Thanks,

Erika

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lbsteenwyk Explorer
lbsteenwyk
Posted

Many people have secondary lactose intolerance when they are initially diagnosed with celiac disease. This is simply because they are malabsorbing and thus not digesting lactose. It may be beneficial to avoid dairy or try lactose reduced products for several weeks. You should be able to reintroduce dairy once your child's intestines have healed.

Indea88 Newbie
Indea88
Posted

I might be wrong only going by what the pediatric GI specialist said ( he also has Celiac) "Celiacs are lactose intolerant" I was hoping this wasnt lifelong I want to be able to reintroduce diary at least cheese and yogurt...

Carriefaith Enthusiast
Carriefaith
Posted

A lot of celiacs are temporarily lactose intolerant until their villi heal. Gluten damages the villi and the enzyme that breaks down lactose is located at the tips of the villi, so when lactose is injested it cannot be fully digested. Other celiacs can develop a permanant lactose intolerance or a casein intolerance (milk protein). I personally avoid both dairy and gluten.

nogluten- Newbie
nogluten-
Posted
I might be wrong only going by what the pediatric GI specialist said ( he also has Celiac) "Celiacs are lactose intolerant" I was hoping this wasnt lifelong I want to be able to reintroduce diary at least cheese and yogurt...

<{POST_SNAPBACK}>

I miss dairy more than gluten. I wish they'd come up with a pill for allergy to dairy. I'd pay big for that!

Claire Collaborator
Claire
Posted
How often do gluten-sensitive persons or Celiacs have sensitivities to dairy products?  We have now started our 22 month old daughter on gluten-free (not as difficult as I thought it would be!  :D  ) and are wondering if we should consider dairy free as well if things don't change solely on gluten-free.  From reading here, it seems there are also a fair number of dairy sensitivities/allergies.

Thanks,

Erika

<{POST_SNAPBACK}>

If you check out diary information you will find that the molecular structure of the wheat protein (gluten) and the milk protein (casein) are virtually identical. The implication being that the body can all too easily react to either of these proteins. The lactose intolerance may well diminish with healing but the casein issue remains. Some would choose to eliminate dairy to be on the safe side. Claire

tarnalberry Community Regular
tarnalberry
Posted

You could also do an elimination diet to determine if casein is causing a problem. It bothers some people (celiac or not) but not others. It does *not*, however, trigger the same autoimmune reaction that gluten proteins do. (There is a rare condition where dairy can cause enteropathy, but it is rather rare.)

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    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

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    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

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      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

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      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
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      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

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      Contact them.
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