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Feel Weird- 3Rd Week Of gluten-free Diet


xxikayixx

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xxikayixx Newbie

I have felt horrible my entire life, and have had hundreds of tests done to figure out why my intestinal tract reacts the way it does. I stopped having tests done about 8 years ago because I couldn't afford it anymore, and was told I had IBS. I recently have been doing some more research and found out I was 0- blood type, and that I should try a Gluten Free diet. I've been gluten-free for about 3 weeks now, and as of this past week I feel as if I'm lacking something. I can't pin point exactly what I'm feeling but I feel a little nauseous, dizzy, and get sweats. Has anyone else felt this? The past 2 days I've started taking a multivitamin and some fish oil. I'm not sure if it's helping or making my symptoms worse. I have yet to see a doctor because I just got insurance, and have not seen a nutritionist. I've been getting most of my information from forums. Thanks for listening.


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tom Contributor

What kinds of foods are you eating?

Oftentimes, whole unprocessed foods make a huge difference compared to a diet w/ a lot of processed foods, made from a long list of ingreds.

It also makes it far easier to find which foods might be problematic.

Lactose, casein (milk sugar & a milk protein) & soy issues are pretty common around here.

Something you've been fine eating before might not agree w/ you while healing.

It could be as simple as, say the one 'replacement product' (gluten-free reformulations of cookies, crackers, bread etc) that uses some tapioca flour, or mung bean or fava bean flour or some other ingred that you just weren't exposed to much before might have always been disagreeable but never came up.

It's a lot simpler to find out when eating a simple diet.

Or maybe the current issue 3 wks in is from something else - ppl w/ pets might try a different pet food that's on sale & find out later it's got gluten & has been affecting them.

All sorts of unlikely things might be involved & ppl here will help you find them, so don't be daunted by the scope (easier said than done - we've all felt overwhelmed early on).

Gotta start w/ reviewing current diet.

So, whatcha eatin'?

squirmingitch Veteran

I call what you're feeling gluten withdrawal. I felt like that & then some. It lasts different for different people. But you will find plenty of discussion on it here in threads. Use the search box & put in gluten withdrawal or just withdrawal.

1desperateladysaved Proficient

I am three weeks into gluten free and can relate. I felt so good for the first week. The swirls in my head are quieter, but they are still there.

MitziG Enthusiast

Withdrawal. First 6 weeks can be tough for a lot of people. Stick with it, it gets better!

  • 1 month later...
IndiaEileen Newbie

Yep, I think it's a sort of withdrawal. I had the same thing a couple weeks after I quit. I suddenly had crazy headaches and was wicked dizzy with terrible stomach pains. I felt like I was hung over! What I read is the gluten submits a toxic layer to your stomach lining. When you quit the gluten is starts to peel away and enter your stomach for a bit before it passes. Just stick by your water bottle and it'll pass. Keep up the good work!

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    • trents
      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
    • trents
      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
    • Ello
      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes inflammation and produces antibodies that can be detected in the blood by specific tests like the TTG-IGA test you had. Over time, if gluten is not withheld, this inflammation can cause severe damage to the lining of the small bowel and even result in nutrient deficiency related health issues since the small bowel lining is organ where all the nutrition found in our food is absorbed.  The other is NCGS (Non Celiac Gluten Sensitivity or just "gluten sensitivity") which we know less about and are unsure of the exact mechanism of action. It is not an autoimmune disorder and unlike celiac disease it does not damage the lining of the small bowel, though, like celiac disease, it can cause GI distress and it can also do other kinds of damage to the body. It is thought to be more common than celiac disease. Currently, we cannot test for NCGS. Celiac disease must first be ruled out to arrive at a diagnosis of NCGS. Both disorders require elimination of gluten from the diet.  Either of these disorders can find their onset at any stage of life. We know that celiac disease has a genetic component but the genes are inactive until awakened by some stress event. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% develop active celiac disease. The incidence of NCGS is thought to be considerably higher. I hope this helps.
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