Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hr4972


Andi

Recommended Posts

Andi Rookie

I have been a diagnosed Celiac for 10 years but the last year or two I have been having stomach issues even to the point that my celiac is not healing. Yes, I have been on a strick diet. After just recently going through lots of tests (CT Scan and Endoscopy)my doctor could not figure out my problem soooo, I did my own research only to find out it was a blood pressure medication (which I don't take and feel better). Anyway, I just called my Congressman Tom Marino of the 10th Distric of PA and found out about this Bill HR4972. Right now, it is sitting in Committee and I asked for Mr. Marino to see what he could do about pushing it along. I think if we all get together and call our Congressmen that it would help a great deal. Just google your Congressman's name and call the office. I don't think they realize how many of us have this terrible disease. Also, I would like to thank Rep. Tom Ryan of Ohio for introducing the Bill. We need to stay on top of this Bill because we don't went it to die in the Committee. So lets get to work!! Thank you!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jmartes71 posted a topic in Related Issues & Disorders
      0

      New issue

    2. - Charlie1946 replied to Charlie1946's topic in Related Issues & Disorders
      21

      Severe severe mouth pain

    3. - cristiana replied to Charlie1946's topic in Related Issues & Disorders
      21

      Severe severe mouth pain

    4. - trents replied to Charlie1946's topic in Related Issues & Disorders
      21

      Severe severe mouth pain

    5. - trents replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Blood Test for Celiac wheat type matters?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,079
    • Most Online (within 30 mins)
      7,748

    GlutenFreeChef
    Newest Member
    GlutenFreeChef
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jmartes71
      Curious if any other disregarded celiacs medically, not eating wheat and other foods im not to consume but yes its in the house because others have to eat. Currently dealing with eye issues, skin issues,blood and colon look fabulous because NOT consuming. Now im dealing with i may have ms or meningioma....Im also sibo positive, ibs which they think is the cause, " depression " which medical has caused me.Why is it so hard for medical to believe. I went to ER Dec 23 per pcp and got blood drawn sick as hell looking like a corpse bride with dark circles and pale skin.No surprise they said my blood is fine and I had to say thats not what im here for because im always told its fine when not, Ketones waked and then they said I have the flu, ya the flu 24/7 for years battling what the heck is going on.Doctors really need to listen, understand celiac which I've tried to school in past from what I've learned on these websites but it feels as if running in a useless circle. Im to take gabapentin 300. for a week and then go up to 600 since taking this and a other med that was prescribed no longer taking because it makes me awake.This one too is amping me up to not be sleepy when I am tired. Just curious if meningioma or ms is a link to core issue of celiac?I also saw the proclamation but confused because it states that California has two women?  Do I reach out to them? Ive already wrote to my local representative in Stanislaus County.Being celiac and dealing with a circus of clowns that didn't diagnose one doesn't make celiac go away and its not fair or right to us.Im angery, diagnosed by gi doctor by biopsy before foods eliminated from my diet, celiac sprue at the age of 23 in 1994.Now menopause has killed any tolerance i had and body affected badly.No one should go through the medical HELL ive been through. 
    • Charlie1946
      @Caligirl57 hi and thank you for the reply! I have had myself scared to death over this. I am still having pain but it's not as bad. I have always had bad teeth and gums  @trents thank you, so omeprazole is the right thing to take?
    • cristiana
      @Charlie1946 You are more than welcome.  If you are struggling with mental health do consult with a medical professional and follow their advice if they think you need medication, as I did for a while, but I hope you will find these books as helpful as I did on the road to recovery.
    • trents
      PPI is the acronym for Proton Pump Inhibitor. Omeprazole is a PPI. PPI's work in a different way than do "H2 blockers" like Tagamet or Pepcid and different also from acid neutralizers like Tums. 
    • trents
      I think cristiana's post is an important contribution to this discussion and reinforces what I said earlier about the anecdotal nature of those reporting they seem to be able to tolerate wheat products in Europe. We need to be careful not to extrapolate from the particular to the general. And as she also implied, not having a discernable reaction to consuming a wheat product made in Europe or made from flour imported from Europe may not equate to "0" intestinal lining harm for those who actually have celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.