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Hr4972


Andi

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Andi Rookie

I have been a diagnosed Celiac for 10 years but the last year or two I have been having stomach issues even to the point that my celiac is not healing. Yes, I have been on a strick diet. After just recently going through lots of tests (CT Scan and Endoscopy)my doctor could not figure out my problem soooo, I did my own research only to find out it was a blood pressure medication (which I don't take and feel better). Anyway, I just called my Congressman Tom Marino of the 10th Distric of PA and found out about this Bill HR4972. Right now, it is sitting in Committee and I asked for Mr. Marino to see what he could do about pushing it along. I think if we all get together and call our Congressmen that it would help a great deal. Just google your Congressman's name and call the office. I don't think they realize how many of us have this terrible disease. Also, I would like to thank Rep. Tom Ryan of Ohio for introducing the Bill. We need to stay on top of this Bill because we don't went it to die in the Committee. So lets get to work!! Thank you!


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    • Scott Adams
      Your approach makes a lot of sense — focusing on balanced meals and being cautious about cross-contamination is smart, especially when you’re traveling or unsure of a kitchen’s gluten-free practices. Many GF foods do lean toward higher sugar or processed ingredients, so prioritizing whole foods (lean protein, fruits, veggies, healthy fats) at meals can help keep energy steady. For snacks that fill you up, look for protein bars with simple ingredients, higher protein, and lower added sugars — reading labels is key on GF bars since “gluten-free” doesn’t always equal healthy. Pairing a salad with a quality protein bar when you’re unsure about a restaurant’s GF safety is a great strategy to avoid symptoms while still feeling nourished. 
    • Scott Adams
      I agree, unfortunately a gluten challenge means intentional gut damage and inflammation to those with celiac disease, and taking lots of AN-PEP enzymes could potentially decrease this and skew the results, although I've not seen specific studies on this idea.
    • Scott Adams
      I’m really sorry you’re going through this — what you’re describing is, unfortunately, something many long-term celiac patients encounter. A negative blood test after decades gluten-free does not rule out biopsy-proven celiac disease, and it’s frustrating that your documented history isn’t being taken seriously. Being dismissed while you’re dealing with menopause-related changes, neurological concerns, and recovery from a demanding job would exhaust anyone, and it’s understandable that this is affecting your mental health. You deserve care that looks at the full picture, not quick conclusions, and it’s okay to keep advocating for yourself or seek a provider who truly understands complex autoimmune cases. You’re not imagining this, and you’re not alone.
    • Scott Adams
      It sounds like you’re doing a really thoughtful, disciplined job listening to your body and tightening things up where needed. Tracking symptoms alongside foods in MyFitnessPal is a smart next step, especially since bloating and gas can come from specific GF ingredients (like gums, fibers, or certain flours) rather than gluten itself. Your approach to eating out, avoiding places that can’t confirm safety, and planning ahead for travel is exactly how many people stay well long-term. It’s also very common to discover that even “certified” or restaurant GF pizza doesn’t agree with you, so trusting that pattern makes sense. Overall, this reads like progress, not restriction—and the fact that you’re feeling better most of the time suggests you’re on the right path.
    • Scott Adams
      Just be sure that she continues eating lots of gluten daily for at least 2 weeks before the endoscopy, otherwise going gluten-free beforehand could create false negative results.
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