Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

In Hindsigh, Maybe It Wasnt A Good Idea


KMMO320

Recommended Posts

KMMO320 Contributor

My dr appt with the GI isnt until Tuesday, but I have been playing around with eliminating foods and seeing what happens. I tend to react almost immediatley. I went 2 days without eating Gluten and felt really..fantastic. I wasnt dragging, I felt alert and awake and this is just after 2 days. I was still having some digestion issues but I have always had trouble with eggs. So today, I am thinking wow, I feel so good that I bet I had just been not feeling well..maybe I had a cold, maybe because my primary mentioned Celiac to me I was sort of being a hypochondriac and thought I had symptoms of it, maybe it was in my head and Im fine.

So at work ( I waitress) I had some toast...and felt fine. nothing happened. No headache, no body aches, no chill or low grade fever. So I was like ok..now I feel stupid, Im fine.

On the way home, I stop at the Donut shop to get my coffee..and a muffin. I said the heck with it..Im fine.

Im not fine :(

I just want to know what is causing this..is it really gluten? what can make me feel so horrible? Why cant I just be normal and eat what I want? Why is this happening out of NO WHERE????

The stomach thing has been going on for years..but the head stuff is relatively new.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Takala Enthusiast

It takes most people years to develop enough damage that it shows up in different body systems.

Eggs could be a sign of your gall bladder/liver is very upset with you, because they are full of fat. Off of gluten, eating fat (like gluten free versions of muffins, doughnuts, etc) can be easier because the gall bladder and liver are working better.

squirmingitch Veteran

It's not happening out of nowhere. You said yourself :

"The stomach thing has been going on for years"

You have now progressed to the next stage where it has done so much damage to the intestines & is now doing damage to other parts of your body. And even that has been in progress --- it's just deteriorated to the point that you FEEL it now.

KMMO320 Contributor

It takes most people years to develop enough damage that it shows up in different body systems.

Eggs could be a sign of your gall bladder/liver is very upset with you, because they are full of fat. Off of gluten, eating fat (like gluten free versions of muffins, doughnuts, etc) can be easier because the gall bladder and liver are working better.

I actually dont have a gall bladder, it was removed 13 years ago.

KMMO320 Contributor

It's not happening out of nowhere. You said yourself :

"The stomach thing has been going on for years"

You have now progressed to the next stage where it has done so much damage to the intestines & is now doing damage to other parts of your body. And even that has been in progress --- it's just deteriorated to the point that you FEEL it now.

I suppose you are right. I do want to thank everyone on the boards for dealing with my whining and ranting. This is very new to me. Though not the worst thing that can happen, and certainly not the end of the world, I always assumed food allergies and such were things that happened to OTHER people, and not me. lol.

So its all very surreal right now. I think its going to take a while to process.

Jestgar Rising Star

I suppose you are right. I do want to thank everyone on the boards for dealing with my whining and ranting. This is very new to me. Though not the worst thing that can happen, and certainly not the end of the world, I always assumed food allergies and such were things that happened to OTHER people, and not me. lol.

So its all very surreal right now. I think its going to take a while to process.

Whine is always better when shared with friends. ;)

squirmingitch Veteran

I will echo what Jestgar says. Whine away. Sometimes we rant pretty good too!

I know it's shocking at first. All I could think of was all the foods I could never have again. My favorite foods. The comfort foods. But it's weird --- I don't think about those things at all now. In fact, the thought of them turns me off. I've read quite a few who have said that.

Hang in there. We're here for you. smile.gif


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KMMO320 Contributor

I will echo what Jestgar says. Whine away. Sometimes we rant pretty good too!

I know it's shocking at first. All I could think of was all the foods I could never have again. My favorite foods. The comfort foods. But it's weird --- I don't think about those things at all now. In fact, the thought of them turns me off. I've read quite a few who have said that.

Hang in there. We're here for you. smile.gif

Chocolaye chip muffins from Dunkin Donuts are my all time most favorite things to eat. I am remembering back to a few days ago when I felt AMAZING (relatively) and thats how I want to feel all the time. So I guess I will do what I need to do. I just cant wait to see the dr and find out for sure.

I do know that even if she comes back and says she doesnt think its Celiac, I KNOW how I feel, I KNOW how much better I felt by not eating wheat and since there is no harm in NOT eating it, thats what I will do, regardless.

I definitely have a problem with eggs and too much dairy. Eggs do me in within minutes of eating, just goes right through me. I dont mean if eggs are an ingredient, but just straight eggs...its hell. And too much creamy milk/cream or liquidy type cheese is just awful too. I am ok with hard cheese and skim milk, but creamy stuff kills me.

I dont know if its related to the Celiac or not..I have been reading and saw how many people have trouble with it first while healing. I hope thats all it is and not a seperate allergy :(

squirmingitch Veteran

It could very well be b/c of celiac. You may find you can get those foods back after you heal. And you may try them at say 6 mos. & not be able to tolerate them but try again @ 1 year & you will or 2 yrs. We all heal at different rates so it will be a trial & error thing.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,200
    • Most Online (within 30 mins)
      7,748

    Elisa Stutsman
    Newest Member
    Elisa Stutsman
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Redanafs
      Hi everyone. Back in 2022 I had blood work drawn for iga ext gliadin. Since then I’ve developed worse stomach issues and all other health issues. My doctor just said cut out gluten. He did no further testing. Please see my test results attached. I just need some direction cause I feel so ill and the stomach pain is becoming worse. Can this test show indications for other gastrointestinal diseases?
    • Fayeb23
      Thank you. These were the results TTG ABS NUMERICAL: > 250.0 U/mL [< 14.99]  Really don’t understand the results!
    • Scott Adams
      Clearly from what you've said the info on Dailymed is much more up to date than the other site, which hasn't been updated since 2017. The fact that some companies might be repackaging drugs does not mean the info on the ingredients is not correct.
    • RMJ
      To evaluate the TTG antibody result we’d need to know the normal range for that lab.  Labs don’t all use the same units.  However, based on any normal ranges that I’ve seen and the listed result being greater than a number rather than a specific number, I’d say yes, that is high! Higher than the range where the test can give a quantitative result. You got good advice not to change your diet yet.  If you went gluten free your intestines would start to heal, confusing any further testing,
    • Bev in Milw
      Scott is correct….Thank you for catching that!      Direct link for info  of fillers.    http://www.glutenfreedrugs.com/Excipients.htm Link is on 2nd page  of www.glutenfreedrugs.com   Site was started by a pharmacist (or 2) maybe 15-20 yrs ago with LAST updated in  2017.  This makes it’s Drug List so old that it’s no longer relevant. Companies & contacts, along with suppliers &  sources would need to be referenced, same amount effort  as starting with current data on DailyMed      That being said, Excipient List is still be relevant since major changes to product labeling occurred prior ’17.           List is the dictionary that sources the ‘foreign-to-us’ terms used on pharmaceutical labels, terms we need to rule out gluten.    Note on DailyMed INFO— When you look for a specific drug on DailyMed, notice that nearly all of companies (brands/labels) are flagged as a ‘Repackager’… This would seem to suggest the actual ‘pills’ are being mass produced by a limited number of wholesaler suppliers (esp for older meds out of  patent protection.).      If so, multiple repackager-get  bulk shipments  from same supplier will all  be selling identical meds —same formula/fillers. Others repackager-could be switching suppliers  frequently based on cost, or runs both gluten-free & non- items on same lines.  No way to know  without contacting company.     While some I know have  searched pharmacies chasing a specific brand, long-term  solution is to find (or teach) pharmacy staff who’s willing help.    When I got 1st Rx ~8 years ago, I went to Walgreens & said I needed gluten-free.  Walked  out when pharmacist said  ‘How am I supposed  to know…’  (ar least he as honest… ). Walmart pharmacists down the block were ‘No problem!’—Once, they wouldn’t release my Rx, still waiting on gluten-free status from a new supplier. Re: Timeliness of DailyMed info?   A serendipitous conversation with cousin in Mi was unexpectedly reassuring.  She works in office of Perrigo, major products of OTC meds (was 1st to add gluten-free labels).  I TOTALLY lucked out when I asked about her job: “TODAY I trained a new full-time employee to make entries to Daily Med.’  Task had grown to hours a day, time she needed for tasks that couldn’t be delegated….We can only hope majorities of companies are as  conscientious!   For the Newbies…. SOLE  purpose of  fillers (possible gluten) in meds is to  hold the active ingredients together in a doseable form.  Drugs  given by injection or as IV are always gluten-free!  (Sometimes drs can do antibiotics w/ one-time injection rather than 7-10 days of  pills .) Liquid meds (typically for kids)—still read labels, but  could be an a simpler option for some products…
×
×
  • Create New...