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Any Tips For Gaining Weight After celiac disease Diagnosis?


GLUTEN FREE IN SLC

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GLUTEN FREE IN SLC Rookie

I was recently diagnosed with Celiac (April 10th, 2012). In the past two years I have unintentionally lost nearly 50 pounds. 20 of which have been within the past couple months. Finally being diagnosed with Celiac was a Godsend, in that I finally knew what was most likely causing my weight loss. I have always worked out and have been in really good shape. Being a male, and someone that didn't have much weight to loose in the first place, I have really taken a hit to my self confidence and self esteem (not to mention all the other side effects of Celiac).

If anyone has any tips for getting back to being healthy and eating gluten free, nutritious/high calorie foods, diet regimens, etc. please let me know. Any advice would be greatly appreciated! Thanks!


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ravenwoodglass Mentor

What worked for me was eating 3 balanced meals and in the morning I would open a bag of Wylde pretzels, they are about 1000 calories a bag and soy and gluten free, and I would munch them off and on all day. That would give me an extra 1000 calories without much effort. Wouldn't work for someone watching their carbs but for me it helped me gain back the 10 lbs I needed within a couple weeks.

lucky28 Explorer

I ate a lot of hardboiled eggs as well as bananas with almond butter for breakfast and snacks for the first few months. I also ate at least one batch of gluten-free brownies a week for the first 6 months. LOL not very nutritious, but they are yummy and help put on some lbs! Look around the boards here. There's a few threads with breakfast lunch and dinner suggestions. Good luck and Welcome.

oh, I almost forgot, LARABARS come in tons of flavors and at least the one's I've tried have been pretty calorie laden.

TightLoli Rookie

Don't forget about peanut butter.

woodnewt Rookie

I was recently diagnosed with Celiac (April 10th, 2012). In the past two years I have unintentionally lost nearly 50 pounds. 20 of which have been within the past couple months. Finally being diagnosed with Celiac was a Godsend, in that I finally knew what was most likely causing my weight loss. I have always worked out and have been in really good shape. Being a male, and someone that didn't have much weight to loose in the first place, I have really taken a hit to my self confidence and self esteem (not to mention all the other side effects of Celiac).

If anyone has any tips for getting back to being healthy and eating gluten free, nutritious/high calorie foods, diet regimens, etc. please let me know. Any advice would be greatly appreciated! Thanks!

In my own experience, it just took time. After a terrible issue with chronic (and unknowingly) consuming small amounts of gluten through cross contamination a few years ago, my weight dropped from a healthy 135 lbs (BMI 22) to around 90 lbs (BMI 15) over three months. Once I'd discovered the source of cross-contamination and eliminated the gluten, the weight loss stopped, but I only gained weight up to 102 lbs and stayed that way for about one year no matter what I ate. I kept a food journal and consumed on average 2500+ calories a day and gained not a single pound. Scale seemed to be stuck at "102." It took one year of being totally gluten-free and eating very simple, home-prepared, whole foods before the weight came back. My current diet is primarily: avocados, some potatoes, some bananas, some nuts, lots and lots of red meat, some chicken, eggs, yogurt, easy to digest veggies, minimal fruit, refined sugars in extreme moderation (the yogurt I eat has some added sugar... I've also recently added very dark chocolate which has a little sugar added too, so that would be the sources of sugar in my diet), and absolutely no grains... I guess you could say that in addition to being hyper-vigilant for gluten sources of cross contamination, I'm on a high protein, relatively high fat, moderate carbohydrate (about 60-100g a day), totally grain free diet. And for me, this works and helped me to recovery. I do not know if this would work for others, however. It took me a lot of trial and error to figure out what was "right" for my digestive system. In the beginning I was so sick my diet was extremely limited (almost exclusively banana, potato, avocado, and meat) but I added foods like nuts and eggs and vegetables one by one as I could tolerate them.

My weight is 125 lbs now - still ten pounds below my target goal but at least in the normal range for my height.

GLUTEN FREE IN SLC Rookie

Why do you stay away from all grains? Even rice...? And what about brands of bread and so forth that claim to be completely gluten free?

Thanks, Everyone's comments have been greatly appreciated.

woodnewt Rookie

Why do you stay away from all grains? Even rice...? And what about brands of bread and so forth that claim to be completely gluten free?

Thanks, Everyone's comments have been greatly appreciated.

I would say the best brands of gluten free breads are Udi's and Kinnikinnick. I don't eat them anymore, but I used to. They are both very tasty IMO.

I avoid all grains because through trial and error I have determined that they are detrimental to my health. I follow a diet that somewhat resembles a hybrid of SCD (Specific Carbohydrate Diet) and Paleo diet. As said, this may not be ideal for all persons, but I know without doubt it is ideal for me. I used to eat soft white rice and meat soups when I was first recovering and I eventually realized it was not doing me any good. It wasn't until I replaced the rice with potatoes and bananas that I noticed improvement.


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    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
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