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Need Some Encouragment

Mama of 6

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Mama of 6 Rookie
Mama of 6
Posted

Hi everyone, I am new here, and am so glad to find this forum. I have had a panel done and it came out negative, I am seeing from the other posts that it can sometimes be a false negative. I was so disapointed because I thought it would give me a clear answer. I have had a biopsy done in 2006 because of some other problems with my stomach. I just recently whent back in to see the same GI Dr. and he said my biopsy looked normal. I have been gluten free now since the first of may and felt remarkably better the first three days. Then felt crappy for about 3 days, then felt better again. I was haveing some joint pain so I took Norco (generic for vicoden) and I am feeling HORRIBLE. Every symptom has came crashing back and have been down for three days. Did I mention I have 6 kids all under the age of 11. I started feeling my worst symptoms 6 weeks after the birth of my baby and was told I have Fibromyalgia. I have been sent from dr to dr and specialists all claiming I have fibro. They think I am very crazy because I keep telling them I don't. I also called the company that makes the Norco and they do not use gluten products. So here is my quesion, is it normal to feel good and then bad? Do you think it was from the Norco? Is it possible that I have a gluten intolerance?

Also I should mention that I have had every test in the world done (it seems like) and everything came back normal except I have Gasterpareses which is a slow emptying of the stomach and giagantic cysts on my overies. and suposibly I have fibro. Someone please help me and give me direction so I can get back to being me. Thanks ahead of time for all the support!

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ciamarie Rookie
ciamarie
Posted

Do you have the actual test results, and which tests they took? If you're now gluten-free, it's likely too late to have more tests done, but if you share details on what you have some of the more knowledgable folks should be able to let you know if perhaps you're borderline or something?

Also, yes false negatives seem to be somewhat common. It's also not unusual to go back and forth on feeling good, then not so good when first starting out. There's also a possibility that there are other ingredients that are causing problems, it took me a while to discover I also need to stay away from MSG as well as sulfites (preservatives). I know certain starches and maltodextrin in supplements cause issues for me, and it turns out they fall under the sulfite category. Keeping a quick food diary if you can might be helpful.

Mama of 6 Rookie
Mama of 6
Posted
  • Author

Do you have the actual test results, and which tests they took? If you're now gluten-free, it's likely too late to have more tests done, but if you share details on what you have some of the more knowledgable folks should be able to let you know if perhaps you're borderline or something?

Also, yes false negatives seem to be somewhat common. It's also not unusual to go back and forth on feeling good, then not so good when first starting out. There's also a possibility that there are other ingredients that are causing problems, it took me a while to discover I also need to stay away from MSG as well as sulfites (preservatives). I know certain starches and maltodextrin in supplements cause issues for me, and it turns out they fall under the sulfite category. Keeping a quick food diary if you can might be helpful.

Thank you so much for your reply, I will start a food journal and try to stay away from the prestervatives. I just want to get to feeling better! I should get the test results back for my kids today I am scared and excited at the same time.

Razzle Dazzle Brazell Enthusiast
Razzle Dazzle Brazell
Posted

I have read a lot about celiac sufferers developing intolerance and allergies to other substances. I guess because it makes your immune system very inflammatory and sensitive. I think it woildnt be a bad idea to get tested for other allergies as well.

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