Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

On And Off Symptoms?


LundqvistSaves

Recommended Posts

LundqvistSaves Rookie

Hello -

I'm new and not diagnosed. I've been sick for almost a year now and blood work, MRIs, endiscopy and colonoscopy don't explain any reason why. All came back negative and am getting the "he's crazy" treatment from doctors. I just turned 26. Doctor took a biopsy last month but have yet to get results.

I've only been gluten free for about a week but honestly feel worse so far. Symptoms are heartburn, extreme bloating, and a massive pain in my upper stomach/below my ribs that goes down to about 2 inches above my belly button. Usually an all-around stomach ache and always fatigued. Always a stomach ache. The bloat is massive.

The thing that I find odd is that my symptoms flare up randomly. At least once a day, but sometimes I can go 5 hours feeling fine, then I'll have a bowel movement or maybe just do nothing at all and then suddenly all my symptoms will flare up terribly. Sometimes I'll eat and then suddenly feel 10x worse too - even when I eat gluten free. It seems that I would feel worse like this if I were to eat something contaminated with gluten, but why even when I eat gluten free? Is that normal for the first month or so?

I know it hasn't been long that I've been gluten free, but is it normal to just have your symptoms flare up randomly if you've been feeling ok for a few hours? Seems strange, or like something that would happen if you only consume gluten.

Thank you all for listening.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mama of 6 Rookie

Hello -

I'm new and not diagnosed. I've been sick for almost a year now and blood work, MRIs, endiscopy and colonoscopy don't explain any reason why. All came back negative and am getting the "he's crazy" treatment from doctors. I just turned 26. Doctor took a biopsy last month but have yet to get results.

I've only been gluten free for about a week but honestly feel worse so far. Symptoms are heartburn, extreme bloating, and a massive pain in my upper stomach/below my ribs that goes down to about 2 inches above my belly button. Usually an all-around stomach ache and always fatigued. Always a stomach ache. The bloat is massive.

The thing that I find odd is that my symptoms flare up randomly. At least once a day, but sometimes I can go 5 hours feeling fine, then I'll have a bowel movement or maybe just do nothing at all and then suddenly all my symptoms will flare up terribly. Sometimes I'll eat and then suddenly feel 10x worse too - even when I eat gluten free. It seems that I would feel worse like this if I were to eat something contaminated with gluten, but why even when I eat gluten free? Is that normal for the first month or so?

I know it hasn't been long that I've been gluten free, but is it normal to just have your symptoms flare up randomly if you've been feeling ok for a few hours? Seems strange, or like something that would happen if you only consume gluten.

Thank you all for listening.

I don't have any answers for this but am also wondering the same thing. I get horrible symptoms after a BM. after feeling fine all the rest of the day.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,624
    • Most Online (within 30 mins)
      7,748

    RLReynolds1993
    Newest Member
    RLReynolds1993
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jmartes71
      Shingles is dormant and related to chicken pox when one has had in the past.Shingles comes out when stress is heightened.I had my 3rd Shingles in 2023.
    • knitty kitty
      Here's one more that shows Lysine also helps alleviate pain! Exploring the Analgesic Potential of L-Lysine: Molecular Mechanisms, Preclinical Evidence, and Implications for Pharmaceutical Pain Therapy https://pmc.ncbi.nlm.nih.gov/articles/PMC12114920/
    • Flash1970
      Thank you for the links to the articles.  Interesting reading. I'll be telling my brother in law because he has a lot of pain
    • Scott Adams
      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
    • knitty kitty
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.