Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

On And Off Symptoms?


LundqvistSaves

Recommended Posts

LundqvistSaves Rookie

Hello -

I'm new and not diagnosed. I've been sick for almost a year now and blood work, MRIs, endiscopy and colonoscopy don't explain any reason why. All came back negative and am getting the "he's crazy" treatment from doctors. I just turned 26. Doctor took a biopsy last month but have yet to get results.

I've only been gluten free for about a week but honestly feel worse so far. Symptoms are heartburn, extreme bloating, and a massive pain in my upper stomach/below my ribs that goes down to about 2 inches above my belly button. Usually an all-around stomach ache and always fatigued. Always a stomach ache. The bloat is massive.

The thing that I find odd is that my symptoms flare up randomly. At least once a day, but sometimes I can go 5 hours feeling fine, then I'll have a bowel movement or maybe just do nothing at all and then suddenly all my symptoms will flare up terribly. Sometimes I'll eat and then suddenly feel 10x worse too - even when I eat gluten free. It seems that I would feel worse like this if I were to eat something contaminated with gluten, but why even when I eat gluten free? Is that normal for the first month or so?

I know it hasn't been long that I've been gluten free, but is it normal to just have your symptoms flare up randomly if you've been feeling ok for a few hours? Seems strange, or like something that would happen if you only consume gluten.

Thank you all for listening.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mama of 6 Rookie

Hello -

I'm new and not diagnosed. I've been sick for almost a year now and blood work, MRIs, endiscopy and colonoscopy don't explain any reason why. All came back negative and am getting the "he's crazy" treatment from doctors. I just turned 26. Doctor took a biopsy last month but have yet to get results.

I've only been gluten free for about a week but honestly feel worse so far. Symptoms are heartburn, extreme bloating, and a massive pain in my upper stomach/below my ribs that goes down to about 2 inches above my belly button. Usually an all-around stomach ache and always fatigued. Always a stomach ache. The bloat is massive.

The thing that I find odd is that my symptoms flare up randomly. At least once a day, but sometimes I can go 5 hours feeling fine, then I'll have a bowel movement or maybe just do nothing at all and then suddenly all my symptoms will flare up terribly. Sometimes I'll eat and then suddenly feel 10x worse too - even when I eat gluten free. It seems that I would feel worse like this if I were to eat something contaminated with gluten, but why even when I eat gluten free? Is that normal for the first month or so?

I know it hasn't been long that I've been gluten free, but is it normal to just have your symptoms flare up randomly if you've been feeling ok for a few hours? Seems strange, or like something that would happen if you only consume gluten.

Thank you all for listening.

I don't have any answers for this but am also wondering the same thing. I get horrible symptoms after a BM. after feeling fine all the rest of the day.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

    2. - GlorietaKaro replied to GlorietaKaro's topic in Super Sensitive People
      5

      Am I nuts?

    3. - trents replied to GlorietaKaro's topic in Super Sensitive People
      5

      Am I nuts?

    4. - GlorietaKaro replied to GlorietaKaro's topic in Super Sensitive People
      5

      Am I nuts?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,807
    • Most Online (within 30 mins)
      7,748

    Aron2
    Newest Member
    Aron2
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • JoJo0611
      Thank you this really helped. 
    • Samanthaeileen1
      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
    • GlorietaKaro
      One doctor suggested it, but then seemed irritated when I asked follow-up questions. Oh well—
    • trents
      @GlorietaKaro, your respiratory reactions to gluten make me wonder if there might also be an allergic (anaphylaxis) component at work here.
    • GlorietaKaro
      Thanks to both of you for your responses!  Sadly, even after several years of very strict gluten avoidance, I remember the symptoms well enough that I am too frightened to risk a gluten challenge— heartbeat and breathing problems are scary— Scott, thank you for the specific information— I will call around in the new year to see if I can find anyone. In the meantime, I will carry on has I have been— it’s working! Thanks also for the validation— sometimes I just feel crushed by disbelief. Not enough to make me eat gluten though—
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.