Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Does Anyone Else Experience This?


tuxedocat

Recommended Posts

tuxedocat Apprentice

First of all... I *will* be going to my doctor this week.

This was some of the issue that caused me to go back on gluten free in the last month. It seems to not bother me as long as I stay away from "mystery food", but then if I eat anything "questionable" (which for the moment seems to be anything that I didn't prepare myself) I feel this way for a few days. For example, I was fine yesterday until I had some potato chips (I had read the label!).

This is what I am experiencing...

* Heartburn and feeling like something is stuck in my throat and chest, and feeling of trapped burps. It's very uncomfortable especially when I'm laying down because it feels like something is sitting on my chest if I lay flat. When I feel this, it is fairly constant. It's worse at night than it is during the day. I feel fine in the morning.

* Occasional twingy/twitchy/fluttery feeling in my lower abdomen. It moves around. It feels like an alien baby in my stomach trying to get out!

* Occasional stomach pains that feel like a quick jab. Then they are over as quickly as they appeared.

* Constipated; poo is somewhat lighter colored than I'm used to. Reminds me of what I experienced during time I was initially tested for celiac in 07

* Have started eating mostly vegetarian and some fish because I can't even stand the smell of meat cooking. It smells so *strong* and it all smells spoiled and practically knocks me over when I walk in the room and smell it - felt like I was gagging when I was trying to eat chicken the other day.

And today, for the first time in all of this, I found myself feeling feverish...

I'm kinda freaking out here. :/ This is new stuff...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mommida Enthusiast

This is what I am experiencing...

* Heartburn and feeling like something is stuck in my throat and chest, and feeling of trapped burps. It's very uncomfortable especially when I'm laying down because it feels like something is sitting on my chest if I lay flat. When I feel this, it is fairly constant. It's worse at night than it is during the day.

* Occasional stomach pains that feel like a quick jab. Then they are over as quickly as they appeared. Younger children will say their whole stomach hurts.

* Constipated;

* I can't even stand the smell of meat cooking. It smells so *strong* and it all smells spoiled - felt like I was gagging when I was trying to eat chicken the other day. ~Weird that my daughter has just recently been having MORE issues with this. But it is worse right now for the seasonal allergies are playing a role in her EoE.

And today, for the first time in all of this, I found myself feeling feverish...

Constipation can cause a slight fever.

These are symptoms of Eosinophilic Esophagitus. Get into a knowledgeable gastroenterologist. The only way for a diagnoses is to have an endoscopy with biopsy.

OOps all the comments are inter mingled to your original post!

tuxedocat Apprentice

Thanks, I will look into that, I am going to try to get a doctor's appointment tomorrow. Yesterday I started having a new symptom - twinges in my rectum (I know, tmi), in addition to twinges I'd already been having all over my abdomin, ow. It's like my whole GI tract is rebelling.

Every time I eat anything, it sets off more gurgling and weirdness and there's only so much I can eat because I feel like it just "sits" there. Right now it's just gurgling constantly.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,084
    • Most Online (within 30 mins)
      10,442

    Melvac
    Newest Member
    Melvac
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Sigh. I posted this yesterday based on the Safeway website. I went back again today to their website to double check. On the page where they are selling Vanilla Bean flavor, it has a distinct Certified Gluten Free label. Other flavors on the Safeway website didn't have the gluten-free statement. Today I went into the store. None of the flavors I looked at, including Vanilla Bean, have a Gluten Free statement. Is it safe? Who knows. The ingredients are either safe or nearly safe (some have "natural flavor"). There are warnings about "contains milk and soy" but not about wheat - this implies they are safe, but again, who knows. On the other hand, every flavor I checked of their Slow Churn line of ice creams has wheat as an ingredient. 100% not safe.
    • knitty kitty
      Do keep in mind that many of the newly diagnosed have lactose intolerance.  This is because the villi lining the intestinal tract are damaged, and can no longer make the enzyme lactAse which breaks down the milk sugar lactOse.  When the villi grow back (six months to two years), they can again produce the enzyme lactAse, and lactose intolerance is resolved.  However, some people (both those with and without Celiac Disease) are genetically programmed to stop producing lactase as they age.   Do be aware that many processed foods, including ice cream, use Microbial Transglutaminase, a food additive commonly called "meat glue," used to enhance texture and flavor.  This microbial transglutaminase has the same immunogenicity as tissue transglutaminase which the body produces in response to gluten in people with Celiac Disease.  Tissue Transglutaminase (tTg IgA) is measured to diagnose Celiac Disease in blood tests.  Microbial Transglutaminase acts the same as Tissue Transglutaminase, causing increased intestinal permeability and inflammation.   New findings show that microbial transglutaminase may be able to trigger Celiac Disease and other autoimmune and neurodegenerative diseases.   Microbial Transglutaminase is not required to be listed on ingredients labels as it's considered a processing aid, not an ingredient in the U.S.  Microbial Transglutaminase has been GRAS for many years, but that GRAS standing is being questioned more and more as the immunogenicity of microbial transglutaminase is being discovered. Interesting Reading:  Microbial Transglutaminase Is a Very Frequently Used Food Additive and Is a Potential Inducer of Autoimmune/Neurodegenerative Diseases https://pmc.ncbi.nlm.nih.gov/articles/PMC8537092/
    • Aretaeus Cappadocia
      There is a 10 year old post in this forum on Edy's and Dreyer's ice cream. The information is somewhat outdated and the thread is closed to further comment, so here is a new one. Edy's And Dreyer's Grand Vanilla Bean Ice Cream - 1.5 Quart is labeled "Gluten Free". This is a different answer than years gone by. I don't know the answer for any other flavor at this moment. On 1 May, 2026, Edy's website says: "As a general rule, the gluten in Edy's and Dreyer's® frozen dessert products is present only in the added bakery products, such as cookies, cake or brownies. We always label the eight major food allergens on our package by their common name. We recommend to always check the label for the most current information before purchasing and/or consuming a product. The exception to this rule is our Slow Churned French Silk frozen dairy dessert, which contains gluten in the natural flavors." https://www.icecream.com/us/en/brands/edys-and-dreyers/faq It seems that Edy's and Dreyer's are more celiac-friendly than they were 10 years ago. Once I found enough information to make today's buying decision, I stopped researching.
    • Aretaeus Cappadocia
      probably not your situation @Mimiof2, but allow me to add one more to @trents list of celiac-mimics: "olmesartan-induced sprue-like enteropathy"  
    • knitty kitty
      My dad had an Abdominal Aortic Aneurysm.  Fortunately, it was discovered during an exam.  The doctor could feel my dad's heart beating in his stomach/abdomen.  The aneurysm burst when the doctor first touched it in surgery.  Since he was already hooked up to the bypass machine, my dad survived ten more years.  Close call! Triple A's can press on the nerves in the spinal cord causing leg pain.  I'm wondering if bowing the head might have increased the pressure on an aneurysm and then the nerves.   https://gulfcoastsurgeons.com/understanding-abdominal-aortic-aneurysm-symptoms-and-causes/ Abdominal Aortic Aneurysm Presenting as a Claudication https://pmc.ncbi.nlm.nih.gov/articles/PMC4040638/
×
×
  • Create New...