Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gf Burn-out


Lisa

Recommended Posts

Lisa Mentor

Hi to all that I have chatted with:

Lots of you guys are old hats at this gluten-free stuff and many are new, as I am.

What do you do when you get overloaded.

I actually have been dreaming of modified food starch/modified corn starch, natural ingred, spieces added....etc.

What do you do to chill-down a little and take this infliction step-by- step?

I guess, a little down tonight. The Dr. took six vials of blood to be tested for vitamin deficiencies......as my daughter would say "probley so with the brain fog mess".

I guess, a good night sleep and start over again and again and again...........

Emotions are hitting me now. Anyone there experienced the same ups and downs?

I would love to hear.... (think my chems are off .. so, there be I.)

Thanks for listening.......Lisa B.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

(This is an old hat speaking, so the perspective may not be as useful.)

When I get burnt-out dealing with the gluten-free stuff, I go back to making my really tried and true, normally gluten-free meals that I can fill my fridge with and just stay eating at home. I just plain ol' ignore anything but the meat/produce/beans/rice in the grocery store, and make sure everything in my house is unquestionable. I'll use my big 12qt pot to make soup or stew or both, and have plenty of leftovers. I'll make hummus and guacamole (both easy to make) so I can have vegetables with it and still have variety. Basically, give myself a lot of options that are simple but made from scratch that I don't have to think about. That means avoiding going out for meals, and making people come to my place for dinner instead of viceversa, but it's mentally easier on me that way when I'm feeling "used up".

mommida Enthusiast

It would be odd if you didn't feel this way. You are going through so many changes, feelings, and your body is trying to heal. Most books describe it as grieving for your past life.

How many of us have actually cried walking into a grocery store? I do suggest that you read Danna Korn's Kids with Celiac Disease. (Haven't read Wheat Free worry Free yet) It does address some of the emotional issues of diagnoses. We as adults try and supress too many of these feelings, and I just think it takes longer to adjust if your stuck in denial.

Laura

Lisa Mentor

Tiffany:

I have basically done well with the the gluten-free foods. (Still working on lipsticks, face cream and shampoo).

But it is the emotional fall-out , with the need to inspect everything that goes in your mouth that is making me TIRED.

It truely is a weiry task. I am one of the dumb bunnies that downloaded the Delfi-forum list and it shows up incripted on my computer....go figure...I didn't do it right and the computer wiz is at college in this household. Still working on fixing it.

THANKS FOR WRITING BACK. Lisa B.

PicturePerfect Explorer

I get down a lot, too. I don't know what brings it on. I guess I just start thinking about how I need to change my shampoo and lotion and then I just get upset that I have Celiac to begin with. But, I mean, its not like I want to go and eat gluten, because being sick is not worth it. I know that I am not very helpful, but I am a newbie at this too. :)

Hang in there.. we all try too!

Lisa

tarnalberry Community Regular
But it is the emotional fall-out , with the need to inspect everything that goes in your mouth that is making me TIRED.

<{POST_SNAPBACK}>

Those are the times I don't try anything new. Perhaps that's an old-hat thing... there are things I know that are safe that I don't have to think about. Perhaps it is having a mostly gluten-free kitchen... I don't even have to think about avoiding the three boxes that are my husbands gluten-filled ickiness.

You're totally right. Sometimes it just gets so damned tiring to be vigilant. It takes so much energy to do "everyday" things, like finding food, that we don't have a lot of energy left over for other things. It's like "whew... I tramped across the fields, hunted down a pack of well-labeled, safe-ingrediented boxes and managed to capture them and drag them home; I'm spent for the day". (I guess it's giving me a better appreciation for the days when you really had to hunt for your food in the wild! I'm glad I'm not back there!)

The "surround yourself with only safe stuff" is the only way I can think of to try to duplicate "hiding in a little shell", even if it's just for a little while.

I hope that, as time goes on, you'll be able to get to a point where you can do that - that you've found enough safe items that you can create a safety-zone for yourself.

Lisa Mentor

Thanks for your repy...without getting into a new forum.....

any lipsticks that are gluten-free? I am about as pale as a church mouse.

Bad night, (emotions) but will be good in the am.

Good night to all, thought and prayers to all Katrina's people.

Check back in the am. Thanks for you all being there.

Lisa B.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nogluten- Newbie

Lisa,

Hang in there. It does get easier over time. x

Guest BERNESES

Oh- how I know how you feel. I've been doing this for the last 7 months (I am definitely still a newbie) and I'm so tired, frustrated and disgusted. I don't mind the diet at all (actually, I had sort of weeded out a lot of things because I knew for some reason they just weren't making me feel good like beer, pasta, pancakes etc) but what I do mind is trying my butt off and still having accidents. THAT is frustrating. And just keeping the faith that I will heal. Sometimes it seems impossible but it's gotta happen. Right? Right!

calexander Newbie
Hi to all that I have chatted with:

Lots of you guys are old hats at this gluten-free stuff and many are new, as I am.

What do you do when you get overloaded.

I actually have been dreaming of modified food starch/modified corn starch, natural ingred, spieces added....etc.

What do you do to chill-down a little and take this infliction step-by- step? 

I guess, a little down tonight.  The Dr. took six vials of blood to be tested for vitamin deficiencies......as my daughter would say "probley so with the brain fog mess".

I guess, a good night sleep and start over again and again and again...........

Emotions are hitting me now.  Anyone there experienced the same ups and downs?

I would love to hear.... (think my chems are off .. so, there be I.)

Thanks for listening.......Lisa B.

<{POST_SNAPBACK}>

Hey Lisa,

I had to do the six vials thing today too. 8 hrs. of fasting, then working all day and driving to the lab for testing this afternoon. They had to do 6 separate sticks and draw me 6 times over 2 hours. Yuck!! This was for lactose intolerance. I'm just praying that it turns out o.k. In the meantime, I'm eating Haagen Daz every chance I get. It may be my last!! But I can tell you that after my testing today, I was a train wreck. I don't know if it was because my blood sugar was probably really low from fasting, or what. But I felt like I just hit the end of my rope. I have days where I feel really really good and I know that the diet is helping. And then there are days like this when I wonder why I'm so down. I'm sure it's just frustration and the fact that it's one more thing for us busy moms to have to think about and keep track of.

Anyway, I can totally relate to how you feel. Hope your tests turn out good. Keep in touch. Cherie

Diosa Apprentice
Hi to all that I have chatted with:

Lots of you guys are old hats at this gluten-free stuff and many are new, as I am.

What do you do when you get overloaded.

I actually have been dreaming of modified food starch/modified corn starch, natural ingred, spieces added....etc.

What do you do to chill-down a little and take this infliction step-by- step? 

I guess, a little down tonight.  The Dr. took six vials of blood to be tested for vitamin deficiencies......as my daughter would say "probley so with the brain fog mess".

I guess, a good night sleep and start over again and again and again...........

Emotions are hitting me now.  Anyone there experienced the same ups and downs?

I would love to hear.... (think my chems are off .. so, there be I.)

Thanks for listening.......Lisa B.

<{POST_SNAPBACK}>

I so understand where you are coming from!! I just worked it out this past May, and I've spent lots of time frustrated and in mourning over what I can no longer have.

What I've done is made my kitchen totally gluten-free and I cook all the time. At least for the week, I know that I don't have to worry about dinner nor lunches (usually leftovers from the previous night's dinner). Going to the grocery is another matter. :)

Also, I treat myself. There are some excellent gluten-free chocolate chip cookie recipes (if you can have chocolate chips nd rice flour), brownies (Bob'e Red Mill gluten-free Brownie mix is a lifesaver some days, especially for me - a chocaholic) or gluten-free chocolate bars (my personal preference is Green and Black's - no dairy in the dark chocolate nor the Maya Gold oranage chocolate). Doing this at least gives me a certain amount of normalacy.

Hope this helps a little.

Bonnie Explorer

Lisa, I totally relate to what you are going through.

I'm a newbie too - some days I feel great and some days I think I just can't do this!

Its so frustrating and tiring. I get really down and depressed at times especially when I'm in a hurry, juggling work and kids. In the old days I would just grab a pre-packed sandwich or a sausage roll at the shops. It KILLS me to make pizza etc. for my kids when I can't have it myself. They wont touch gluten-free food so I make separate meals!

I work in a small office of 6 girls - they order takeout all the time and eat it in front of me. They bring cake a lot too. I find this really difficult.

The thought that goes into shopping and cooking - the preparation of even a day out.

Sometimes is just seems like too much. BUT I never even contemplate eating gluten. That tells me something.

Just hang in there. We have to believe the others and trust it will get better.

Thinking of you!

Yvonne

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,327
    • Most Online (within 30 mins)
      7,748

    dnamutant
    Newest Member
    dnamutant
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.