Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Low Cholesterol Or Low Cortisol


naturegirl

Recommended Posts

naturegirl Rookie

I'd be interested to hear of anyone else experiencing low cholesterol and/or cortisol and any accompanying symptoms.

Does this often occur in celiacs (seen several other posts about this)? Even when they are on a gluten-free diet?

I first had low cholesterol and cortisol flagged one year ago. I just received new bloodwork (see signature for numbers) showing that my cholesterol and cortisol have continued to drop over the past year. Seems surprising as I've continued to eat lots of eggs, started eating butter (doctors orders!!!) and goat/sheep cheese. I don't eat meat, however, just fish and sea-food. I may need to start eating meat (been 'pescetarian' since childhood).

I've also been taking Isocort (supplement to help raise cortisol levels).

Thank you.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



TeknoLen Rookie

My total cholesterol plummeted to 119 (normal range 140-199) around the same time my Graves hyperthyroidism kicked into full gear. My HDL was down to 23 (normal 40-135). My doctor retested about 5 months later once we had my thyroid stabilized and my total cholesterol had returned to a more normal 173 and HDL was back up to 55. He said this scenario was fairly typical with hyperthyroidism, but now I cannot remember why. Since autoimmune thyroidism shows up sometimes with celiac, this might be something to consider. Not sure about the cortisol, we did not track that number... Good luck.

naturegirl Rookie

My total cholesterol plummeted to 119 (normal range 140-199) around the same time my Graves hyperthyroidism kicked into full gear. My HDL was down to 23 (normal 40-135). My doctor retested about 5 months later once we had my thyroid stabilized and my total cholesterol had returned to a more normal 173 and HDL was back up to 55. He said this scenario was fairly typical with hyperthyroidism, but now I cannot remember why. Since autoimmune thyroidism shows up sometimes with celiac, this might be something to consider. Not sure about the cortisol, we did not track that number... Good luck.

Thanks a lot for sharing. How was your hyperthyroidism diagnosed?

I did have a couple of thyroid function measurements done in this recent blood test. My TSH was 1.73 mU/L (normal range: 0.3-4.5) and 'free' T4 was 1.00 ng/dL (normal range: 0.7-1.8). I have recently had a subtle but noticeable sensation in my neck around where I think the thyroid is... Haven't really given it too much attention though.

This doctor (that I'm going to see again in a few days) mentioned that he suspected that some kind of thyroid issue may be occurring even though the last blood results were in the normal range (can't remember if he said hypo or hyper though). However, I don't think that I'm displaying that many of the symptoms for either. He suggested that I could take a natural thyroid supplement (pig hormones?) without further testing but that it could make things worse if it is not correct. But that we would know pretty quickly if that was the case... I'll ask him about the connection with the cholesterol for sure!

Thanks again.

TeknoLen Rookie

Thanks a lot for sharing. How was your hyperthyroidism diagnosed?

I was feeling a little "off" so I went in for a routine physical. Initial blood test for TSH came in at 0.05 and subsequent blood test showed TSH of 0.02, slightly elevated T4, moderately elevated T3, and further indicated elevated TPO antibodies and elevated TSH receptor antibodies. Thyroid ultrasound showed significant abnormal activity. Diagnosis autoimmune hyperthyroidism a/k/a Graves Disease. Your numbers look good but perhaps your doctor will order up the thyroid antibodies tests just to rule it out for sure... good luck.

naturegirl Rookie

I was feeling a little "off" so I went in for a routine physical. Initial blood test for TSH came in at 0.05 and subsequent blood test showed TSH of 0.02, slightly elevated T4, moderately elevated T3, and further indicated elevated TPO antibodies and elevated TSH receptor antibodies. Thyroid ultrasound showed significant abnormal activity. Diagnosis autoimmune hyperthyroidism a/k/a Graves Disease. Your numbers look good but perhaps your doctor will order up the thyroid antibodies tests just to rule it out for sure... good luck.

Thanks for sharing... I looked over symptoms for the different forms of thyroidism and it doesn't seem to really align with my symptoms but I will perhaps see whether the doctor recommends getting an thyroid ultrasound done (as I have had the strange sensations in that area). I'm also waiting for a 'hormone test (saliva samples over 30 days)' so perhaps that is more sensitive than the blood-work. Thanks again.

woodnewt Rookie

I'd be interested to hear of anyone else experiencing low cholesterol and/or cortisol and any accompanying symptoms.

Does this often occur in celiacs (seen several other posts about this)? Even when they are on a gluten-free diet?

I first had low cholesterol and cortisol flagged one year ago. I just received new bloodwork (see signature for numbers) showing that my cholesterol and cortisol have continued to drop over the past year. Seems surprising as I've continued to eat lots of eggs, started eating butter (doctors orders!!!) and goat/sheep cheese. I don't eat meat, however, just fish and sea-food. I may need to start eating meat (been 'pescetarian' since childhood).

I've also been taking Isocort (supplement to help raise cortisol levels).

Thank you.

Severe malabsorption and malnutrition can cause low cholesterol. So yes it can be connected to celiac. Mine used to be around 110. Sibling's was 70 but then he was also at death's door at the time requiring an emergency surgery and subsequent admittance to the ICU.

I have never had cortisol levels tested.

Last time I had a blood test my cholesterol was around 220 and I hope it goes up a little more than that. I do eat a lot of meat but if what I learned in the nutrition classes I've taken are any indication of fact, your liver adjusts cholesterol production based on dietary intake. So if you eat less cholesterol your liver makes more of it, and vice versa. I don't believe the <200 cholesterol BS that's being touted right now. Low cholesterol ups mortality. Cholesterol is what your cell membranes incorporate, a significant portion of what your brain is made of, a precurser to hormones (including cortosol), and your body's spackle for inflammation. Current medical science is hating on the spackle and ignoring the core problem: inflammation.

Gemini Experienced

Severe malabsorption and malnutrition can cause low cholesterol. So yes it can be connected to celiac. Mine used to be around 110. Sibling's was 70 but then he was also at death's door at the time requiring an emergency surgery and subsequent admittance to the ICU.

I have never had cortisol levels tested.

Last time I had a blood test my cholesterol was around 220 and I hope it goes up a little more than that. I do eat a lot of meat but if what I learned in the nutrition classes I've taken are any indication of fact, your liver adjusts cholesterol production based on dietary intake. So if you eat less cholesterol your liver makes more of it, and vice versa. I don't believe the <200 cholesterol BS that's being touted right now. Low cholesterol ups mortality. Cholesterol is what your cell membranes incorporate, a significant portion of what your brain is made of, a precurser to hormones (including cortosol), and your body's spackle for inflammation. Current medical science is hating on the spackle and ignoring the core problem: inflammation.

I agree with this line of thought. Doctors ought to be hanged for the amount of cholesterol drugs they push on people. I have also found that a diet high in carbs will raise cholesterol...not the meat fear they like to put out there. High carbs raise blood sugar and that triggers inflammation. But don't worry....we have steroids for that inflammation...... :o

I should never get started on this topic....Western medicine drives me insane..... :ph34r:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 1 month later...
starrytrekchic Apprentice

I have low cholesterol. The first time I got it tested was a few months after going gluten free & it was at 135 total. It went up to 150, but the last time I tested it (almost 3 years gluten free) it was back down to 143. I can't seem to get it up in the normal range--it really needs to be above 160 to be healthy.

Celiac can trigger it since you can't absorb what your body needs to make cholesterol (and might not absorb much cholesterol from the diet itself), but that should sort itself out after going gluten-free. Like you, I don't eat any meat--and I also run regularly, both of which lower cholesterol. Symptoms tend to include most brain issues (anxiety, depression).

june27 Apprentice

I was diagnosed with Celiac 5 months ago and have been gluten/dairy free since then. I have always had low total cholesterol (105-120 range), with an HDL number teetering around 40 (38-41). I have read that with Celiac and mal-absorption issues it is common to have low cholesterol because your body isn't absorbing fat (and likely the fat-soluble vitamins too). I had my annual physical last month, and was hoping that my cholesterol numbers might be more normal (or at least have a reasonable HDL number). I was disappointed to hear that my total is still 105 and my HDL went down to 38. :(

I am already doing almost everything my primary doctor recommended to improve my HDL number:

exercise (i walk most days, and do some other exercise 3-5 days a week)

omega-3's (salmon once a week; flax seed/fish oil/cod liver oil supplements daily)

control weight (i could stand to lose a few lbs, but probably not more than 5)

avoid breads/pastries/etc (i don't bother with much for processed gluten-free foods)

The only thing that I am not doing is drinking red wine - which I do love to drink, but I also gave up drinking (for the time being) with the diagnosis to help my body heal.

So....I talked to my naturopathic doctor who recommended getting the celiac panel in the first place - she has put me on digestive enzymes, to help my body start absorbing fat.

In a few weeks, I need to get my cholesterol tested again, to see if the enzymes are helping...

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    2. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,321
    • Most Online (within 30 mins)
      7,748

    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.