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Other Food Allergies?


kim2222

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kim2222 Newbie

I have Celiac Disease and started having symptoms three years ago. Body pain, fatigue, constant headache, ringing in my ears, head pressure, sinus issues, stomach pain, cramping, nausea,bloating, constipation/diarrhea,lost 32 pounds, lost most of my eyebrows, my hair thinned out and my nails and hair stopped growing.

Now that I am gluten free most of these issues have resolved. I still have body aches and pains and I was told it was probably Fibromyalgia.

I have developed over the last year and a half food intolerance to so many things. I can,t eat gluten free oatmeal or rice, tomatoes, onions, peppers,potatoes, sweet potatoes, kale, spinach, gluten free spices, dairy, coffee, tea, chocolate, gluten free candy, strawberries, blackberries, blueberries, cantaloupe, most nuts, fish, most anything that's processed I also can only tolerate a small amount of carbs and sugar as I end up getting sleepy, increased heart rate, the shakes and sweaty.

I have given up trying anything new because I am so tired of getting sick.

Now I only eat eggs, chicken, occasionally red meat, bananas, apples, almond milk, raw almonds, Lara Bars and romaine lettuce with olive oil.

I am so frustrated!!!!! I don,t understand why I have all these issues.

I had an ANA test a year ago and tested positive but then tested negative 6 months later. Doctors haven't been much help.

Desperate for any advice.


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mommida Enthusiast

ARe you trying to get a further diagnoses?

As a Celiac some (supposedly common) digestive issues are Pernicious anemia and lacking the gut enzyme that helps digest papaya (if I remember right, papsein)

Kinda sounds like you want to add more foods to your diet. So this is the advice I will tell you. Keep a food journal. (REmember some reactions are 12 days long ~Eosinophils) Journal along any symptom, location you ate at or visited ~ as some reactions can be airborn.

Look up the cross reaction possiblities of the foods you know are a problem tomatoes ~ cross react with airborn ragweed.

Look for foods that have less chance of causing a reaction (avacado)

Most reactions are to PROTEIN in foods. If your diet is really lacking, there are amino acid formulas to help supplement your diet. If worse comes to worst, there are food pump procedures.

Happyw5 Explorer

I know how frustrating allergies can be. I am allergic to peanuts, raisins, soy, wheat, dairy, spinach, hazelnuts, cauliflower and broccoli, tomatoes (but I can eat canned and sauce) and I am sure I am forgetting some. Alot of the foods you are allerigic to are probably related to each other. For example night shade vegetables. I also have oral allergy syndrome, so I react to many fruits and veges in the raw state, but I can eat them cooked or frozen. My body reacts to them like a pollen. I have to eat foods on a rotation diet, if I eat the same food more than a few days in a row my body starts to react to them. If I have chicken one day I will eat fish or beef the next. If I have corn one day the next will be rice or quinoa. I am ok with sugar and chocolate--thank god!!! It's all about balance...I know the fear of trying a new food, I would suggest reading the book diet wise...It has amazed me how accurate it is for my situation... Have you ever had your thyroid tested? Good Luck!

Bubba's Mom Enthusiast

I have Celiac Disease and started having symptoms three years ago. Body pain, fatigue, constant headache, ringing in my ears, head pressure, sinus issues, stomach pain, cramping, nausea,bloating, constipation/diarrhea,lost 32 pounds, lost most of my eyebrows, my hair thinned out and my nails and hair stopped growing.

Now that I am gluten free most of these issues have resolved. I still have body aches and pains and I was told it was probably Fibromyalgia.

I have developed over the last year and a half food intolerance to so many things. I can,t eat gluten free oatmeal or rice, tomatoes, onions, peppers,potatoes, sweet potatoes, kale, spinach, gluten free spices, dairy, coffee, tea, chocolate, gluten free candy, strawberries, blackberries, blueberries, cantaloupe, most nuts, fish, most anything that's processed I also can only tolerate a small amount of carbs and sugar as I end up getting sleepy, increased heart rate, the shakes and sweaty.

I have given up trying anything new because I am so tired of getting sick.

Now I only eat eggs, chicken, occasionally red meat, bananas, apples, almond milk, raw almonds, Lara Bars and romaine lettuce with olive oil.

I am so frustrated!!!!! I don,t understand why I have all these issues.

I had an ANA test a year ago and tested positive but then tested negative 6 months later. Doctors haven't been much help.

Desperate for any advice.

You may have a small intestine bacterial overgrowth(SIBO)? If you have bad bacteria in your small intestine, they feed on what you eat and emit toxins that can go into your bloodstream and give you a reaction. It would be a good idea to get tested for it.

If you don't want to get tested, taking a digestive enzyme supplement when you eat, along with taking probiotics will help fight the dysbiosis that's so common with digestive problems. It takes quite a long time (months) to regulate your system with this method though. It won't normalize in just a week or so.

I take 3 different kinds of probiotics. There are a lot of different strains contained in various brands. Culturelle dairy free gets good reviews. One that I take (power-dophilus) has a high number of lactobacillus acidopholus which fights yeast and helps get rid of it.

That was recommended to me by the Dr. I saw at the Mayo Clinic.

benXX Rookie

...taking a digestive enzyme supplement when you eat,

Any tips on which enzymes to take?

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    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
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