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A Variety Of Symptoms. Can Anyone Relate?

RNEN80

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RNEN80 Newbie
RNEN80
Posted

Hi everyone. I am new to the community and to going gluten free. I have not been diagnosed, but as a nurse, I find the weird symptoms over the years leading me to my own diagnoses. Symptoms include fatigue, throat congestion, eye twitching, alternating constipation/diarrhea, cluster headaches ( behind one eye), bloating, gas, nausea, joint and muscle pain and adult acne, easy bruising and panic attack and anxiety. I feel like I am going insane somedays when the anxiety and digestion gets too bad. I have had these for years, and some are getting worse. I went gluten free about 3 days ago and have already felt a difference digestion wise. Any feedback about your experience would be great. I feel so lost. Thank you.

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tom Contributor
tom
Posted

Hi RNEN80,

Believe me, MANY here can relate to those symptoms!

...I feel so lost.

...

I bet there are loads of threads on this forum that can make you feel less lost in a hurry.

I think you're in the right place.

Good luck :)

~**caselynn**~ Enthusiast
~**caselynn**~
Posted

Hi everyone. I am new to the community and to going gluten free. I have not been diagnosed, but as a nurse, I find the weird symptoms over the years leading me to my own diagnoses. Symptoms include fatigue, throat congestion, eye twitching, alternating constipation/diarrhea, cluster headaches ( behind one eye), bloating, gas, nausea, joint and muscle pain and adult acne, easy bruising and panic attack and anxiety. I feel like I am going insane somedays when the anxiety and digestion gets too bad. I have had these for years, and some are getting worse. I went gluten free about 3 days ago and have already felt a difference digestion wise. Any feedback about your experience would be great. I feel so lost. Thank you.

Welcome!! I can relate to a lot of those symptoms, and to the medical worker aspect as well. I am a CT tech and found myself, the same as you, noticing the odd sequence of events. I'm very thankful for my GI doc who knew just what to do with me! I was a mess, lost is a good way to describe it. I wasn't sure of where to start, or how for that matter, luckily I came across this site. There's lots of great threads to check out and people to bounce questions off. I've been diagnosed and gluten-free for over a year now, and I feel so much better, it's awesome! Good luck to you!! :)

RNEN80 Newbie
RNEN80
Posted
  • Author

Thank you for your reply's! I have done a little researching on others symptoms and find myself relating to almost 95% of them. I always thought it was just because as someone in health care, you are more in tuned to symptoms and could have been overreacting. However, I don' t think I am. Too many weird symptoms; too long; too similar to celiacs. I am looking into the blood tests and or biopsy if necessary. In the mean time, going to stick to gluten free. Thank you again. I feel less lost.

bdw062590 Newbie
bdw062590
Posted

Our symptoms sound the same! You are not alone!

beachbirdie Contributor
beachbirdie
Posted

Thank you for your reply's! I have done a little researching on others symptoms and find myself relating to almost 95% of them. I always thought it was just because as someone in health care, you are more in tuned to symptoms and could have been overreacting. However, I don' t think I am. Too many weird symptoms; too long; too similar to celiacs. I am looking into the blood tests and or biopsy if necessary. In the mean time, going to stick to gluten free. Thank you again. I feel less lost.

If you are planning to seek testing, you must be eating gluten. Even a short time (a couple of weeks) gluten free can skew your blood tests. It's already too easy to get false negatives, you don't want to sabotage yourself! :)

Of course, the gluten-free trial can tell you a lot too. You may find you don't want to do testing if the diet has awesome results for you.

Welcome to the forum!

Lumi Newbie
Lumi
Posted

Hey just started a post that sounds the exact same, I feel lost too, just looking for some guidance, starting my diet today, hopefully we both start feeling better :D

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    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

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    • Ello
      Small Bowel Resection 12 inches

      By Ello · Posted

      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
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      Small Bowel Resection 12 inches

      By trents · Posted

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      Welcome to the celic.com community @Ello! You say you had a blood test for celiac disease after eating gluten for 2 weeks. Were you gluten free before that? Had you ever been officially diagnosed with celiac disease previously? You say the result of the blood test was 1.5. Can you provide the name of the test and the reference range for negative vs. positive for the test? I ask because different labs used different reference ranges so scores without a reference range aren't very helpful.
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