Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hives


DogWalkerNYC

Recommended Posts

DogWalkerNYC Apprentice

Let me start by saying I've never had hives and, to the best of my knowledge, never had food allergies. I'll be 65 in October. Two years ago my dr diagnosed me with mild GERD and a daily Prilosec usually stopped the heartburn and night time vomiting, unless I ate too late or the wrong foods, etc. But basically the GERD was under control.

Then the bloating started after eating a buttered roll every night as I did computer work. I had never heard of gluten intolerance or Celiac Disease until the bloating scared me into doing some research. And then,the bloating, along with symptoms I've had since I was a child, began to make sense. I 'played' with a gluten-free diet, not wanting to see my dr yet, because I started to think the GERD diagnosis was wrong, and I decided to test myself and then discuss my reaction with my dr. Within a week 3 major symptoms, among them the bloating, STOPPED!!. Then I glutened myself again (not so much to test my theory but honestly because I fell off the wagon) and the symptoms started again.

For about a month I was a yo-yo dieter .. gluten free .. gluten .. gluten free, etc. In addition, I started ordering gluten free meals from restaurants, only to get mild reactions after eating them. Further talks with the restaurants uncovered the fact that there may be small amounts of gluten in sauces, etc. but they assured me they didn't add any gluten. Well, duh!! They just don't get it.

About a month ago the top of my right arm, from wrist to elbow (top only) became severely, ridiculously itchy and eventually broke out in hives. I don't believe it's DH because the little bumps swell to inch round, ridiculously itchy hive like things. No liquid comes out of the welts. Also, the skin on my arms changes and looks very leathery. Then this itchy condition spread to my left arm and two huge hives appeared on the back of my neck. The hives on the back of my neck eventually went away and I'm left with two extremely itchy arms (tops only) and the hives come and go.

I thought this might be related to my dog licking my arms, but I stopped him from doing that and the hives still come and go. So, although I don't know exactly what they are (DH, hives, or something else) I'm convinced they are yet another sign that 'gluten has entered the building'.

At this point I do not plan to go through the pain of eating gluten again just to be tested. I'm seeing my gastroenterologist next month for a yearly check up. I have pictures of the hive like things, lists of my symptoms and when they stopped and I'll discuss a plan of action going forward.

I am very grateful to be responding to a gluten-free diet, and I'm very grateful to have delicious gluten-free food, certified gluten-free bread, rolls, coconut milk desserts that are mouth watering and fill all my cravings (company is called 'So Delicious' and it's dairy free, cultured coconut milk. The raspberry is truly incredible).

No more eating out for awhile. If I have to for business I'll have fresh fruit or veggie salads. I have a big reunion coming up next week. As hard as it will be to avoid the foods everyone else will be eating, the thought of the pain, the intestinal damage and those huge, red, itchy disgusting hives will get me through it.

Sorry for the long post and thanks for the support.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to colinukcoeliac's topic in Gluten-Free Restaurants
      10

      What should I expect from a UK restaurant advertising / offering "Gluten Free" food

    2. - cristiana replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      34

      Insomnia help

    3. - cristiana replied to colinukcoeliac's topic in Gluten-Free Restaurants
      10

      What should I expect from a UK restaurant advertising / offering "Gluten Free" food

    4. - melthebell replied to melthebell's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Persistent isolated high DGP-IGG in child despite gluten-free diet

    5. - trents replied to melthebell's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Persistent isolated high DGP-IGG in child despite gluten-free diet

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,499
    • Most Online (within 30 mins)
      7,748

    genliu
    Newest Member
    genliu
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • cristiana
      Re: Michelin star.  To give an example, the Ritz Hotel in London has two Michelin stars.   Here's another article about Michelin stars - from our own archive.  
    • cristiana
      Very helpful @knitty kitty.  Thank you.  I am trying to remember what vitamin so alarmed my GP and I have a feeling it was A or E.  I remember reading the pills contained well over the 100 per cent RDA of whatever the vitamin was. One thing I'd love to ask you that has always intrigued me.  One day when my anxiety was completely through the roof.  I 'felt the fear and did it anyway' - a phrase other anxiety sufferers may be aware of, which I found a powerful tool in my recovery -  and visited a friend's house, even though I felt so wretched.  For some reason I craved milk and drank two whole pints of milk in quick succession while I was with her - to this day I can't think why, because I don't usually drink milk 'neat' - I like it in tea or coffee, or hot chocolate.  But I distinctly remember within a couple of hours feeling absolutely fine again for quite a while.  I've often wondered was it down to this milk, which I've since understood contains quite decent levels of B12.  Would that have really worked so fast?    
    • cristiana
      @trents  Good question.  We are strict at home, although I have to admit I've eating the odd chocolate at Christmas that turned out to have been made in a shared facility.  But that  is very unusual for me, and I had my last blood test before Christmas anyway.  Therefore I have concluded that eating out must be the issue.  But I'll let you know in September when I have my next blood tests done.  😊  
    • melthebell
      Thanks very much for taking the time to write this. I have been pretty worried so appreciate reading any advice. Yes, the endoscopy will include a biopsy, and we have hopefully found a good pediatric gastro to guide us through it all.  Will also run the HLA typing - I have the swabs ready to go.
    • trents
      Welcome to the celiac.com community, @melthebell! I certainly would have a biopsy repeated as it has been 5 years since the first one. You mentioned he was scheduled for an endoscopy but make sure a biopsy is also done. It's possible he, like you are, is a "silent" celiac where the damage to the intestinal mucosa happens very slowly and can take years to manifest to the point of being detectable and where symptoms are minimal or absent. At 10 years old, his immune system may not be mature enough het to trigger the usual IGA responses that the IGA celiac tests are designed to detect.  I would also have genetic testing done to confirm that he has or doesn't have the potential to develop celiac disease. The genetic profile can also offer insight into the type of celiac disease a person will develop if they ever convert from latent to active. Take a look at table 2 under the section "Types of Celiac Disease" in the article found in this link: https://pmc.ncbi.nlm.nih.gov/articles/PMC9980758/  Genetic testing is available from 3rd party labs. I think you just have to send in a cheek swab sample.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.