Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hives


DogWalkerNYC

Recommended Posts

DogWalkerNYC Apprentice

Let me start by saying I've never had hives and, to the best of my knowledge, never had food allergies. I'll be 65 in October. Two years ago my dr diagnosed me with mild GERD and a daily Prilosec usually stopped the heartburn and night time vomiting, unless I ate too late or the wrong foods, etc. But basically the GERD was under control.

Then the bloating started after eating a buttered roll every night as I did computer work. I had never heard of gluten intolerance or Celiac Disease until the bloating scared me into doing some research. And then,the bloating, along with symptoms I've had since I was a child, began to make sense. I 'played' with a gluten-free diet, not wanting to see my dr yet, because I started to think the GERD diagnosis was wrong, and I decided to test myself and then discuss my reaction with my dr. Within a week 3 major symptoms, among them the bloating, STOPPED!!. Then I glutened myself again (not so much to test my theory but honestly because I fell off the wagon) and the symptoms started again.

For about a month I was a yo-yo dieter .. gluten free .. gluten .. gluten free, etc. In addition, I started ordering gluten free meals from restaurants, only to get mild reactions after eating them. Further talks with the restaurants uncovered the fact that there may be small amounts of gluten in sauces, etc. but they assured me they didn't add any gluten. Well, duh!! They just don't get it.

About a month ago the top of my right arm, from wrist to elbow (top only) became severely, ridiculously itchy and eventually broke out in hives. I don't believe it's DH because the little bumps swell to inch round, ridiculously itchy hive like things. No liquid comes out of the welts. Also, the skin on my arms changes and looks very leathery. Then this itchy condition spread to my left arm and two huge hives appeared on the back of my neck. The hives on the back of my neck eventually went away and I'm left with two extremely itchy arms (tops only) and the hives come and go.

I thought this might be related to my dog licking my arms, but I stopped him from doing that and the hives still come and go. So, although I don't know exactly what they are (DH, hives, or something else) I'm convinced they are yet another sign that 'gluten has entered the building'.

At this point I do not plan to go through the pain of eating gluten again just to be tested. I'm seeing my gastroenterologist next month for a yearly check up. I have pictures of the hive like things, lists of my symptoms and when they stopped and I'll discuss a plan of action going forward.

I am very grateful to be responding to a gluten-free diet, and I'm very grateful to have delicious gluten-free food, certified gluten-free bread, rolls, coconut milk desserts that are mouth watering and fill all my cravings (company is called 'So Delicious' and it's dairy free, cultured coconut milk. The raspberry is truly incredible).

No more eating out for awhile. If I have to for business I'll have fresh fruit or veggie salads. I have a big reunion coming up next week. As hard as it will be to avoid the foods everyone else will be eating, the thought of the pain, the intestinal damage and those huge, red, itchy disgusting hives will get me through it.

Sorry for the long post and thanks for the support.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,427
    • Most Online (within 30 mins)
      7,748

    Elizabetht
    Newest Member
    Elizabetht
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Wheatwacked
    • catnapt
      oh geez!! i made a whole long detailed post and it didn't save it   I give up grrrrrrrrrrr  
    • catnapt
      I'm not delaying my recovery- I was well on my way to recovering, IF I do have celiac disease by listening to my body and not eating the foods that made me feel ill. the drug I just stopped taking was making me incredibly ill and it's unfortunate and more than  a little frustrating that the dr  
    • Wheatwacked
      Click on the image to make it larger.  Maybe doesn't work on phone browser,  That was from 2021. Absolutely, they should be tested, The point is you have symptoms that the doctors don't understand and malabsorption may be the cause.   Not trying to.  But much of your rant includes refeferences that may indicate multiple nutritional deficiencies.     Some countries also have tax incentives and financial aid for Celiacs.   Celiac disease is recognized as a disability under the ADA because it substantially limits major life activities like eating and digestive function. Protections require reasonable accommodations in public accommodations, including schools (504 plans), colleges, and hospitals. These often include providing safe, gluten-free food, though they do not force restaurants to provide it.  As far as your recovery, eat gluten free.  Get healthier now and worry about diagnosis later.  Many here on the forum have gone ten or more years looking for a diagnosis, with many doctors and many misdiagnosis along the way. It really doesn't matter why, but you cannot eat  gluten.  That is what is important.  With gluten out of the way, maybe the doctors can make sense of your remaining symptoms.  If you need the ADA, then a medical diagnosis is the way to go.  Meantime you are delaying your recovery from whichever celiac disease or NCGS and the inevitable step one of Gluten Free Diet. tWe come to share experiences and maybe it will help someone. In reality, I don't care.  By the way I have stopped 6 medications Against Medical Advice because they did not do their job and the side effects were crippling. This is a lifelong fight for your life.  Pick you battles carefully.  Assume the worst, celiac disease, and deal with it.  Denial is not just a river in Egypt. Pleased to meet you, too.  
    • catnapt
      I can't read any of this... the print is too small and it looks like all you eat is milk, cereal cookies and some fruit..?   and some coffee?   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.