Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hives


DogWalkerNYC

Recommended Posts

DogWalkerNYC Apprentice

Let me start by saying I've never had hives and, to the best of my knowledge, never had food allergies. I'll be 65 in October. Two years ago my dr diagnosed me with mild GERD and a daily Prilosec usually stopped the heartburn and night time vomiting, unless I ate too late or the wrong foods, etc. But basically the GERD was under control.

Then the bloating started after eating a buttered roll every night as I did computer work. I had never heard of gluten intolerance or Celiac Disease until the bloating scared me into doing some research. And then,the bloating, along with symptoms I've had since I was a child, began to make sense. I 'played' with a gluten-free diet, not wanting to see my dr yet, because I started to think the GERD diagnosis was wrong, and I decided to test myself and then discuss my reaction with my dr. Within a week 3 major symptoms, among them the bloating, STOPPED!!. Then I glutened myself again (not so much to test my theory but honestly because I fell off the wagon) and the symptoms started again.

For about a month I was a yo-yo dieter .. gluten free .. gluten .. gluten free, etc. In addition, I started ordering gluten free meals from restaurants, only to get mild reactions after eating them. Further talks with the restaurants uncovered the fact that there may be small amounts of gluten in sauces, etc. but they assured me they didn't add any gluten. Well, duh!! They just don't get it.

About a month ago the top of my right arm, from wrist to elbow (top only) became severely, ridiculously itchy and eventually broke out in hives. I don't believe it's DH because the little bumps swell to inch round, ridiculously itchy hive like things. No liquid comes out of the welts. Also, the skin on my arms changes and looks very leathery. Then this itchy condition spread to my left arm and two huge hives appeared on the back of my neck. The hives on the back of my neck eventually went away and I'm left with two extremely itchy arms (tops only) and the hives come and go.

I thought this might be related to my dog licking my arms, but I stopped him from doing that and the hives still come and go. So, although I don't know exactly what they are (DH, hives, or something else) I'm convinced they are yet another sign that 'gluten has entered the building'.

At this point I do not plan to go through the pain of eating gluten again just to be tested. I'm seeing my gastroenterologist next month for a yearly check up. I have pictures of the hive like things, lists of my symptoms and when they stopped and I'll discuss a plan of action going forward.

I am very grateful to be responding to a gluten-free diet, and I'm very grateful to have delicious gluten-free food, certified gluten-free bread, rolls, coconut milk desserts that are mouth watering and fill all my cravings (company is called 'So Delicious' and it's dairy free, cultured coconut milk. The raspberry is truly incredible).

No more eating out for awhile. If I have to for business I'll have fresh fruit or veggie salads. I have a big reunion coming up next week. As hard as it will be to avoid the foods everyone else will be eating, the thought of the pain, the intestinal damage and those huge, red, itchy disgusting hives will get me through it.

Sorry for the long post and thanks for the support.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,339
    • Most Online (within 30 mins)
      7,748

    Skydawg
    Newest Member
    Skydawg
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      My reaction to a gluten bolus exposure is similar to yours, with 2-3 hours of severe abdominal cramps and intractable emesis followed by several hours of diarrhea. I don't necessarily equate that one large exposure to gluten with significant intestinal lining damage, however. I think it's just a violent reaction to a what the body perceives to be a somewhat toxic substance that I am no longer tolerant of because I have quit exposing myself to it regularly. It's just the body purging itself of it rather than an expression of significant damage. Before diagnosis, when I was consuming gluten daily, I had little to no GI distress. I was, for the most part, a "silent celiac". The damage to my small bowel lining didn't happen all at once but was slow and insidious, accumulating over a period of years. The last time I got a big shot of gluten was about three years ago when I got my wife's wheat biscuits mixed up with my gluten-free ones. There was this acute reaction after about two hours of ingestion as I described above. I felt washed out for a few days and fully recovered within a week or so.  Now, I'm a 74-year-old male. So, I'm not worried about being pregnant. And I don't want to contradict your physicians advice. But I just don't think you have done significant damage to your small bowel lining by one episode of significant gluten ingestion. I just don't think it works that way.
    • Skydawg
      Wondering about some thoughts on how long to wait to try to get pregnant after a gluten exposure?  I have been diagnosed for 10 years and have followed the diet strictly. I have been cross contaminated before, but have never had a full on gluten exposure. I went to a restaurant recently, and the waiter messed up and gave me regular bread and told me it was gluten free. 2 hours later I was throwing up for the whole evening. I have never had that kind of reaction before as I have never had such a big exposure. My husband and I were planning to start trying to get pregnant this month. My dr did blood work to check for electrolytes and white blood cells, but did not do a full nutritional panel. Most of my GI symptoms have resolved in the past 2 weeks, but I am definitely still dealing with brain fog, fatigue and headaches. My dr has recommended I wait 3 months before I start to try to get pregnant.   I have read else where about how long it can take for the intestine to fully heal, and the impacts gluten exposure can have on pregnancy. I guess I am really wondering if anyone has had a similar experience? How long does it take to heal after 1 exposure like that, after following the diet so well for 10 years? Is 3 months an okay amount of time to wait? Is there anything I can do in the meantime to reduce my symptoms? 
    • ShadowLoom
      I’ve used tinctures and made my own edibles with gluten-free ingredients to stay safe. Dispensary staff don’t always know about gluten, so I double-check labels or just make my own.
    • Scott Adams
      It's great to hear that there are some good doctors out there, and this is an example of why having a formal diagnosis can definitely be helpful.
    • RMJ
      Update: I have a wonderful new gastroenterologist. She wants to be sure there’s nothing more serious, like refractory celiac, going on. She ordered various tests including some micronutrient tests that no one has ever ordered before.  I’m deficient in folate and zinc and starting supplements for both. I’m so glad I decided to go to a new GI!
×
×
  • Create New...