Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Can My Child Carry Medication?


SilverSlipper

Recommended Posts

SilverSlipper Contributor

My soon-to-be 11 yr old daughter has Celiac. She's great with her diet, very strict on what she eats and watches other people like a hawk if they are preparing food she will eat.

Occasionally (a few times a year) she accidentally ingests gluten. The reactions are ugly - vomiting, diarrhea and cramping so bad she literally can't straighten up.

She visits other family members often and usually carries a little purse with a gluten-free snack in it. She also carries her own hand sanitizer (since other kids touch other bottles), band aids/neosporin. She wants to carry a few of her prescription pills (hyoscyamine) with her in case she gets sick. I think it's a great idea since it allows her to treat her own symptoms rather than frantic calls to me to quickly bring her stomach medicine. Realistically, she probably won't need it. However, relatives have asked if she could bring it "just in case".

My concern is whether she could get in trouble for taking prescription meds (not in a bottle) around with her. (Not at school, but to VBS, church, other's houses, etc). Can I get a doctor's note for her to use validating her need to carry medicine? Thanks :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

For some things like school, there are procedures for perscription meds. I know Boy Scout/ Cub Scout camps have rules. You have to give them to one leader with directions about them.

For friends & relatives houses, if she knows how to take them & you can really trust that, I would send them with her. What I might do is take most of the pills out of the perscription container. Just leave one or two doses in the bottle. This tells people what they are and that they are prescribed for her. She is getting to an age where a kid with unlabeled pills will look suspicious.

The pill bottle should be enough explanation of why she needs them and the dosage.

Darn210 Enthusiast

The pharmacy can also provide you with an empty but duplicate bottle w/label. I've had to do this for the school since they required the actual bottle and I needed it for something else at the same time.

Mom2J112903 Newbie

Hymox is an IBS/IBD medication, does she have either one of those or was it rx'd because of the severe cramping that she gets when gluten is injested? My son has this rx'd but he is an IBS, most likely IBD, kiddo but can not take it since he has severe dysmotility in his intestines. Hymox stops the intestinal spasms, and it WORKS but for us it literally stops the intestinal tract...not a good thing when you hardly have any movement to begin with.

I would never let my child carry any type of medication that is not in its orginal container-anywhere.

SilverSlipper Contributor

Hymox is an IBS/IBD medication, does she have either one of those or was it rx'd because of the severe cramping that she gets when gluten is injested? My son has this rx'd but he is an IBS, most likely IBD, kiddo but can not take it since he has severe dysmotility in his intestines. Hymox stops the intestinal spasms, and it WORKS but for us it literally stops the intestinal tract...not a good thing when you hardly have any movement to begin with.

I would never let my child carry any type of medication that is not in its orginal container-anywhere.

I was told IBS basically came with a Celiac diagnosis although the comment may have been directed towards my child only. She takes it due to severe cramping that is literally crippling during a celiac reaction.

SilverSlipper Contributor

(Sorry typing on my laptop which means I'm prone to mistakes)

Karen - her carrying medication (without a label) was what bothered me. I wouldn't want anyone to see it and think she is carrying something illegal. The medication is actually fairly harmless (IMO). My other daughter takes one daily in the morning to keep tummy aches from developing (suspected IBS). So, yes, I do trust her to take it with her and not take it unless necessary.

I will probably ask the pharmacy to give her a small dose/bottlt to carry as another poster suggested. I may go ahead and ask her GI to write a small note verifying she has Celiac Disease as well.

Thanks :)

Mom2J112903 Newbie

I think your daughter sounds like an extremly responsible young lady whom I would allow to carry her own medication, provided it was in its orginal container.

I know all about the intestinal cramping. My son, whom wasn't even 7 yet, was in the ER multiple times with them. Hymox is AWESOME stuff it just stinks that it literally stops my son's intestinal tract :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,933
    • Most Online (within 30 mins)
      7,748

    Kazwal
    Newest Member
    Kazwal
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      The discovery of the vitamin D receptor in multiple immune cell lineages, such as monocytes, dendritic cells, and activated T cells credits vitamin D with a novel role in modulating immunological functions and its subsequent role in the development or prevention of autoimmune diseases.  The Implication of Vitamin D and Autoimmunity: a Comprehensive Review
    • Wheatwacked
      Definitely get vitamin D 25(OH)D.  Celiac Disease causes vitamin D deficiency and one of the functions of vitamin D is modulating the genes.  While we can survive with low vitamin D as an adaptation to living in a seasonal environment, the homeostasis is 200 nmol/L.  Vitamin D Receptors are found in nearly every cell with a nucleus,while the highest concentrations are in tissues like the intestine, kidney, parathyroid, and bone.  A cellular communication system, if you will. The vitamin D receptor: contemporary genomic approaches reveal new basic and translational insights  Possible Root Causes of Histamine Intolerance. "Low levels of certain nutrients like copper, Vitamins A, B6, and C can lead to histamine build up along with excess or deficient levels of iron. Iodine also plays a crucial role in histamine regulation."  
    • AnnaNZ
      I forgot to mention my suspicion of the high amount of glyphosate allowed to be used on wheat in USA and NZ and Australia. My weight was 69kg mid-2023, I went down to 60kg in March 2024 and now hover around 63kg (just after winter here in NZ) - wheat-free and very low alcohol consumption.
    • AnnaNZ
      Hi Jess Thanks so much for your response and apologies for the long delay in answering. I think I must have been waiting for something to happen before I replied and unfortunately it fell off the radar... I have had an upper endoscopy and colonoscopy in the meantime (which revealed 'minor' issues only). Yes I do think histamine intolerance is one of the problems. I have been lowering my histamine intake and feeling a lot better. And I do think it is the liver which is giving the pain. I am currently taking zinc (I have had three low zinc tests now), magnesium, B complex, vitamin E and a calcium/Vitamin C mix. I consciously think about getting vitamin D outside. (Maybe I should have my vitamin D re-tested now...) I am still 100% gluten-free. My current thoughts on the cause of the problems is some, if not all, of the following: Genetically low zinc uptake, lack of vitamin D, wine drinking (alcohol/sulphites), covid, immune depletion, gastroparesis, dysbiosis, leaky gut, inability to process certain foods I am so much better than late 2023 so feel very positive 🙂    
    • lehum
      Hi and thank you very much for your detailed response! I am so glad that the protocol worked so well for you and helped you to get your health back on track. I've heard of it helping other people too. One question I have is how did you maintain your weight on this diet? I really rely on nuts and rice to keep me at a steady weight because I tend to lose weight quickly and am having a hard time envisioning how to make it work, especially when not being able to eat things like nuts and avocados. In case you have any input, woud be great to hear it! Friendly greetings.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.