Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Look Pregnant!

patti-ann

Recommended Posts

patti-ann Newbie
patti-ann
Posted
  • Author

Greetings Patt-iAnn,

When I went to the doctor with my genetic test in hand my doctor said that I looked 5 months pregnant. Indeed I did. I had also been asked several times when my baby was due, when I was not pregnant. Now, I have a reasonable answer to that; I am just bloated by celiac.

I am 6 months grain free and am starting to deflate.

I went through times of intense hunger like you described. I also have times where I am not hungry for several days and force myself to eat. I treat my celiac with supplements, excercise, and sunshine. My diet is of notable importance. You mentioned B12 and a sublingual B12 has been working for me. I am improving and am so glad that I found out what the problem was and it can be helped.

Diana

thanks diana

i find now i only look pregnant after accidental gluten...then its right back to the way i use to be. i have been gluten free since beginning of april... and dealing with intense hunger now. i will try b 12 shots and see if that helps. i go threw days of coping and then days of depression but thats only when im out and about and cant eat on the go like the rest of my family and then find myself having to have my husband drive round and round trying to find something i can eat after everyone else has. just frustrated. i am happy though that i did find out what is wrong....even though it sucks. my life has improved so much....im happier for the most part and im not sleeping my life away i have energy again. my husband cant believe the difference. just had a bad couple days.......:(:)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


squirmingitch Veteran
squirmingitch
Posted

Sorry I've taken so long to respond. I've been out of touch for a while --- buying a house & the deal went south when the survey revealed the septic drain field was on the neighbor's property.

It's wonderful you are feeling so much better Patti-ann!

To answer your question, it took many, many months before I wasn't continually starving. We are each individuals so there is no set time limit & I can't remember exactly but I will say mine lasted 5 or 6 months. Now, I'm more back to normal except I eat lunch @ 11 am --- can't seem to make it till noon. Always, always, always carry safe food with you - always. That's a hard & fast rule. It's very hard to eat out & IMHO rather risky. You can always have a baked potato, just don't let them cut it before serving it to you. I didn't find anything that helped with the hunger except eating.

Try to get over the embarrassment. If people can't handle it that's their problem not yours. And as time goes on you will adjust as will your family. Especially as you become more confident & as your family learns the ropes too. And they are seeing the difference in you! That's a great sign! :)

Onward & upward!

  • 3 weeks later...
patti-ann Newbie
patti-ann
Posted
  • Author

hey....there you are! lol

sorry to hear about the house :( ive had lots of let downs when it comes to buying houses...but i always think there will be another one and there always is!

and so the hunger pains do continue. one thing i have found to help a bit is i have switched to brown rice. seems to keep me fuller longer. question for ya..... had a bad friday night there was no food in the house and i broke down and ate half a jamaican patty. expecting to be extremely sick next couple days but wasnt that bad. bloated like 9 months pregnant, bowel irratbility and finally a bit of nausea. but nothing as bad as i use to get even with accidental glutening. do you know if the longer you are gluten free and the intestines heal does your body handle the gluten differently? not sure if im asking that question right? not that im gona start eating gluten occasionally at all but was really surprised i wasnt worse. usually i vomit my guts out next morning. just wonderd IF the body has healed quit a bit if it doesnt react so violently..as when it is extremely damaged and worn out? let me know your thoughts

welcome back!

squirmingitch Veteran
squirmingitch
Posted

patti-ann, I'm the wrong person to ask about that. I have the skin presentation of celiac disease (dh) & we tend to have less GI symptoms & when we do they are less severe. But I will say once again that we are all individuals & react differently. I want to say that I have read on here where some people do like you did & had a mild reaction rather than a reaction like the days of yore. And I want to say that in those same readings the people have gone on & had more gluten & gotten the strong reaction again. You might have just gotten lucky.

Hopefully someone will come on & answer your question who knows better than I do about it.

patti-ann Newbie
patti-ann
Posted
  • Author

patti-ann, I'm the wrong person to ask about that. I have the skin presentation of celiac disease (dh) & we tend to have less GI symptoms & when we do they are less severe. But I will say once again that we are all individuals & react differently. I want to say that I have read on here where some people do like you did & had a mild reaction rather than a reaction like the days of yore. And I want to say that in those same readings the people have gone on & had more gluten & gotten the strong reaction again. You might have just gotten lucky.

Hopefully someone will come on & answer your question who knows better than I do about it.

patti-ann, I'm the wrong person to ask about that. I have the skin presentation of celiac disease (dh) & we tend to have less GI symptoms & when we do they are less severe. But I will say once again that we are all individuals & react differently. I want to say that I have read on here where some people do like you did & had a mild reaction rather than a reaction like the days of yore. And I want to say that in those same readings the people have gone on & had more gluten & gotten the strong reaction again. You might have just gotten lucky.

Hopefully someone will come on & answer your question who knows better than I do about it.

squimming itch.... you are very informative and i will look into other posts regarding my reaction....and you will not believe this....

my brother in law had been suffering from a blistering itching rash since last fall..... been to doctors had all kinds of diagnosis and prescriptions of which nothing helped.....THEN i remembered your post regarding your condition and talked to my sister and sent her your email...... they went back to docter who reluctingly sent him to a dermatoligist and had a biopsy done on the blisters and sure enough tonight they found out he has celiac.......... they have been through hell!!!!!! and back! he also has other problems like emotional sleeping etc..... all kinds of stuff that celiac affects but you think you must have a neological problem.... and because of you he got diagnosed..... i never heard of the rash before you!!!!! it sucks but is so awesome they found out... he been going crazy with the itch... and the pain!!!!!! and of course i gave them the heads up about the hunger as you did me lol thank you so much!!!!!! they so relieved to see an end in sight.....

THANK YOU!!!!!!!!!

patti ann

squirmingitch Veteran
squirmingitch
Posted

Oh my! I don't know whether to be happy or sad. I'm thrilled that he got dx'd!!!!!!! And now he knows. Tell them to come on & join us --- there is a lot to learn about dh. There is a whole forum here for it. He may yet go through more hell as dh can present for up to (& maybe more) 2 years after being strict gluten-free. :( But at the end of the tunnel......

And maybe he will be a lucky one who gets over it pretty quickly. I sure hope so!

Here's the dh forum:

https://www.celiac.com/forums/forum/26-dermatitis-herpetiformis/

YVW but I really can't take credit. This board is responsible. If not for celiac.com there would be multitudes of people floundering around suffering with no answers including myself. So let's give a big hand to Scott Adams who created this site.

Thank you Scott!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,110
    • Most Online (within 30 mins)
      7,748
    Grandma Clifton
    Newest Member
    Grandma Clifton
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Wends
      Damage after 13 years gluten free

      By Wends · Posted

      Hi RMJ. I read your post. Sounds like you need a second opinion? Have you been advised by Dietitian or referred to one? There are protocols for treating patients that have ongoing celiac disease antibodies / histology. Particularly as you have nausea and pain. You probably already know about the gluten contamination elimination diet. It may be that you are super sensitive to even the allowed 20parts per million gluten in certified gluten free flours and products? An elimination of all grains for a time may be necessary? Especially oats if you currently include them? It’s worth noting that a minority of Celiacs have oat intolerance and T cell response similar to gluten (particularly carriers of high risk HLADQ2.5), and ongoing celiac damage to the gut can occur with oats. Even certified gluten free oats. If you are already super strict and careful about cross contamination, do you eat cheese or have any cow’s milk in your gluten free diet? It’s often overlooked, even by specialists and Celiac dietitians. But there are case study reports in children. There’s a study in adults showing mucosal reaction to casein in Celiacs, and quoted 50% of Celiacs react to casein similar to gliadin because of molecular mimicry. Then there was this letter to the editor following up a case that states, ”We conclude that given this novel information, pediatric, and possibly adult, celiac disease patients with suspected “refractory” celiac disease and no detectable gluten exposures, should be trialed on a combined CMP-GFD with close monitoring for disease activity resolution prior to consideration of more restrictive diets…” (Jericho H, Capone K, Verma R. Elimination of Cow’s Milk Protein and Gluten from the Diet Induces Gut Healing in “Refractory” Pediatric Celiac Patients. Ann Pediatr. 2021; 4(2): 1082.) CMP-GFD: cow’s milk protein-gluten free diet. Hope you figure it out.  
    • trents
      Symptoms - Ulcers & Cough

      By trents · Posted

      Welcome to the forum, @BlakeAlex! Is this the GI Reset product you are using?: https://inwellbio.com/wp-content/uploads/2023/08/GI-Reset_Info-Sheet.pdf There is a lot of weird stuff in that you could be reacting to. Personally, I would discontinue it as I doubt it's really doing you any good anyway. Getting to the point where you are truly eating gluten free consistently usually involves a significant learning curve as gluten is hidden in the food supply in many ways by manufacturers. For instance, would you ever expect to find it in soy sauce or Campbell's tomato soup? But it's there and a main ingredient. Getting rid of macro sources of gluten is relatively easy. Just cut out bread, cake and pasta. But avoiding the hidden sources and the cross contamination sources is much harder. I am including this article that might be of help to you as a new celiac in getting off to a good start:    Long-term undiagnosed celiac disease inevitable leads to nutritional deficiencies because of the damage done to the lining of the small bowel where almost all of the nutrition in our food normally is absorbed. We routinely recommend that newly diagnosed celiacs invest in some quality gluten-free vitamin and mineral supplements. And I'm talking about more than a multivitamin. We recommend a high potency B-complex, 5-10,000 IU of D3 daily, Magnesium glycinate, and zinc. I suspect your mouth and throat ulcers are nutritional deficiency related. Costco is a good place to get good quality gluten-free vitamin and mineral supplement products at a reasonable price. Are you on medications? May we ask your relative age?  
    • BlakeAlex
      Symptoms - Ulcers & Cough

      By BlakeAlex · Posted

      Hello, I was recently diagnose with Celiac Disease and without realizing, I had every symptom on the list. Now I am moving as fast as I can to a total recovery. I thought I was doing well but I notice my ulcers on my tongue and throat and cough are starting to come back again.  Has anyone experience these symptoms? Also, I am incorporating GI Reset powder for a jump start to recovery.  Thanks in advance, Blake     
    • trents
      Inflammation and Menier’s disease link?

      By trents · Posted

      No. There is no damage done to the gut lining with NCGS.
    • MagsM
      Inflammation and Menier’s disease link?

      By MagsM · Posted

      Hi Trents, Thanks for the feedback. Yes, I do have concerns about NCGS. Would this show up if I did the endoscopy testing?
×
×
  • Create New...