Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ate Gluten But I Feel Fine?


Wish4Bread

Recommended Posts

Wish4Bread Newbie

So I was recently "half diagnosed" with celiacs. I say that because I only had a simple blood test done that suggested, with an elevated IgG test, that I have celiacs (I have not had any other tests). I've been doing my best with staying gluten free for the past couple of weeks. I have also been eating MOSTLY dairy free (I've had some cheese and yogurt on occasions). Last night, after a strong sugar craving, I gave in to eating some raw Pillsbury cookie dough which I knew contained wheat. The dough comes pre-cut for baking. I nibbled on the dough and waited to be punished. After a few hours I felt fine. I gave in to eating two more round balls of the dough. Again, hours passed and felt fine. Today I decided to test again because I was all too excited that I wasn't affected by eating cookies. I baked and ate 6 cookies from the same sugar cookie pre-made package in one sitting (I've been feeling very deprived for the last month since staying off of gluten =/). The only other thing I've had today was Ensure, which I drank an hour or two before and almost immediately got "the burps", but no serious pain or intense bloating. What could this mean? Has the gluten not kicked in yet? Or is it because the dough, I believe, is made with bleached flour. I read somewhere that some are able to tolerate bleached flour? Correct me if I'm wrong. Or maybe on top of celiacs I also have a soy and/or dairy allergy? I'm tempted to have some bread or other items I've been craving since the start of my new diet.

Some additional information: I've been feeling better since my gluten-free diet but I have also been eating mostly like a caveman, meaning mostly meats, fresh fruits and vegetables. Most days I feel just okay but have still been burping and passing gas much more often than I used to before 2 months ago when this all started and haven't felt 100%. I felt pain from bloating and gas the other day when I KNOW I had not touched gluten for that day or the days before. I had a taco salad with romaine lettuce, tomatoes, organic pinto beans, olives, ground turkey, and a small spoonful of Daisy sour cream. I checked the labels on everything and it was all safe from gluten. I felt fine that day until eating the taco salad and soon after I was suffering from bloating pain and slight nausea.

Any ideas or thoughts? Thanks for reading/replying!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Takala Enthusiast

You should get the other half of the testing done (biopsy) before messing around with going on and off, on and off, gluten.

Not unusual for someone who has been off only a short time to think that they are not having a gluten reaction. Also, a lot of people are on other medications which may muffle their ability to "feel" or notice subtle reactions in different body systems. And most importantly, many people who are celiac or gluten intolerant can go for years eating gluten and not be able to correlate their other health problems and symptoms with their gluten consumption.

The "sugar cravings" are more likely the body's way of saying it is low on either vitamins and minerals or another category of food, such as proteins or fats.

Bleaching flour does not affect the gluten content, and bleached wheat flour is not acceptable on a gluten free diet.

Soy and dairy reactions are common in celiac and gluten intolerance. Some times, after a while, and healing, the ability to consume dairy returns as long as it is in the form of low lactose, such as aged cheeses, yogurts, and sometimes butter and cream. This is because the part of the intestine which gets damaged by celiac also is the part which can digest dairy. :( Unfermented soy such as soy flours and proteins are frequent culprits. (fermented soy is in soy sauce, there are brands of Tamari soy sauce which do not have wheat, only soy).

If using canned beans, be sure to drain and rinse them very well, because the starch is difficult to digest. If one brand bothers you, try another. If using dried beans to cook with, be sure to check them well for stray grains, and to rinse them well before cooking.

ravenwoodglass Mentor

Gluten reactions can be delayed by up to week. For myself I get digestive upset about 3 days later. If you have been feeling better gluten-free then that is a good indication that you need the diet. If you do decide you want to do more testing you need to go back on a regular gluten filled diet for at least a couple of months before you get more testing. Some doctors are moving away from demanding a biopsy for diagnosis since for many reasons the biopsy can be a false negative. This is especially the case if you have already gone gluten free. False positives on blood and biopsy are really pretty rare so if you have had positive blood work chances are good that you need the gluten free life.

luvs2eat Collaborator

About a year after I was diagnosed, I chowed down on a huge slice of the warm, fresh-baked crusty loaf of bread I'd made for company... and NOTHING happened. I actually started thinking that perhaps I could "cheat" once a month or so... and started planning monthly treats. The next glutening was an accident and I barely made it to the bathroom 4 hours later. Fast forward years of being absolutely gluten free... you should go to the thread I posted last week (in the Coping section) titled "Holy Glutening." Not only would I not voluntarily cheat... I am being as careful as I was near the beginning... reading every label again because I do not EVER EVER EVER want to be that sick again.

justlisa Apprentice

May I ask what you seasoned the ground turkey with?

Wish4Bread Newbie

May I ask what you seasoned the ground turkey with?

McCormick Taco seasoning. I read the ingredients and it seemed okay. This is what it says on their website "SPICES (INCLUDING CHILI PEPPER, CUMIN, PAPRIKA, OREGANO), ONION, WHEY (MILK), SALT, SUGAR, GARLIC, POTATO STARCH, AND CITRIC ACID."

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748

    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.