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15 Year Old Celiac Pen Pal

KatieL1321

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KatieL1321 Rookie
KatieL1321
Posted

My name is Katie and I am 15 years old. I live in Virginia Beach and I was diagnoised with Celiac Disease 8 months ago so I am still pretty new with all the gluten free stuff. I haven't met anyone with this disease and no one in my family has this disease so I am pretty much stuck here alone figuring this out myself. I would love to have someone to talk to about this disease and diet and share experiences with. I'd love to hear from anyone who couuld help :)

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1desperateladysaved Proficient
1desperateladysaved
Posted

I hope one of my daughters can one day. She is mostly gluten free, but has not been diagnosed herself. She is just going with the flow of my diet.

I hope you find some others to share your struggles with. I have had some Celiacs appear out of the blue in my life. You will find some too, I believe.

DT

kaitlynrose Rookie
kaitlynrose
Posted

Hi, my name is Kaitlyn and I'm 17 years old. I live in Ohio and have been gluten free for 2 years. I only know one other person with celiac and she is my cousin. I would love to know someone who knows what I live through with celiac. Plus, I've always wanted a pen pal :)

b-snyder414 Newbie
b-snyder414
Posted

My name is Katie and I am 15 years old. I live in Virginia Beach and I was diagnoised with Celiac Disease 8 months ago so I am still pretty new with all the gluten free stuff. I haven't met anyone with this disease and no one in my family has this disease so I am pretty much stuck here alone figuring this out myself. I would love to have someone to talk to about this disease and diet and share experiences with. I'd love to hear from anyone who couuld help :)

Hello Katie, I have a daughter named Jessica who is also 15 and just found out in March '12 that she has Celiac...I have to warn you she feels she needs no support groups and such, but I think it would be good for her to have someone she can confide in!!!! She too is the only one in our family who has it. Please reach out to her.

Emma Haan Newbie
Emma Haan
Posted

Hi katie,

My name is Emma. I am 15 years old and have had Celiac disease for 2 years. I also have a lot of other health issues so I know what your going through. At the beginning I felt very alone and misunderstood, And I promise that over time, things get easier. I would be happy to be your pen pal and share some of my "celiac" experiences with you (I have had a lot of them) :).

anwen98 Newbie
anwen98
Posted

My name is Katie and I am 15 years old. I live in Virginia Beach and I was diagnoised with Celiac Disease 8 months ago so I am still pretty new with all the gluten free stuff. I haven't met anyone with this disease and no one in my family has this disease so I am pretty much stuck here alone figuring this out myself. I would love to have someone to talk to about this disease and diet and share experiences with. I'd love to hear from anyone who couuld help :)

hi kate, i have been diagnosed with celiac for 3 years and no one on my family has it either so i was also also stuck alone trying to figure it all out. luckly by now i have it all figured out and it is much easier! i would love to be your celiac penpal and shear my experiences with you! it would also be nice to talk to someone with celiac as i do not know anyone with the disease! :)x

kareng Grand Master
kareng
Posted

You have probably figured it out by now but....

Pm (private message) each other. You do that by clicking the envelope under the person's picture/avatar. Then you can decide if you want to exchange email addresses privately or just pm on here for a while. Putting an email address on a post here is very public.

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shauniscrazy Explorer
shauniscrazy
Posted

Im Shaun Im not sure if i am a celiac but i am allergic to gluten i am new and i would like to talk to people too im 16 if that matters lol

  • 2 weeks later...
KatieL1321 Rookie
KatieL1321
Posted
  • Author

Hello Katie, I have a daughter named Jessica who is also 15 and just found out in March '12 that she has Celiac...I have to warn you she feels she needs no support groups and such, but I think it would be good for her to have someone she can confide in!!!! She too is the only one in our family who has it. Please reach out to her.

Hey! I would love to talk to Jessica and trust me I felt the same way at first but really talking about it helps alot you can get alot of tips from other celiacs. If she would like to talk I would love to talk.

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    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
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      IBS-D vs Celiac

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