Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Grand Rapids, Mi Area Doc?

Crzycatlady

By Crzycatlady
in Doctors

Recommended Posts

Crzycatlady Newbie
Crzycatlady
Posted

Hi, I was diagnosed with celiac by a GI doc 8 months ago after having biopsies done during an endoscopy. I have been gluten free since but am not noticing improvement in the amount of stomach and muscle/bone pains I have. I am also getting flare ups, every 3-4 weeks, that keep me in bed for a few days at a time with worse symptoms. So I'm really motivated to want to feel better! Does anyone have a doc in this area that has helped them recover?? Thanks much for your help.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mamaw Community Regular
mamaw
Posted

I don't have a name of a doctor but I do know that there is a great group from the Anchor Baptist Church, the total church is gluten-free & they put on a great gluten-free vendor fair yearly.. Sorry, its over this year... But call the church & ask to have Nancy call you , she can maybe give you a heads up...I think her last name is Speers...I don't have the church address but it is in Grand Rapids area....the vendor fair was held at the Deltaplex...

I sure they can supply a doctors name ....

Crzycatlady Newbie
Crzycatlady
Posted
  • Author

I don't have a name of a doctor but I do know that there is a great group from the Anchor Baptist Church, the total church is gluten-free & they put on a great gluten-free vendor fair yearly.. Sorry, its over this year... But call the church & ask to have Nancy call you , she can maybe give you a heads up...I think her last name is Speers...I don't have the church address but it is in Grand Rapids area....the vendor fair was held at the Deltaplex...

I sure they can supply a doctors name ....

Thank you again!!! This is really helpful. My GI doc hasn't been helpful and said that I may have IBS on top of celiac. I've heard the IBS diagnosis for the last 10 years and my symptoms have continued to get worse. I don't feel that he is taking me seriously. So it's time to move on.

Best of luck to you :)!

mamaw Community Regular
mamaw
Posted

You are so welcome! I too, had many dx's before going gluten-free, IBS being one of them,gallbladder removed,& so on.. It's enough to drive a person crazy hearing doctors say over & over its all in your head but I living proof say keep on fighting.....Years ago I was given the death sentence of ALS, I thank God everyday for this not being the case... Been gluten-free ever since & most issues are long gone but still have weak days now & then.. BUt I'm talking, walking & remaining very healthy.......

You too will get through all the issues & the clueless doctors...

Maybe we can meet next year in Grand Rapids! I /we had a great time at the vendor fair & the group is so nice... I love Nancy....

Crzycatlady Newbie
Crzycatlady
Posted
  • Author

You are so welcome! I too, had many dx's before going gluten-free, IBS being one of them,gallbladder removed,& so on.. It's enough to drive a person crazy hearing doctors say over & over its all in your head but I living proof say keep on fighting.....Years ago I was given the death sentence of ALS, I thank God everyday for this not being the case... Been gluten-free ever since & most issues are long gone but still have weak days now & then.. BUt I'm talking, walking & remaining very healthy.......

You too will get through all the issues & the clueless doctors...

Maybe we can meet next year in Grand Rapids! I /we had a great time at the vendor fair & the group is so nice... I love Nancy....

Wow, how scary to be told you may have ALS!! Thank goodness that is not the case--Celiac is treatable and I'm very grateful for that also. A good friend of mine made it to the gluten-free fair this past May (I was too sick to go at the time) and really enjoyed it, so I want to go next year and would like to meet up with you if you are there also. I do feel very fortunate that there is so much available that is gluten free. I'm going to contact Nancy and appreciate the advice...

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      129,798
    • Most Online (within 30 mins)
      7,748
    maylynn
    Newest Member
    maylynn
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Bronwyn W
      Symptom treatment of gluten exposure with Anti-inflammatories

      By Bronwyn W · Posted

      Thank you so much, Scott. I find it incredibly daunting navigating this celiac space and I find comfort in your wealth of knowledge. Thank you 🙏🏻
    • Scott Adams
      Make up. Is Mary Kay gluten-free?

      By Scott Adams · Posted

      I am not sure about that brand specifically, but this article may be helpful:  
    • Scott Adams
      New onset constant gas

      By Scott Adams · Posted

      First, I’m so sorry you’re dealing with this—constant bloating and gas can be incredibly frustrating, especially when you’ve been so diligent with your gluten-free diet. Since nothing obvious has changed in your routine, a few possibilities come to mind: 1) Cross-contamination or hidden gluten (have you introduced new brands, eaten out more, or tried processed GF foods with questionable ingredients?), 2) New food intolerances (dairy, FODMAPs, or even GF grains like corn/rice can sometimes cause issues over time), 3) Gut dysbiosis (an imbalance in gut bacteria, possibly triggered by stress, antibiotics, or diet shifts), or 4) Non-celiac triggers (like SIBO or fructose malabsorption). You may also want to take choline supplements, as this helps some people. It might help to keep a detailed food/symptom log and try an elimination diet (e.g., cutting dairy or high-FODMAP foods temporarily). Probiotics or digestive enzymes could also offer relief while you investigate.
    • Scott Adams
      Gluten free and oat free bars not sugary?

      By Scott Adams · Posted

      Finding gluten-free and oat-free bars that aren’t overly sugary can be tricky, but there are some great options out there! For your little adventurers, consider GoMacro Kids bars (many are GF/oat-free and lower in sugar), 88 Acres Seed Bars (sweetened lightly with fruit), or The Good Crisp Company’s protein bars (grain-free and not too sweet). For homemade ideas, try simple nut/seed bars with dates, almond butter, and chia—no baking needed! Packaged snacks like Chomps meat sticks, Simple Mills almond flour crackers, or seaweed snacks also work well for hikes. If they like savory, roasted chickpeas or lupini beans are protein-packed and easy to carry. Hope this helps—happy trails!
    • Scott Adams
      Symptom treatment of gluten exposure with Anti-inflammatories

      By Scott Adams · Posted

      Using anti-inflammatories for symptom management after inadvertent gluten exposure can be a helpful short-term strategy, particularly for reducing discomfort like inflammation, pain, or swelling. However, it shouldn’t replace strict adherence to a gluten-free diet as the primary treatment for conditions like celiac disease or gluten sensitivity. While NSAIDs (e.g., ibuprofen) or natural anti-inflammatories (e.g., turmeric) may provide relief, they don’t address the underlying immune response or intestinal damage caused by gluten. Additionally, long-term or frequent use of NSAIDs carries risks, such as gastrointestinal irritation. It’s best to consult a healthcare provider to tailor an individualized plan, which may include digestive enzymes, hydration, rest, and probiotics alongside anti-inflammatories when needed. This article, and the comments below it, may be helpful:    
×
×
  • Create New...