Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone Out There?


Claire

Recommended Posts

Claire Collaborator

I am looking for a support group somewhere in the area between Frederick, Md. and Harrisburg, PA. Those places would be the ultimate distance.

I live in southern PA - about a half hour from the Maryland border.

Thanks for info. :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KaitiUSA Enthusiast

Hey

I'm near Frederick and myself as well as a friend of mine have been thinking of putting together a celiac group around the area so maybe we could all get together.

Claire Collaborator
Hey

I'm near Frederick and myself as well as a friend of mine have been thinking of putting together a celiac group around the area so maybe we could all get together.

<{POST_SNAPBACK}>

Thanks for reply. As i said, the cities named are the farthest out I could possibly go. Let me know what you are up to. :)

Mahee34 Enthusiast
Thanks for reply. As i said, the cities named are the farthest out I could possibly go. Let me know what you are up to.  :)

<{POST_SNAPBACK}>

I live in the battlegrounds.....but currently am away at graduate school, should be back in that area on and off throughout the next year though

Claire Collaborator
I live in the battlegrounds.....but currently am away at graduate school, should be back in that area on and off throughout the next year though

<{POST_SNAPBACK}>

Hello there. Thanks for reply. Is there a Group in your area?

  • 2 weeks later...
Mahee34 Enthusiast
Hello there.  Thanks for reply.  Is there a Group in your area?

<{POST_SNAPBACK}>

not that i'm away of, yet anyway

Mom22 Apprentice

There is a support group in Gettysburg, PA that meets twice a year and has a meeting coming up on November 7th, I believe. We have about 40 people and the chairwoman contacts numerous gluten-free companies and gets an awesome abundance of gluten-free samples. I usually come home with several shopping bags of free food. Meetings are on Monday nights. There is also a group that meets in York twice a year, but theirs is on a Friday night. Since they are much larger (100+), they are able to get some great speakers to come in, i.e. Dr. Fasano. Camp Hill, PA also has a group. If you want more information, just e-mail me: prock@pa.net

Mom 2 to 2


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mahee34 Enthusiast
There is a support group in Gettysburg, PA that meets twice a year and has a meeting coming up on November 7th, I believe.  We have about 40 people and the chairwoman contacts numerous gluten-free companies and gets an awesome abundance of gluten-free samples.  I usually come home with several shopping bags of free food.  Meetings are on Monday nights.  There is also a group that meets in York twice a year, but theirs is on a Friday night.  Since they are much larger (100+), they are able to get some great speakers to come in, i.e.  Dr. Fasano. Camp Hill, PA also has a group.  If you want more information, just e-mail me:  prock@pa.net

Mom 2 to 2

<{POST_SNAPBACK}>

wow, i live in gettysburg and i've never heard of these groups! thanks for the info!!

Claire Collaborator
wow, i live in gettysburg and i've never heard of these groups! thanks for the info!!

<{POST_SNAPBACK}>

Thanks so much for this reply. I started this topic and am most grateful to hear from you. I live in Chambersburg, PA - about an hour away from Gettysburg. I will contact you. Claire

Lauren M Explorer

Another vote for the G-burg Support Group!

Hey Mom22, it's me Lauren, I finally found this site :)

Don't think I'll be able to make it to the next meeting because I have class in Philly that night... but I'm sure my Mom will be there in my place. The G-burg group really is great - they were my saviors when I was first diagnosed! I definitely recommend going to the upcoming meeting. Let me know if you have any questions.

- Lauren

Mom22 Apprentice

LAUREN!!!

Glad to see you found this site. Miss you and will catch you at the meeting in the spring, but will also send you an e-mail. I hope you are doing well and look forward to chatting with your mom. Take care!!

P.S. You won't believe how big the kids have gotten.

Mom 2 to 2

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,097
    • Most Online (within 30 mins)
      7,748

    Ann Den
    Newest Member
    Ann Den
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      Your DGP-G is also high. The thing to do now would be to trial the gluten-free diet for a few months to see if there is improvement in symptoms.
    • trents
      Welcome to the forum, @Roses8721! How long were you off gluten before getting the celiac blood testing done? The testing is not valid after having been gluten free for a significant period of time. Many of your symptoms align with celiac disease.
    • rei.b
      Hello, I am feeling frustrated. I have hEDS and lifelong digestive issues but my GI PA is very focused on my celiac panel and I just want to make sure that she should be focused on that because completely changing my diet seems to have worsened my symptoms.  Symptoms are constipation, diarrhea, and acid reflux with spicy foods and certain foods like tomatoes, bell peppers, and onions. I also don't have a gallbaldder as it was removed almost a year ago. This also exacerbated my symptoms. I did have joint pain from hEDS but that was already treated with low dose naltrexone about 4 months prior to going completely gluten free. Endoscopy was abnormal but inconclusive; basically showed some inflammation - which common with hEDS. I don't have any vitamin deficiency.   Celiac Panel Results: TTG-A <0.5 U/ML Reference Range: 0.5-14.9 U/ML NEGATIVE: <15 POSITIVE: =>15 DGP-A 72.0 U/ML Reference Range: 0.2-14.9 U/ML NEGATIVE: <15 POSITIVE: =>15 TTG-G <0.8 U/ML Reference Range: 0.8-14.9 U/ML NEGATIVE: <15 POSITIVE: =>15 DGP-G 24.0 U/ML Reference Range: 0.4-14.9 U/ML NEGATIVE: <15 POSITIVE: =>15 IgG-A-M Results: IMMUNOGLOBULIN A, QN, SERUM 165 MG/DL Reference Range: 87-352 MG/DL IMMUNOGLOBULIN M, QN, SERUM 164 MG/DL Reference Range: 26-217 MG/DL   What are your thoughts, internet? Are there any questions I should be asking the PA? Thanks!
    • Roses8721
      Help. I’m spiraling. Years of extensive symptoms:  What could this be? Years of: Mildly elevated alk and alt Fatty liver Random days of feeling like I’m coming down w flu but no fever and nobody else in house sick Intermittent diarrhea Severe abdominal distension Long history of cavities and enamel deficiency Sound sensitivity Anxiety and depression Low libido Sun skin allergy Frequent fatigue ended up seeing PCP because I looked 8 mo preg. Started gluten-free diet then celiac serology negative. SW GI Dr dx me w celiac as I had been in bed for 3 days after eating gluten after cutting. GI said not to do biopsy because it was clear what was going on and added to chart. My spiral is not seeing anywhere this is done and want to see if anyone else has dealt w this. If not celiac idk what else I will do. Family history or celiac as well as a death related to this. 
    • miguel54b
      I get canker sores one hour after eating Oats, and pimples in my butt. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.