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Day 3 Going gluten-free. Not Going So Well.

Chrissy W.

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Fimac Newbie
Fimac
Posted

This is my son's third day being gluten-free. He is 10 and is a HORRIBLE eater. So far, he refuses everything I offer him. He has only eaten a few gluten-free cookies, a gluten-free ice cream sandwich, and applesauce. He hates the gluten-free bread, the gluten-free pancakes that I made, the gluten-free pizza that I made (which was actually really good). If I throw away the few snacky-junky gluten-free items I bought, he'd probably eat nothing. Should I get rid of those items or do you think he will eventually eat something (other than trying one bite and saying he hates it)?

I have one son that tested positive for IgG when he was tested at the time of his brothers diagnosis. We did not make him go gluten free at that point. I kept him gluten lite which gradually lapsed. In that time period his asthma and his allergies got worse and he has now 6 years later developed Celiac. I would adopt a slow transition and see what happens.

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AGH2010 Apprentice
AGH2010
Posted

I have one son that tested positive for IgG when he was tested at the time of his brothers diagnosis. We did not make him go gluten free at that point. I kept him gluten lite which gradually lapsed. In that time period his asthma and his allergies got worse and he has now 6 years later developed Celiac. I would adopt a slow transition and see what happens.

I'm really curious about kids who tested positive but with normal biopsies who do not go gluten-free because my 2.5 yo just tested positive on igg and ema but normal biopsy. When you say gluten lite, how lite do you mean?

I'm sorry to hear that your son eventually got celiac. I can't help but think it would be inevitable for my daughter, which is why we've gone gluten-free. But my dr said she'd be fine having an occasional slice of birthday cake, so that's why I'm asking how little gluten he consumed before getting celiac. Im not sure I believe her!

Fimac Newbie
Fimac
Posted

I'm really curious about kids who tested positive but with normal biopsies who do not go gluten-free because my 2.5 yo just tested positive on igg and ema but normal biopsy. When you say gluten lite, how lite do you mean?

I'm sorry to hear that your son eventually got celiac. I can't help but think it would be inevitable for my daughter, which is why we've gone gluten-free. But my dr said she'd be fine having an occasional slice of birthday cake, so that's why I'm asking how little gluten he consumed before getting celiac. Im not sure I believe her!

the gluten lite started with the occasional doughnut, but as he had not symptoms and going total gluten free made no difference to how he felt. He had a biopsy done 2 years later and it was negative. After that he gradually ate more and more gluten. It was probably 6 years between initial blood test and developing symptoms. The GI docs and everyone else was convinced that he did not have to be gluten free. He found being gluten free as a teen in high school much more difficult than in elementary or middle school.

AGH2010 Apprentice
AGH2010
Posted

the gluten lite started with the occasional doughnut, but as he had not symptoms and going total gluten free made no difference to how he felt. He had a biopsy done 2 years later and it was negative. After that he gradually ate more and more gluten. It was probably 6 years between initial blood test and developing symptoms. The GI docs and everyone else was convinced that he did not have to be gluten free. He found being gluten free as a teen in high school much more difficult than in elementary or middle school.

Thank you for sharing your story. I wonder why so many doctors accept a normal biopsy as meaning you're free to eat as much gluten as you like when the bloodwork shows a different story.

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