Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Day 8...still Glutened


kittty

Recommended Posts

kittty Contributor

This is really frustrating. I was glutened last Tuesday and I'm still having symptoms today. They are also getting worse instead of better! I was up all night with stomach cramps, D and nausea, and still have lingering anxiety.

When I first went gluten-free I was also lactose intolerant, but overcame that after a month or so. Is it possible that being glutened has left me temporarily lactose intolerant again? That could explain the stomach issues, because I ate some cheese last night.

As for the anxiety, I called my doctor this morning and asked for a prescription of Xanax. It took the edge off a little bit when dealing with anxiety before (or at least it helped me sleep). I usually get the generic alprazolam. Does anyone know if this medication is really gluten free? I did a search on past posts on this board and there were people who strongly claimed it wasn't gluten free, and others who strongly claimed it was gluten free. I'm really confused!

I have a hard time overcoming the anxiety, because it sort of self-perpetuates and I can't shake those anxious feelings very well on my own. But, I don't want to take something for it only to continue being glutened and ending up in a loop.

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lovegrov Collaborator

Xanax is listed at glutenfreedrugs.com as gluten-free in all forms but an't say about the generic. And here are the gluten-free ones listed for the generic -- Alprazolam (Geneva, Greenstone, Mylan, Novapharm, Sandoz) Alprazolam XR (Geneva, Greenstone, Mylan, Novapharm, Sandoz). Of course formulations can change, but the VAST majority of medications are gluten-free. It's really quite rare to find a prescription med that isn't.

If you're taking the generic, the only way to know for certain is to find out who makes it and call them. Even then you might get the CYA routine.

richard

kittty Contributor

Thanks for the response! It makes me feel better than this medication is gluten free.

However, I called the doctors office and they won't give me a refill. I need to make an appointment first, and the earliest they can get me in is next Thursday afternoon. :(

Oh well. I'll have to stick it out until then. Hopefully the glutening will be over by then anyway. I am feeling less consistently anxious at the moment, but it comes and goes.

  • 2 weeks later...
quincy Contributor

Thanks for the response! It makes me feel better than this medication is gluten free.

However, I called the doctors office and they won't give me a refill. I need to make an appointment first, and the earliest they can get me in is next Thursday afternoon. :(

Oh well. I'll have to stick it out until then. Hopefully the glutening will be over by then anyway. I am feeling less consistently anxious at the moment, but it comes and goes.

Klonapin is also a benzo drug like Xanax but it is more effective for longer term use. Xanax can cause very bad rebound anxiety so you wind up having to take it every 6 hours indefinitely or you will get awful rebound anxiety worse than the initial anxiety.

Xanax works for the night terrors and panic attacks, but you really don't want to use it more than an attack here and there. Klonapin allows you to take a dose and it will keep the anxiety awayall day pretty much. I am very sensitive to meds to .5 mgs really works for me. I take it at night before bed if I have to, but thankfully my most recent bout with anxeity depression passed with minimal klonapin use.

kittty Contributor

Klonapin is also a benzo drug like Xanax but it is more effective for longer term use. Xanax can cause very bad rebound anxiety so you wind up having to take it every 6 hours indefinitely or you will get awful rebound anxiety worse than the initial anxiety.

Xanax works for the night terrors and panic attacks, but you really don't want to use it more than an attack here and there. Klonapin allows you to take a dose and it will keep the anxiety awayall day pretty much. I am very sensitive to meds to .5 mgs really works for me. I take it at night before bed if I have to, but thankfully my most recent bout with anxeity depression passed with minimal klonapin use.

I haven't noticed any rebound anxiety with Xanax, probably because the dose is only 0.25, and I cut those in half. I'm also not on it long term - just when the anxiety is really bad.

Mateto Enthusiast

How about soy, or any nuts? Maybe it's not just lactose but casein as well?

I know exactly how you feel.

I'd suggest an elimination diet and see what happens. Of course I'm only new to this myself, so don't take my word as prescription!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,017
    • Most Online (within 30 mins)
      7,748

    Sjcucinotta
    Newest Member
    Sjcucinotta
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
    • knitty kitty
      Please do more research before you settle on nicotine. Dr. Paul New house is a psychiatrist.  His latest study involves the effect of nicotine patches on Late Life Depression which has reached no long term conclusions about the benefits.   Effects of open-label transdermal nicotine antidepressant augmentation on affective symptoms and executive function in late-life depression https://pubmed.ncbi.nlm.nih.gov/39009312/   I'm approaching the subject from the Microbiologist's point of view which shows nicotine blocks Thiamine B1 uptake and usage:   Chronic Nicotine Exposure In Vivo and In Vitro Inhibits Vitamin B1 (Thiamin) Uptake by Pancreatic Acinar Cells https://pubmed.ncbi.nlm.nih.gov/26633299/   While supplementation with thiamine in the form Benfotiamine can protect from damage done by  nicotine: Benfotiamine attenuates nicotine and uric acid-induced vascular endothelial dysfunction in the rat https://pubmed.ncbi.nlm.nih.gov/18951979/   I suggest you study the beneficial effects of Thiamine (Benfotiamine and TTFD) on the body and mental health done by Dr. Derrick Lonsdale and Dr. Chandler Marrs.  Dr. Lonsdale had studied thiamine over fifty years.   Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ I suggest you read their book Thiamine Deficiency Disease, Dysautonomia, and High Calorie Malnutrition.     Celiac Disease is a disease of malabsorption causing malnutrition.  Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/
    • sleuth
      Thanks for your response.  Everything you mentioned he is and has been doing.  Tobacco is not the same as nicotine.  Nicotine, in the form of a patch, does not cause gastrointestinal irritation.  Smoking does. He is not smoking.  Please do your research before stating false information. Dr. Paul Newhouse has been doing research on nicotine the last 40 years at Vanderbilt University Medical Center.  
    • Jmartes71
      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
    • trents
      @Martha Mitchell, your reaction to the lens implant with gluten sounds like it could be an allergic reaction rather than a celiac reaction. It is possible for a celiac to be also allergic to gluten as it is a protein component in wheat, barley and rye.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.