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Should I Get Some Other Tests


scottyg354

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scottyg354 Enthusiast

Ok thyroid labs are completely normal. I don't have my most recent available but I know they were right were they had to be. Testosterone was way low. Going to discuss with doc next week. I'm still having odd issues though.

Bowel Troubles are stills pretty constant

I get burning and nausea in the gut

dizziness (almost to the point that it makes me feel like falling over)

sweating

fatigue (which I put up to the Low T)

I'm not losing weight but I'm also not gaining (thank god)

I also have low vitamin d. I've been taking 5000 IU every night.

Any suggestions as to what else could be going on here.

I had a colonoscopy, no crohns or uc. Had the celiac blood test done, came back negative with I think the Gluten Giladian IgG or IgA (i forget which ones) be Tentative at 11 which was the slightest elevated.

Liver Panel was fine, nothing showed up on my Abdominal and Pelvic Ultrasound.

Any suggestions as to any other testing or could it be stress. I'm not really worried these days as much as annoyed as I want to feel better.


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GFinDC Veteran

Hi Scotty,

The sweating could be an indicator of infection or inflammation. I used to sweat a lot especially when sleeping at night. Ongoing irritation in the gut can cause that IMHO. That kind of irritation can be caused by food intolerances (as it was for me), or parasites, or Crohns or UC which are already ruled out. The answer for me was changing my diet. Diet made a huge difference for me but it took me years to figure out the problem foods and eliminate them. New ones seemed to crop up over time. So that's where I would tend to look first, is diet. Doctors aren't much help with that.

1desperateladysaved Proficient

You might want to study out any other nutrients you need. If you are not absorbing D well, what about B? Many of us are low in magnesium, iron, and B vitamins. I am planning to do a blood test for nutrients. Spectra -Cell is one test that measures for nutrients.

DT

frieze Community Regular

Ok thyroid labs are completely normal. I don't have my most recent available but I know they were right were they had to be. Testosterone was way low. Going to discuss with doc next week. I'm still having odd issues though.

Bowel Troubles are stills pretty constant

I get burning and nausea in the gut

dizziness (almost to the point that it makes me feel like falling over)

sweating

fatigue (which I put up to the Low T)

I'm not losing weight but I'm also not gaining (thank god)

I also have low vitamin d. I've been taking 5000 IU every night.

Any suggestions as to what else could be going on here.

I had a colonoscopy, no crohns or uc. Had the celiac blood test done, came back negative with I think the Gluten Giladian IgG or IgA (i forget which ones) be Tentative at 11 which was the slightest elevated.

Liver Panel was fine, nothing showed up on my Abdominal and Pelvic Ultrasound.

Any suggestions as to any other testing or could it be stress. I'm not really worried these days as much as annoyed as I want to feel better.

The low T may be related to the low D.....obviously the dose you are taking is not working. Need more, or more sun.

Bubba's Mom Enthusiast

Ok thyroid labs are completely normal. I don't have my most recent available but I know they were right were they had to be. Testosterone was way low. Going to discuss with doc next week. I'm still having odd issues though.

Bowel Troubles are stills pretty constant

I get burning and nausea in the gut

dizziness (almost to the point that it makes me feel like falling over)

sweating

fatigue (which I put up to the Low T)

I'm not losing weight but I'm also not gaining (thank god)

I also have low vitamin d. I've been taking 5000 IU every night.

Any suggestions as to what else could be going on here.

I had a colonoscopy, no crohns or uc. Had the celiac blood test done, came back negative with I think the Gluten Giladian IgG or IgA (i forget which ones) be Tentative at 11 which was the slightest elevated.

Liver Panel was fine, nothing showed up on my Abdominal and Pelvic Ultrasound.

Any suggestions as to any other testing or could it be stress. I'm not really worried these days as much as annoyed as I want to feel better.

Ask to be tested for small intestine bacterial overgrowth(SIBO). If you have bad bacteria in your upper intestine it can rob the nutrients from your body, causing malabsorption of some of them. They can also emit toxins into your system as they feed, causing reactions like dizziness and night sweats. Did you get an endoscope done to see how your villi look?

You may be Celiac, or at least gluten intolerant? If Celiac blood tests show up negative, try strict gluten-free anyway for at least 3 months. You could have an intolerance which hasn't progressed enough to show in the bloodwork and there's also a 20-30% false negative with blood tests.

For the nausea..have you had a HIDA scan? It tests how your gallbladder is functioning. This is different from an ultrasound which checks for gallstones. If your gallbladder isn't functioning at a normal rate, your pancreas may not be releasing the digestive enzymes you need either? They both get their signal from CCK, a hormone made in the duodenum. If you have damage to this area from SIBO, Celiac, or dairy/soy or other intolerance either the hormone may not be made..or may not be sent to signal those two organs to "do their thing".

If you have taken acid blockers, SIBO is more likely. Adding probiotics and digestive enzymes could help you out a lot.

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    • trents
      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
    • trents
      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
    • Ello
      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes inflammation and produces antibodies that can be detected in the blood by specific tests like the TTG-IGA test you had. Over time, if gluten is not withheld, this inflammation can cause severe damage to the lining of the small bowel and even result in nutrient deficiency related health issues since the small bowel lining is organ where all the nutrition found in our food is absorbed.  The other is NCGS (Non Celiac Gluten Sensitivity or just "gluten sensitivity") which we know less about and are unsure of the exact mechanism of action. It is not an autoimmune disorder and unlike celiac disease it does not damage the lining of the small bowel, though, like celiac disease, it can cause GI distress and it can also do other kinds of damage to the body. It is thought to be more common than celiac disease. Currently, we cannot test for NCGS. Celiac disease must first be ruled out to arrive at a diagnosis of NCGS. Both disorders require elimination of gluten from the diet.  Either of these disorders can find their onset at any stage of life. We know that celiac disease has a genetic component but the genes are inactive until awakened by some stress event. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% develop active celiac disease. The incidence of NCGS is thought to be considerably higher. I hope this helps.
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