Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Your Symptoms...


SwtRandi

Recommended Posts

SwtRandi Rookie

Everyone's symptoms are different. What are your symptoms when you have gluten?! Do you have Celiac or Gluten Intolerance? I am just curious what others go through when exposed. Thank you :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



1desperateladysaved Proficient

I have experienced some or all of the following:

fatigue

dizziness

foggy mind

temperary rash

swelling

bloating

extreme hunger

lack of appetite

nausea

weakness

anxiety

depression

diarrhea

I am not sure these all stem from celiac, because I think I actually might have allergies.

bartfull Rising Star

I'm STILL discovering symptoms I had but never realized they even WERE symptoms.

Psoriasis

Insomnia

Brainfog

Minor digestive issues

Edema in feet and ankles

Heart palpatations

Snoring

Asthma

Hair falling out

And probably some others I can't think of right now. With the exception of the asthma, every one of these symptoms is now GONE. But I included the asthma in the list because even though I still have it, I find that some of my "triggers" don't trigger it anymore. I never could go down the soap aisle in the grocery store before. Now, even though I don't like the smell, it doesn't trigger an attack anymore. And wood smoke used to be the worst. Now, it gets me a little wheezy, but not as bad as it used to.

Persei V. Enthusiast

I have gluten intolerance and my symptoms are:

bloating

cramps

diarrhea

nausea

discomfort

I've dealt with another intolerance before so I know what the red alerts are and cut the food making me sick before the thing scalates. At first I thought it was giardiasis (and was giardiasis, too) because the symptoms would go away as soon as I restricted my diet to liquids only i.e only juice. And then when I went back to my normal diet, very hungry, I would stuff my face in bread and cookies and fall sick again in the next day. It didn't take me a month to put the pieces together, gladly, and it never went really serious.

But here and then I get ill again because restaurants here aren't gluten-free and you have to make a bet everytime you order.

  • 2 weeks later...
SwtRandi Rookie

Thanks for responding!! I have been tested once for celiac and it came back negative. I still went on a gluten-free diet and felt somewhat better. Of course, I wasn't that educated and I am sure I ate alot that still had gluten ingredients. I then became pregnant and I could consume gluten with no issue! Yay!! Then I had my son 1/4/12. I still could consume gluten with no issues. Or so I thought. I am sure they were more hidden then I realized. I then got my gallbladder removed 6/26/12 because I was having many attacks and had tons of gallstones! I am assuming that was from gluten not digesting correctly. Is that something that could be true?! Now, I have been eating gluten and realize that I feel like crap. I think all these symptoms are gluten related. Let me know!

Fatique

Anxiety/Depression (I have been on Paxil/Celexa since 16 years old)

Bloating/Gas (silent, but deadly kind)

Constipation/Diarrhea (depends)

Nausea

Headaches/Aura Migraines (sometimes I can't see anything, but black floaters)

Arthritis Pain (all over my body- mainly legs and hands)

Hair Loss (not to the point of balding though)

Brain Fog/Lack of Concentration

Sound like it?! Should I get tested? Or just do it myself?

kittty Contributor

Are you eating gluten right now, or did you recently stop again? Not eating gluten can give you a negative blood test (which is what happened to me).

I had all of your symptoms, minus the constipation (only had the D).

Do you always have migraine pain with the auras? When I had auras they usually occurred with no migraine pain. It's odd to not have the pain with the auras, and I'm wondering if that's a gluten thing.

SwtRandi Rookie

Today is my #1 day of not eating gluten. I decided to go gluten-free again because I hate the way I feel. Just horrible!

No, I dont have the pain when I have the aura migraines. I will have a headache with no aura. Or aura with no pain. Weird right?!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Aprilelayne Newbie

If you want to get officially tested you will need to continue eating gluten for now.

By removing the gluten or even going gluten-light, you may end up with a falst negative on your test. Its recommended you stay on gluten until after testing to ensure a more accurate (but not a perfect guarantee) result.

SwtRandi Rookie

Thanks for the reply! See this is where I struggle. I need to be gluten-free in order to feel good, but I don't think I can handle much more gluten to actually get tested. Should I just do gluten-free and 'self diagnose' or actually get tested? Ahhh!! Such a struggle :(

Making-A-Change Newbie

I have many of these symptoms as well. I had my blood test today but dont know if I should continue eating glutens until i hear from my doctor. Guess I should keep eating for awhile. I am almost positive that this is what I have to!!! I am of course, self diagnosing but I have no choice since no one else seems to know whats wrong....

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Matthias's topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    2. - Matthias posted a topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    3. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    4. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    5. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,324
    • Most Online (within 30 mins)
      7,748

    mao5617
    Newest Member
    mao5617
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
    • Matthias
      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.