Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help With Breathing

CAD

By CAD
in Coping with Celiac Disease

Recommended Posts

CAD Newbie
CAD
Posted

Hi. Hope someone might have some info for me. I started having difficulties breathing about two months ago. It feels as though my stomach is full and I can't take a deep breath because there is no "room". This feeling also causes issues with eating, as even when I am hungry it seems as though there is no "room" for food. I have had a colonoscopy, endoscopy, upper GI series with barium swallow, ultrasound and cat scan. None show any problems. I am now taking Gastro Calm without much success. I do take fish oil daily which someone said could cause digestive issues. I had my gallbladder removed about 8 years ago. Also, I was treated about 12 years ago for acid reflux which cleared up and last year there was some question about if I had GERD or not. Again, that cleared up. Someone said I probably had a gluten allergy/sensitivity. Has anyone had these type of symptoms? Also is there a definitive test for gluten allergy/intolerance?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GottaSki Mentor
GottaSki
Posted

Welcome!

Yes, your symptoms could be Celiac Disease or Gluten Intolerance. Do you wake up with the full/no room feeling or does it get worse throughout the day?

There are blood tests for Celiac Disease (an autoimmune disease where your body produces antibodies to fight proteins found in wheat, barley and rye) - if they are positive you have Celiac Disease -- if they are negative you could still have Celiac or Gluten Intolerance. You must be ingesting gluten for accurate results. After testing is complete it is a good idea to trial a strict gluten-free diet for a period of at least 3-6 months to monitor changes in your symptoms. Often the diet is the best test because those that are gluten intolerant may have very serious health concerns, but their body does not generate the antibodies in Celiac Disease. The treatment for both Celiac Disease and Gluten Intolerance are the same - remove all gluten from the diet.

Gluten allergy is a separate issue - with your symptoms you might want to see an allergist for food allergy testing.

Your primary doctor or GI can order celiac blood tests - many will not run a full panel unless you ask. It is best to run them all.

Full Celiac Blood Panel:

Total Serum IgA

Tissue Transglutaminase IgA and IgG

Gliadin IgA and IgG

Endomysial Antibody IgA

Deamidated Gliadin Peptide IgA and IgG

Also, low vitamins/minerals can indicate you are not absorbing nutrients properly - another indicator of Celiac Disease. So you might want to have these drawn at the same time as the Celiac panel.

Misc blood tests:

Bs, D, K, Iron, Ferritin, Copper and Zinc

Good Luck :)

Gemme Rookie
Gemme
Posted

Hello,

I had same symptoms along with many other. Going G/Free , Corn Free helped me lot.

I do not sail with Doctors on Celiac , they wasted my 15 years. Best way is go Gluten Free for 3 months and you will find the way forward.

Any more info, you are welcome

Good Luck

CAD Newbie
CAD
Posted
  • Author

Thank you so much for all the info. I have a follow up appointment with the gastrontologist (spelling?) tomorrow to go over the CAT scan results. I am not expecting to hear any news since no other test has shown anything. I am going to ask him about the tests you mentioned. I've written them all down! Yes, I wake up with this full feeling but it does increase throughout the day. Sleeping is such a relief because I am not bothered by it at all. Besides for then, it is difficult all day. People hear me breath deeply and think I am sighing and often they mention it, saying things like "Wow that is a big sigh.". All I'm doing is trying to get a deep breath! So there are three different things: Celiac disease, Gluten intolerance and Gluten allergy? Wow - lots of information to digest, no pun intended.

CAD Newbie
CAD
Posted
  • Author

Hello,

I had same symptoms along with many other. Going G/Free , Corn Free helped me lot.

I do not sail with Doctors on Celiac , they wasted my 15 years. Best way is go Gluten Free for 3 months and you will find the way forward.

Any more info, you are welcome

Good Luck

So you're feeling better after going gluten free? What exactly is corn free? This is all very overwhelming. I am going to the doctor tomorrow for a follow up and am going to mention the blood tests that the other commentor mentioned. You had the breathing issue? I have been reading up on the internet about the whole gluten issue and didn't see that mentioned anyplace so I wasn't sure if it was a symptom of this or not.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. RMJ
      - RMJ replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      nothing has changed

      This may be the problem. Every time you eat gluten it is like giving a booster shot to your immune system, telling it to react and produce antibodies again.
    2. asaT
      - asaT replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      nothing has changed

      Scott, I am mostly asymptomatic. I was diagnosed based on high antibodies, low ferritin (3) and low vitamin D (10). I wasn't able to get in for the biopsy until 3 months after the blood test came back. I was supposed to keep eating gluten during this time. Well why would I continue doing something that I know to be harmful for 3 more months to just get...
    3. nanny marley
      - nanny marley replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      IBS-D vs Celiac

      I have had a long year of testing unfortunately still not diagnosed , although one thing they definitely agree I'm gluten intolerant, the thing for me I have severe back troubles they wouldnt perform the tests and I couldn't have a full MRI because I'm allergic to the solution , we tryed believe me I tryed lol , another was to have another blood test after...
    4. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      45

      Supplements for those Diagnosed with Celiac Disease

      I was undiagnosed for decades. My ferritin when checked in 2003 was 3. It never went above 10 in the next 20 years. I was just told to "take iron". I finally requested the TTgIgA test in 2023 when I was well and truly done with the chronic fatigue and feeling awful. My numbers were off the charts on the whole panel. they offered me an endoscopic biopsy ...
    5. par18
      - par18 replied to Woodster991's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Is it gluten?

      Scott, I agree with everything you said except the term "false negative". It should be a "true negative" just plain negative. I actually looked up true/false negative/positive as it pertains to testing. The term "false negative" would be correct if you are positive (have anti-bodies) and the test did not pick them up. That would be a problem with the "test...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,342
    • Most Online (within 30 mins)
      7,748
    Muhammad
    Newest Member
    Muhammad
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • RMJ
      nothing has changed

      By RMJ · Posted

      This may be the problem. Every time you eat gluten it is like giving a booster shot to your immune system, telling it to react and produce antibodies again.
    • asaT
      nothing has changed

      By asaT · Posted

      Scott, I am mostly asymptomatic. I was diagnosed based on high antibodies, low ferritin (3) and low vitamin D (10). I wasn't able to get in for the biopsy until 3 months after the blood test came back. I was supposed to keep eating gluten during this time. Well why would I continue doing something that I know to be harmful for 3 more months to just get this test? So I did quit gluten and had the biopsy. It was negative for celiacs. I continued gluten free with iron supps and my ferritin came back up to a reasonable, but not great level of around 30-35.  Could there be something else going on? Is there any reason why my antibodies would be high (>80) with a negative biopsy? could me intestines have healed that quickly (3 months)?  I'm having a hard time staying gluten free because I am asymptomatic and i'm wondering about that biopsy. I do have the celiacs gene, and all of the antibody tests have always come back high. I recently had them tested again. Still very high. I am gluten free mostly, but not totally. I will occasionally eat something with gluten, but try to keep to a minimum. It's really hard when the immediate consequences are nil.  with high antibodies, the gene, but a negative biopsy (after 3 months strict gluten-free), do i really have celiacs? please say no. lol. i think i know the answer.  Asa
    • nanny marley
      IBS-D vs Celiac

      By nanny marley · Posted

      I have had a long year of testing unfortunately still not diagnosed , although one thing they definitely agree I'm gluten intolerant, the thing for me I have severe back troubles they wouldnt perform the tests and I couldn't have a full MRI because I'm allergic to the solution , we tryed believe me  I tryed lol , another was to have another blood test after consuming gluten but it makes me so bad I tryed it for only a week, and because I have a trapped sciatic nerve when I get bad bowels it sets that off terribly so I just take it on myself now , I eat a gluten free diet , I'm the best I've ever been , and if I slip I know it so for me i have my own diagnosis  and I act accordingly, sometimes it's not so straight forward for some of us , for the first time in years I can plan to go out , and I have been absorbing my food better , running to the toilet has become occasionally now instead of all the time , i hope you find a solution 🤗
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      I was undiagnosed for decades. My ferritin when checked in 2003 was 3. It never went above 10 in the next 20 years. I was just told to "take iron". I finally requested the TTgIgA test in 2023 when I was well and truly done with the chronic fatigue and feeling awful. My numbers were off the charts on the whole panel.  they offered me an endoscopic biopsy 3 months later, but that i would need to continue eating gluten for it to be accurate. so i quit eating gluten and my intestine had healed by the time i had the biopsy (i'm guessing??). Why else would my TTgIgA be so high if not celiacs? Anyway, your ferritin will rise as your intestine heals and take HEME iron (brand 4 arrows). I took 20mg of this with vitamin c and lactoferrin and my ferritin went up, now sits around 35.  you will feel dramatically better getting your ferritin up, and you can do it orally with the right supplements. I wouldn't get an infusion, you will get as good or better results taking heme iron/vc/lf.  
    • par18
      Is it gluten?

      By par18 · Posted

      Scott, I agree with everything you said except the term "false negative". It should be a "true negative" just plain negative. I actually looked up true/false negative/positive as it pertains to testing. The term "false negative" would be correct if you are positive (have anti-bodies) and the test did not pick them up. That would be a problem with the "test" itself. If you were gluten-free and got tested, you more than likely would test "true" negative or just negative. This means that the gluten-free diet is working and no anti-bodies should be present. I know it sounds confusing and if you don't agree feel free to respond. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.