Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Do You Ask Your Doctors When Interviewing Them?


kyodells

Recommended Posts

kyodells Newbie

I am looking for a new primary care physician. Mine has no background in Celiac Disease (thus taking almost a year to diagnose) and doesn't have the time/inclination to learn or partner with me. I know I want more than I will probably find: an expert in Celiac who can partner with me to figure out which things are Celiac-related, which are vitamin deficiency related, etc. I am basically self-prescribing right now. I go into the doctor and say I want them to check this or that, and they do it. This is at least better than where I was a year ago, but still... I KNOW I'm not an expert (although I'm learning fast) and I'd like to find someone.

What questions would you recommend I ask when I interview new doctors? Here's what I have so far:

1) What is your experience with Celiac Disease?

2) What is your experience with auto-immune disorders?

3) What is your view on homeopathic remedies? (which is important to me)

4) What is your view on nutrition-focused medicine? (which will likely get me fluff answers, but that really is the key for me)

My nutritionist (best money ever spent!) has significant experience with Celiac Disease, so that's been helpful, but she can't advise on the other things - particularly the rashes I have (not the Celiac kind, but likely auto-immune in nature.)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kittty Contributor

Honestly, getting a diagnosis in a year is actually very good. Most people with celiacs aren't diagnosed for many many years. I'm still not officially diagnosed, but it's been over a decade struggling with doctors and trying to find out what was wrong with me. It's not going to be easy to find a PCP with a specialization in something like celiacs, because they are usually general practitioners and aren't focused on specific diseases. They leave that up to the specialists. And most MDs are just not trained in homeopathic medicine, and insurance companies often don't cover that aspect of medicine either.

If your doctor got you tested for celiacs and suggested that as a possible cause for your problems, then that doctor is already better than any I've ever seen. Part of your treatment will be self-study, and exploring on your own, and that goes for any disease. You will have a better understanding of your body than any doctor ever will.

Anyway, my advice is to stick with the doctor you have now, explore resources on your own, and take information to her/him that you find. At least she/he's willing to give you tests when you ask for them.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,706
    • Most Online (within 30 mins)
      7,748

    Aaron Friedman
    Newest Member
    Aaron Friedman
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • badastronaut
      So after  a long time in which I got my zinc and folic acid levels back on track I will now start with taking Thiamine to see if that does anything. According to my blood levels I'm not low on Thiamine but, if I understand correctly, blood works are not the best way to find out if there is a Thiamine shortage. How much Thiamine should I take to start with? 100 mg? 
    • Scott Adams
      I'm in the "never reveal your plans to the enemy" camp on this one--it's none of their business if you're looking for another job, so I would leave that out of any conversation. Also, retaliation can be common with some employers, especially if you bring up the ADA and claim a disability because of celiac disease. I was a corporate paralegal for 5 years and handled employment claims against some major USA companies, and I've seen it all--even by huge companies that contract with the government and should know better. I say keep your cards close to your vest, wear an N95 mask if you handle wheat flour, and quietly look for another job if you feel you can't continue there.  Oh...
    • trents
      @ohmichael doesn't have an official diagnosis of celiac disease yet. That would need to happen if he were to pursue a disability claim.
    • Scott Adams
      This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. According to this article your two positive DGP-IgA tests mean:  
    • nanny marley
      This is so very interesting I love all this information, knowledge is so very important for us to help ourselves heal, I have been so wrapped up with my dogs nutrition after vets told me she needed a operation, which turns out I can help with this for her  myself also , I may have been missing the tap on the shoulder to say integration into your own health is needed here too , although I have been aware I must admit myself has been on the back burner at times , I also have a granddaughter with nut allergy I researched for that , this is now screaming at me to turn inward to myself also , and deal with my invisible struggles I also am carrying, thankyou for all the information keep it coming...
×
×
  • Create New...