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Western Pennsylvania Celiacs


Chris Anne

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Chris Anne Newbie

My name is Chris. I am 10 months diagnosed. Looking for people in my area to chat with.


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mamaw Community Regular

Hi Chris

I'm close to the Pittsburgh area...been gluten-free for about ten years now. I'm the founder of a independent support group....run a mini coop & do gluten-free testing.... for a few companies...

blessings

mamaw

cahill Collaborator

Hi Chris,

I am in Northwestern Pa, Nice to "meet" you :)

mamaw Community Regular

Hi Chill

How are you? Better I hope!!!!

cahill Collaborator

Hi Chill

How are you? Better I hope!!!!

Much better Mamaw :D How about you, How have you been??

mamaw Community Regular

I'm good having some thyroid med issues but it is a endo problem not giving enough since I have no gland left... Been busy canning a ton of veggies.. Getting ready for two gluten-free events in Ohio in Sept then at end of Sept we head to Baltimore for four days for the food expo & then to Philly for the Appetite For Awareness gluten-free event... It is soooo ooo much fun.. If you never attended you should its worth the trip...

Then in October a few more events to attend....Fall is my busy time.....events & doing the gluten-free food orders.....

cahill Collaborator

Fall is my most favorite time of year in western Pa :D


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mamaw Community Regular

Me too! & early spring. I don't like the hot, humid summers...

Chris Anne Newbie

I'm good having some thyroid med issues but it is a endo problem not giving enough since I have no gland left... Been busy canning a ton of veggies.. Getting ready for two gluten-free events in Ohio in Sept then at end of Sept we head to Baltimore for four days for the food expo & then to Philly for the Appetite For Awareness gluten-free event... It is soooo ooo much fun.. If you never attended you should its worth the trip...

Then in October a few more events to attend....Fall is my busy time.....events & doing the gluten-free food orders.....

Hi! I am and hour and a half north of Pittsburgh, originally from near Monroeville. Do you do any of these events in Pgh. area? I would love to attend but not sure about travelling to Philly. Hope your thyroid issue gets to be better for you! Look forward to chatting with both of you!

mamaw Community Regular

Chris

I just sent you a private e-mail.

Yes, there are closer events. The Raisin Rack in Canton isn't that far away. That is where I shop... Sept 8 is when this store has a small sampling day, nothing big but a great store..Then on Sept 9th in Solon, Ohio ( near Cleveland area) there is a event with speakers , vendors/bakers & gluten-free product to purchase....this is my first time at this event as a baker/vendor...

Then in October ther is an event in Cranberry Twp , very close. I will be working that event as well. Oct 27th from 8:30 to well sorry I just forgot!...This is a new one so not all details are worked out yet...Four Points Sheridan.........

This area is not very popular with events....I learned a long time ago that we need to be a road runner to stock up on gluten-free... There are four of us gluten-free & more that needs to be!!!!

I can give you a heads up on everything around here & then other states too....

There's is so much new gluten-free foods these days but still the nasty stuff is still out there too... years ago we had no choices so these days are wonderful for us older celiac faces....

By the way Gaint Eagle is now carrying Goodbye Gluten Bread for $5..49 a loaf, good moist bread that needs no heating!!!!

mamaw

cahill Collaborator

Hi! I am and hour and a half north of Pittsburgh,

You are pretty close to me then, sent you a PM :)

  • 4 weeks later...
ohio nanny Newbie

If you are near the Hermitage area, there is a support group that I belong to. We meet the second Thursday of each month at 6:30 PM. I was diagnosed 3 months ago, and everyone has been fantastic at this group. It's so comforting to talk to someone else who is going through the same issues. We'd love to have you at our meetings.

jaynekellimusic Newbie

Can anyone suggest some great Gluten Free restaurants near Jim Thorpe, PA and Bethlehem, PA?

I'll be on tour there mid-October and run into trouble finding gluten-free places on the road sometimes.

Thanks so much,

Jayne

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    • DebJ14
      Migraines ran in my family, on my father's side.  All of my female first cousins on that side, and our grandmother suffered from Migraines.  Grandmother died in 1984 so we do not know if she ever would have been diagnosed with celiac disease. However, all 4 of us cousins were diagnosed with celiac disease between 2003 and 2007.  The dermatitis herpetiformis rash is a blistery, super itchy rash.  When they do the biopsy they take it from non-involved skin that is next to the rash.  If done wrong, the results may not be accurate.  Have you ever had one done? In that case, I agree that maybe she has you still on gluten for a biopsy.  But, if she has not ordered it nor referred you to a gastroenterologist, then I would question her advice.  
    • trents
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    • NCalvo822
      Definitely useful info. Thank you!
    • Scott Adams
      It's possible that your doctor wants you to do an endoscopy to confirm the diagnosis, and if that is the case that could be why they don't want you to go gluten-free before that procedure is done.  Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • NCalvo822
      Hi! Your history is interesting as I see parallels with my history. I too had migraines since childhood, but they run in my family so I didn’t think there could be any connection to the celiac. Also, the migraines have tapered off after menopause. I too have trouble walking in a straight line. And yet another similarity is I have been seeing both a dermatologist and an allergist for many years. The allergist has run many tests for my skin issues, but concluded I am not allergic to anything. I do occasionally get hives and am on daily medication to control the hives and other rashes or similar issues. At my last appt with allergist recently, I informed them of my new diagnosis of celiac disease. They said that it has nothing to do with my skin issues. They didn’t even put it in my chart. I know because I read the notes from the visit on the patient portal. However, your post has me second guessing my skin issues and possible connection to celiac disease.
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