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Follow Up With Doctor


kittty

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kittty Contributor

After after having blood work done a couple of weeks ago, and coming back negative for celiac (because I've been off gluten for months before the test was done), I'm wondering what else I should explore with my doctor. I have a follow up appointment in two weeks. She has already said that she considers me gluten intolerant because of the evidence of switching to a gluten-free diet. But should I ask for more tests to see if I'm low on some nutrient levels? Is there a specific test or panel of tests I should ask for?


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GottaSki Mentor

Hi Kitty-

These are the tests my Celiac Doc recommended in additional to Full Celiac Panel - at Dx, at 6 months then annually thereafter:

Bs, D, K, Iron, Ferritin, Copper and Zinc

I've seen others suggest adding vitamin A to the list.

Good luck to you!

kittty Contributor

Hi Kitty-

These are the tests my Celiac Doc recommended in additional to Full Celiac Panel - at Dx, at 6 months then annually thereafter:

Bs, D, K, Iron, Ferritin, Copper and Zinc

I've seen others suggest adding vitamin A to the list.

Good luck to you!

Thanks a lot!

I had blood tests done a few years ago that pointed towards possible iron, magnesium, and B6 deficiency. I'm interested to see how different things are now.

heather806 Rookie

Along with the others GottaSki mentioned, have them check calcium and magnesium too. I've had major calcium problems. (hopefully soon to be resolved since I was diagnosed in June and have been gluten-free since then!) Good luck! Let us know how your tests come out.

nvsmom Community Regular

A thyroid check might be a good idea; TSH (thyroid stimulating hormone), T4 and TPOAb (thyroid peroxidase anibodies) will give you an idea if you have Hashimoto's hypothyroidism, which can show up in celiacs and has many of the same symptoms. A hypo result would be high TSH, low/normal T4 and high TPOAb.

Best wishes.

kittty Contributor

A thyroid check might be a good idea; TSH (thyroid stimulating hormone), T4 and TPOAb (thyroid peroxidase anibodies) will give you an idea if you have Hashimoto's hypothyroidism, which can show up in celiacs and has many of the same symptoms. A hypo result would be high TSH, low/normal T4 and high TPOAb.

Best wishes.

My mom had thyroid problems (hyperthyroid) so they check me for thyroid pretty much every time I have bloodwork done, whether I ask for it or not. It always comes back normal, thankfully!

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    • Jane02
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    • knitty kitty
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    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
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