Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Possible Fructose Malabsorption?


pinkpandapants

Recommended Posts

pinkpandapants Rookie

So I've been trying for what seems like forever to figure out my stomach problems. For the past few months I thought that it might be Celiac, just because of all of my symptoms/problems put together (depression/anxiety, thyroid disease, eczema, stomach cramps, bloating, diarrhea), but the blood tests came up negative and the biopsies from my endoscopy came up completely negative. So it's not that, which, to be honest, I'm relieved about. But it doesn't solve my digestive woes!

Before I thought it might be Celiac I had been doing some research on fructose malabsorption, and thought that it might fit me better, but then I kind of threw that idea away until recently. My main problem is fruits. ESPECIALLY apples, which have the highest fructose content of them all. I can't eat apples at all, because they give me the WORST stomach cramps, followed by awful gas. I also can't eat pears or any canned fruit packed in pear juice, honeydew melon, plums, mangoes, or too many grapes or cherries (a few is fine). Besides the fruit, I have a big problem with some foods that contain fructans, ESPECIALLY tomatoes, but also artichokes, garlic and onion. I think that wheat may also be a problem, as it contains fructans as well, except I have to eat a LOT. If I eat too many sweets I also have problems.

I've been tested for allergies with ALL of the foods that bother me and nothing's come up. As I already said, Celiac came up negative. I don't even know where to start for a fructose malabsorption test, though. My gastroenterologist didn't even have a lactose intolerance test for me, she just said I probably was if I felt better without dairy! I feel stupid asking about more tests when I've already had so many done already with negative results. I just feel like I'm being a hypochondriac now. I told her about my problems with apples and tomatoes, etc., but she didn't really take it seriously. She just diagnosed me with IBS, but I know that food has something to do with it! I just want my poor tummy to be fixed. :c


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Bubba's Mom Enthusiast

You could have non Celiac gluten intolerance..or the damage to your small intestine was mild or not found. You can have Celiac with negative blood tests. Around 20-30-% of us test negative but have Celiac.

There's a test that can be done for frutose intolerance. It's very similar to the one for lactose intolerance and SIBO. You breath into a device that measures the gases in your exhale, then drink a solution and redo the exhale measure several times over a span of about 2 hours. You could push for that.

I would recommend you go 100% gluten free and see if it helps? If your system is inflamed some foods may be bothering you that wouldn't be once everything has settled down.

It's infuriating that Dr.s don't take this stuff seriously! :angry:

GFinDC Veteran

Right, failing the tests doesn't mean you don't have celiac disease. It may just mean the tests aren't very good. There is also NCGI (non-celiac gluten intolerance) which there are no tests for right now. So you are on your own if you have that condition, doctors can't test for it.

Finally-45 Contributor

My gastro said that fructose intolerance can be different for each person.... I have the worst IBS reaction from corn, but it's mild for other fructose sources. I hope you feel better soon.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,829
    • Most Online (within 30 mins)
      7,748

    Martins32
    Newest Member
    Martins32
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • lookingforanswersone
      Thanks everyone. I've decided to do a gluten challenge (4 slices of bread a day for 3 months) and then do a full gluten panel of all the tests that can be done, just to rule it in or out for sure. I think otherwise psychologically it will keep bothering me 
    • Suze046
      Thanks Scott. Those articles are really interesting. I’m cutting out gluten for 6 weeks but honestly I’m not sure I even want to reintroduce it! I ate at a restaurant for the first time on Wednesday and then Thursday was really uncomfortable and had a few trips to the loo.. wonder if there was some cross contamination 🤷‍♀️ if that’s how my body reacts after not eating it for 3 weeks I’m not sure it’s worth reintroducing it and re testing for celiac! It might have been a coincidence I realise that I’m not going to feel better all of a sudden and my gut is probably still trying to heal. Thanks for your supportive message! 
    • RMJ
      Reference range 0.00 to 10.00 means that within that range is normal, so not celiac. There are other antibodies that can be present in celiac disease and they don’t all have to be positive to have celiac.  I’m sure someone else will post a link to an article describing them! Plus, if you are IgA deficient the celiac IgA tests won’t be accurate.
    • cristiana
      Great to have another UK person on the forum!   Re: blood tests, it sounds as if you are being well monitored but if you have any further concerns about blood tests or anything else, do not hesitate to start a new thread. Cristiana  
    • Lori Lavell
      Julia530 - I have the same gene structure and most of the symptoms you have experienced plus more.....I agree with you whole heartedly!! There are approximately 10 (NOT TWO) genes that can predispose a person to having Celiac Disease. I read in Pub Med that HLA DQA1:05  can result in Celiac Disease in approximately 1 in 875 people. While it is obviously more rare it is NOT BENIGN and should not go unnoticed. Go get the book "NO GRAIN, NO PAIN" and I highly suggest you read it cover to cover. It is written by a Chiropractor who quit his medical education when the VA wouldn't allow him to treat the Veterans with debilitating arthritis with a grain free diet. I have been grain free for over 10 years now.....the facts are we are being lied to! There is a form or gluten in every protein in every grain on the planet of which there are 1000 or more. Just because all they are testing for is the Gliadin in wheat is no excuse to report only partial facts. I became a Certified Function Nutrition Counselor who specializes in Celiac Disease other Autoimmune conditions. Lavell Krueger, CFNC - lavellnutrition    aol
×
×
  • Create New...