Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dairy Advice


kittty

Recommended Posts

kittty Contributor

I'm dairy-confused right now :blink: , and looking for advice.

Dairy was the first thing I cut out when looking for a food-related solution to many medical problems, and that did improve my GI issues some. Cutting out gluten was the answer, but diary was bothering me for a while into the gluten-free journey so I stayed dairy free for about a month. After that I could tolerate dairy just fine, but now, four months later, I'm finding that some forms of dairy are causing problems again (diarrhea and undigested food in stool). The latest dairy reaction started after I was glutened about a month ago, and hasn't gone away.

Milk is an issue, as is cheese (except in small amounts), but greek yogurt doesn't seem to trigger any effects.

Do you think that cutting dairy again temporarily would solve these issues? How long would you recommend being dairy-free?

Or, is it possible that going gluten-free has exacerbated my sensitivity to dairy?

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



love2travel Mentor

This has just happened to me as well. When I was first diagnosed with celiac 1.5 years ago, I was able to tolerate dairy. Shortly after, I could not so I went dairy free for several months which improved GI issues. Sadly, the past two weeks or so I am unable to tolerate some dairy again (soft and semi-soft cheeses and milk). But I can eat a bit of aged cheese and Greek yogurt. Oh, and also cream. These contain lower amounts of lactose than milk and many cheeses. So, I am being careful once again. Today I actually found gluten and lactose-free chocolate milk! I was so pleased. I also eat lactose-free yogurt.

If I were you I would try eliminating dairy again for a month or two. We are all so different and have different reactions, including gluten and dairy. It is difficult to say whether it is related to your being gluten free or not. It could be the same for me, too. I know there are many people who develop other tolerances after being gluten free for a time. This is yet another option! :huh:

kittty Contributor

Thanks for the advice! Glad I'm not the only one who randomly develops lactose intolerance! :)

I had a greek yogurt for lunch, thinking it would be okay. An hour later I was running to the bathroom at work with stomach cramps and D. So it's getting worse.

I'm definitely cutting all dairy again starting tomorrow.

love2travel Mentor

Oh, you poor thing. :( Hopefully you are able to enjoy dairy again soon! Guess what? In the grocery store yesterday I found lactose and gluten free chocolate milk! I was sooooo happy as I have cravings for that once in awhile. My husband tried it and said it is just as good as his regular chocolate milk. :)

  • 2 weeks later...
icm Apprentice

Have you considered casein intolerance? I started an interesting thread here:

A lot of people who thought they were lactose intolerant over here in Oz found out it was bcm7 (an opiod in A1 milk) that was causing problems.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      30

      My journey is it gluten or fiber?

    2. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

    3. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

    4. - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,819
    • Most Online (within 30 mins)
      7,748

    Charlette Jillie-Martinez
    Newest Member
    Charlette Jillie-Martinez
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • xxnonamexx
      Is there a digestive enzyme that helps build a healthier gut? I see people taking them but not sure what really works
    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
    • Samanthaeileen1
      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.