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Not Many Symptoms

karinp

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karinp Rookie
karinp
Posted

Do any of you have celiac without many symptoms? I had positive tgg iga and igg and am awaiting an endoscopy. I have bloating, fatigue, but that's really about it. I'm wondering if my biopsy will even show anything since i don't have many symptoms. Thanks

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eatmeat4good Enthusiast
eatmeat4good
Posted

You might be lucky and caught it before it flattens you.

Actually the number of symptoms doesn't seem to correlate with positive biopsies. Many people never knew they had Celiac at all due to having no symptoms but their biopsy came up positive. There is something called Silent Celiac where no symptoms are felt subjectively by the person with Celiac, yet they have the damage consistent with Celiac.

Other people have all kinds of symptoms and yet they test negative...go figure.

Takala Enthusiast
Takala
Posted

Sometimes, after you have been on a gluten free diet for awhile, then accidentally eat the stuff, you have so many symptoms, you wondered how it is that the rest of the world managed to convince you that feeling "this lousy" is "normal."

karinp Rookie
karinp
Posted
  • Author

Thanks for your input. Maybe i do feel symptoms sometimes and i just don't relate them to gluten. This afternoon i felt like just crap. So tired, headache, foggy. And i did have a bunch of wheat thins with lunch so maybe it was related.

LauraB0927 Apprentice
LauraB0927
Posted

I never had GI symptoms except for the three days before I went to the doctor. I was waking up in the middle of the night with terrible abdominal pains, but other than that - nothing. Battled with anemia, syncope, and acid reflux for a while, but I never knew it had anything to do with the Celiac until after I was diagnosed. I was able to basically eat anything with no apparent issues and had no idea that my insides were being torn up. HOWEVER, now that I'm gluten free, I've become pretty sensitive to gluten and got terribly sick after eating gluten free gummy bears that were made in a facility that also processed wheat....go figure - NOW I have issues! :)

shadowicewolf Proficient
shadowicewolf
Posted

Yes, i had "D" and vomitng along with fatige, my GERD, insomnia, and general ickiness.

However, I had no odvious GI damage (outside of a damaged throat due to GERD).

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  • Posts

    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      Food and environmental allergies involve IgE antibodies.  IgE antibodies provoke histamine release from mast cells.   Celiac disease is not always visible to the naked eye during endoscopy.  Much of the damage is microscopic and patchy or out of reach of the scope.  Did they take any biopsies of your small intestine for a pathologist to examine?  Were you given a Marsh score? Why do you say you "don't have intestinal damage to correlate with lifelong undiagnosed celiac disease"?   Just curious.  
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for food allergies and environmental allergies about 7 months before I started taking Naltrexone, so I don't think that is the cause for me, but that's interesting!  The main thing with the celiac thing that is throwing me off is these symptoms are lifelong, but I don't have intestinal damage to correlate with lifelong undiagnosed celiac disease.
    • trents
      Finding gluten free ingredients

      By trents · Posted

      Welcome to the forum, @Kara S! Warrior bread is a grain free bread product. Google it. There are commercial mixes available, I believe, Youtube videos and many recipes. 
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