Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Intolerance Testing (For Casein/soy/etc)


Pegleg84

Recommended Posts

Pegleg84 Collaborator

Hi All

So, since I keep having new problem foods popping up every other day (exaggerating, but it's getting frustrating), I think it's time I looked into some further allergy/intolerance testing.

I haven't been tested for anything since two negative blood tests for Celiac (technically, I self-diagnosed and went on the gluten-free diet cause I didn't want to suffer longer to get a biopsy, and Celiac runs rampant on both sides of my family).

I am 3.5 years gluten free, and now casein and soy (almost) free.

Does anyone know of any reliable tests for food intolerances? (not allergies)

Do you think it would be a good idea to get allergy testing done as well, just to see if there's anything else going on? (aside from mild hayfever, I don't have any)

Or is a strict elimination diet really the only way to go?

Also, what kind of doctor/specialist would you go through to get these test?

FYI: I'm in Toronto, Canada.

Thanks a bunch

Peg


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Bubba's Mom Enthusiast

Hi All

So, since I keep having new problem foods popping up every other day (exaggerating, but it's getting frustrating), I think it's time I looked into some further allergy/intolerance testing.

I haven't been tested for anything since two negative blood tests for Celiac (technically, I self-diagnosed and went on the gluten-free diet cause I didn't want to suffer longer to get a biopsy, and Celiac runs rampant on both sides of my family).

I am 3.5 years gluten free, and now casein and soy (almost) free.

Does anyone know of any reliable tests for food intolerances? (not allergies)

Do you think it would be a good idea to get allergy testing done as well, just to see if there's anything else going on? (aside from mild hayfever, I don't have any)

Or is a strict elimination diet really the only way to go?

Also, what kind of doctor/specialist would you go through to get these test?

FYI: I'm in Toronto, Canada.

Thanks a bunch

Peg

After going gluten-free I started reacting to other foods. Soy in particular made me nauseated in very small does like vitamin pills, and larger doses gave me projectile vomitting. A few other foods caused reactions too.

I had gotten environmental allergy testing 3 years ago and tested positive to a lot of things. I went back to my allergist after Celiac Dx to get tested for foods.

I didn't react to any foods at all. The allergist said they can test for allergies but not intolerances. The only way to figure it out is to keep a log of what you eat and any symptoms you get.

Most food reactions are a bit delayed so need to have a way of going back and putting the pieces of the puzzle together.

Some of us react to certain foods when our system is enflamed. High salicylate foods get me if I have too many too often.

I was told that reacting to more and more foods can be a sign that there may be small intestine bacterial overgrowth. (SIBO) That might be a good place for you to start? A GI would do this hydrogen breath test.

If that test comes back OK..I'd say watch the top allergens. They're tops for a reason. Also some of us react to nightshades, (tomatoes, potatoes, peppers, and eggplant) and some of us to lectins or salicylates. We are each different, and unfortunately, we have to sort it out ourselves.

Best wishes for finding your answers...

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,035
    • Most Online (within 30 mins)
      7,748

    Cara Evans
    Newest Member
    Cara Evans
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      This is an older article, but may be helpful.  
    • gfmom06
      I have had orthodontic work done. The 3M invisalign material was no problem. BUT my retainers are another matter. They seemed okay for a few months. Now, however, they cause a burning sensation on my tongue, gums and insides of my lips. The burning sensation is now spreading to my throat. I notice it when I breathe. This is annoying and interferes with my enjoyment of eating. I am visiting with my provider tomorrow. We'll see where this goes from here.
    • Beverage
      Exactly which blood tests were done? There are a few different ones and some docs don't do them all. Also, your results and reference ranges for each?
    • Jmartes71
      Thankyou so much for your words.Its a hard battle when a supposed well known hospital whose celiac " specialist " has down played me because my colon looks fine and put it in my medical and so pcp doesn't take seriously. In their eyes we all carry that gene.Im having alot of bad days trying to be positive because of it.
    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.