Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hashis/hypothyroid: New Lab Work And Want To Scream


pricklypear1971

Recommended Posts

pricklypear1971 Community Regular

Went to the ND yesterday and got the new labs.

In general, things are improving.

But digging deeper into my thyroid, well, things suck big fat sour lemons.

I am so frustrated I could scream, generally speaking.

My thyroid is a mess. I'm making high levels of rt3. My iron and d aren't increasing enough to know if they are causing the problem or if I'm battling a war I can't win without t3 only therapy.

And on top of that, my ND just kind of aggravated me.

Does that make sense?

I'm sure it doesn't.

I'm just so tired of this crap right now. Seriously.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GottaSki Mentor

That stinks :angry:

Completely understand - I sure wish you got better news today :huh:

Hang in there!

It will get better. It will get better. It will get better. Can you tell I read 'The Little Engine That Could' a few too many times over the years?

cavernio Enthusiast

I wish I could get my t3 checked

peeptoad Apprentice

I wish I could get my t3 checked

Let me guess: your doctor won't run this test for you either?

The third time I aksed about my T3 my doctor finally just flat-out lied to me and said it was going to be done and it wasn't... I don't think insurance companies like this test being ordered for some (probably money-related) reason.

TeknoLen Rookie

Sorry to hear your thyroid is giving you fits. Very frustrating indeed. Getting that thing working correctly can be a chore. Last week I had a hyperthyroid flare and headache that was sooo bad it made me want to get the t-ectomy right then and just rely on a full replacement dose of synthetic T4/T3 for the rest of my life. I was quite happy when that thought passed, I can tell you...Anyway, I recently learned that selenium (either supplement or brazil nuts) can help with T4 to T3 conversion, probably old news to you but if not then maybe worth a try. Good luck and keep at it, you will crack the code...

pricklypear1971 Community Regular

There are equal numbers of contradictory studies that day if you are high rt3 and showing t3 resistance it inhibits it.

As does exercise.

As does a low carb/paleo diet.

As does low d and iron.

I want to scream.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

    2. - GlorietaKaro replied to GlorietaKaro's topic in Super Sensitive People
      5

      Am I nuts?

    3. - trents replied to GlorietaKaro's topic in Super Sensitive People
      5

      Am I nuts?

    4. - GlorietaKaro replied to GlorietaKaro's topic in Super Sensitive People
      5

      Am I nuts?

    5. - trents replied to GlorietaKaro's topic in Super Sensitive People
      5

      Am I nuts?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,807
    • Most Online (within 30 mins)
      7,748

    Aron2
    Newest Member
    Aron2
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Samanthaeileen1
      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
    • GlorietaKaro
      One doctor suggested it, but then seemed irritated when I asked follow-up questions. Oh well—
    • trents
      @GlorietaKaro, your respiratory reactions to gluten make me wonder if there might also be an allergic (anaphylaxis) component at work here.
    • GlorietaKaro
      Thanks to both of you for your responses!  Sadly, even after several years of very strict gluten avoidance, I remember the symptoms well enough that I am too frightened to risk a gluten challenge— heartbeat and breathing problems are scary— Scott, thank you for the specific information— I will call around in the new year to see if I can find anyone. In the meantime, I will carry on has I have been— it’s working! Thanks also for the validation— sometimes I just feel crushed by disbelief. Not enough to make me eat gluten though—
    • trents
      Welcome to the celiac.com community, @GlorietaKaro! As Scott indicated, without formal testing for celiac disease, which would require you to have been consuming generous amounts of gluten daily for weeks, it would be not be possible to distinguish whether you have celiac disease or NCGS (Non Celiac Gluten Sensitivity). Their symptoms overlap. The difference being that celiac disease is an autoimmune disorder that damages the lining of the small bowel. We actually no more about celiac disease than we do about NCGS, the mechanism of the latter being more difficult to classify. There are specific antibody tests for celiac disease diagnosis and there is also the endoscopy/biopsy of the small bowel lining. Currently, there are no tests to diagnose NCGS. Celiac disease must first ruled out. Researchers are working on developing testing methods to diagnose celiac disease that do not require a "gluten challenge" which is just out of the question for so many because it poses serious, even life-threatening, health risks. But we aren't there yet.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.