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- knitty kitty replied to NCalvo822's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease15Newly Diagnosed
@DebJ14, Yes, Celiac Disease causes malabsorption of all the essential vitamins and minerals, not just thiamine. All the B vitamins work together and many minerals are needed as well. If one is missing, the rest can't work well without it. Thiamine is used at the beginning of the energy production cycle and interacts with each of the other B... -
- Purpletie3 commented on Scott Adams's article in Ataxia, Nerve Disease, Neuropathy, Brain Damage and Celiac Disease5Celiac Disease Triggers Cognitive Deficit and White Matter Changes in the Brain (+Video)
I told my Doctors this years ago and they sent me for a sleep study and hormone tests. Even a mild cross contamination had me in a brain fog, losing my place in a conversation, inability to concentrate- at all, even messed with my walking and sometimes my eye sight and even speech. Definitely a dull version of myself. I was 30 years mis-diagnosed so there...- brain damage
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- DebJ14 replied to NCalvo822's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease15Newly Diagnosed
I was tested for nutrient deficiencies and Thiamine was not my problem. The doctor uses the Spectracell Test for Micronutrient Deficiencies. I was deficient in Carnitine, Magnesium, multiple antioxidants, D, Selenium, B12, B6 and a long list, just not Thiamine. -
- Joel K commented on Scott Adams's article in Gluten-Free Travel1Cruising Gluten-Free: Why Princess Cruises Stands Out for People with Celiac Disease and Gluten Sensitivity
Umm...meh. Under the "Tips for a Safe...", #6 should be #1. If a cruiseline bombs out on the research, 2-6 become irrelevant. That notwithstanding, how is Princess any different from any other cruise line if you have to follow stated tips 1-5 if they manage to pass #6? You'd do the same everywhere else. I should say, I would. For the ...- 1
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- trents commented on Scott Adams's article in Diagnosis, Testing & Treatment3New Blood-based T Cell Celiac Disease Diagnostic Test Eliminates Prolonged Gluten Challenge (+Video)
Yes, but knowing you have "a gluten problem" does not distinguish between gluten sensitivity and celiac disease, an important distinction when it comes to long range health implications and how strict you need to be in avoiding gluten. And in reality, many people find they cannot stick to the gluten free diet until they have a formal diagnosis. Without that...- celiac disease
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By knitty kitty · Posted
@DebJ14, Yes, Celiac Disease causes malabsorption of all the essential vitamins and minerals, not just thiamine. All the B vitamins work together and many minerals are needed as well. If one is missing, the rest can't work well without it. Thiamine is used at the beginning of the energy production cycle and interacts with each of the other B vitamins in the process. Mitochondrial health depends upon thiamine. Without thiamine, mitochondria can't produce energy, ATP, needed for cells to function. They sicken and die. Mitochondrial dysfunction is said to be the basis of illness. Interesting Reading: Practical supplements for prevention and management of migraine attacks: a narrative review https://pmc.ncbi.nlm.nih.gov/articles/PMC11557489/ The importance of thiamine (vitamin B1) in humans https://pmc.ncbi.nlm.nih.gov/articles/PMC10568373/ -
I was tested for nutrient deficiencies and Thiamine was not my problem. The doctor uses the Spectracell Test for Micronutrient Deficiencies. I was deficient in Carnitine, Magnesium, multiple antioxidants, D, Selenium, B12, B6 and a long list, just not Thiamine.
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I forgot to mention that exercise also triggers it, except for the period right before I tried the gluten challenge where I could do moderately intense workouts without getting this burning sensation and extreme fatigue for days afterwards.
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Hello everyone, I am 30 years old, female, and have Hashimoto's thyroiditis and suspected celiac disease (wasn't able to complete a gluten challenge, but have the symptoms and HLA-DQ8) or at least some kind of gluten sensitivity. When I first got diagnosed with Hashimoto's thyroiditis, I went on AIP and never reintroduced gluten. Whenever I would eat a little bit of gluten I would wake up feeling very old, achy, and unrested, with a burning sensation everywhere especially on my hip bones and chest area. It felt like severe inflammation. This would also happen during stressful times and times where I hadn't been sleeping well. This symptom had decreased in intensity and completely gone away before I tried to do a gluten challenge over a month ago. Now it is back and I have it every day when I wake up. It usually goes away or decreases in intensity after a few hours of being awake. Is this inflammation or something else, and is it related to Hashimoto's thyroiditis or celiac (or gluten sensitivity) or both? Could it be related to not moving for long periods of time (as is the case when I am sleeping)? I was also extremely sensitive to all foods when I first started AIP about 3 or 4 years ago, but with time, I could tolerate more foods and even gluten in small amounts occasionally. Now my stomach is super sensitive, I am afraid to eat again, and my stools are abnormal. Thank you.
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By knitty kitty · Posted
@MagsM Did your doctor do the DGP IgG and DGP IgA tests or the tTg IgG test. It looks like he just tested total IgG. Were you taking any medications or over the counter stuff before the test? Some can suppress the immune system and cause false negatives.
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