Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do They Always Do A Biopsy During A Gastroscopy?


smpalesh

Recommended Posts

smpalesh Explorer

I have been told I am going for a gastroscopy and a colonscopy this coming Monday. My celiac blood test isn't even back yet but they are doing these tests to test for "unexplained anemia." My dr is not taking me seriously about the celiac testing as far as I can tell. Anyways I am wondering do they always do a biopsy during a gastroscopy or do I need to specifically ask the dr to do a celiac biopsy. I have already decided I am not going to do these tests if they are not doing a biopsy. It makes absolutely no sense to put me through such invasive tests and not do the biopsy at the same time while they are already in there. I have a call in to my dr but he hasn't phoned me back yet.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

You need to be very specific with the GI. You would be amazed how many endoscopies are done on patients with your symptoms where they just.... look.... don't even bother to take a sample or two, let alone test them for celiac. The doctor should take at least six biopsies specifically for celiac testing. You must insist on this or they will take one or two, and because the damage is not uniform they can miss it altogether because most of it can only be seen under a microscope. If it can be seen with the naked eye you are positive for sure!!!

Best wishes for Monday. :)

smpalesh Explorer

How can I make the dr order the biopsy? I am in Ontario so it is paid for by OHIP and I am worried the dr will say that they don't need to do a biopsy. I am not going under a procedure with risks if they aren't going to do the biopsy so I am trying to figure out how to get my dr to order it.

You need to be very specific with the GI. You would be amazed how many endoscopies are done on patients with your symptoms where they just.... look.... don't even bother to take a sample or two, let alone test them for celiac. The doctor should take at least six biopsies specifically for celiac testing. You must insist on this or they will take one or two, and because the damage is not uniform they can miss it altogether because most of it can only be seen under a microscope. If it can be seen with the naked eye you are positive for sure!!!

Best wishes for Monday. :)

mushroom Proficient

Check out this link (a medical editorial)

Open Original Shared Link

where they state:

We recommend that 4 to 6 biopsy specimens be taken from the descending duodenum because villous atrophy in celiac disease can be patchy and orientation of the specimens is variable.

Print this out and give it to him, along with the rest of the information at this link. :)

smpalesh Explorer

Sadly, I think I am going to have to cancel the procedures. I do want to have the biopsy (if I could have even gotten him to order it) but I am an abuse survivor and I have been up panicking all night. Unless they can put me under complete general anesthesia I can't do it. I know they do "conscious sedation" but I have had it before for a different procedure and I was still aware of what was going on the whole time, I just couldn't move or speak. Totally terrifying. Has anyone been successful getting these tests done under GA?

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,586
    • Most Online (within 30 mins)
      7,748

    Hurricansparkles12
    Newest Member
    Hurricansparkles12
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jmartes71
      Shingles is dormant and related to chicken pox when one has had in the past.Shingles comes out when stress is heightened.I had my 3rd Shingles in 2023.
    • knitty kitty
      Here's one more that shows Lysine also helps alleviate pain! Exploring the Analgesic Potential of L-Lysine: Molecular Mechanisms, Preclinical Evidence, and Implications for Pharmaceutical Pain Therapy https://pmc.ncbi.nlm.nih.gov/articles/PMC12114920/
    • Flash1970
      Thank you for the links to the articles.  Interesting reading. I'll be telling my brother in law because he has a lot of pain
    • Scott Adams
      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
    • knitty kitty
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.