Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone Under The Age Of 25?


inducedjoy

Recommended Posts

inducedjoy Newbie

Hi all!

I've noticed that most people on this forum are well over the 25 age mark, but I'm curious to see if there are any younger people on the forum. I'm only 19, and although I find the advice and friendliness of all users to be extremely helpful and welcoming, I would like to talk to someone my own age who is going through this. Someone who knows what it's like to miss school because of celiac issues, or who understand how hard it is to explain your special diet to a potential boyfriend or new friends who weren't there during your diagnosis. Perhaps someone who hasn't dealt with being gluten free for 20+ years or who doesn't have a houseful of kids to feed, because I just can't relate to scenarios like that.

SO! If you're a pretty young person on the forums, let's talk! I've never met anyone my own age with celiac disease, and I'm curious to see how others have dealt with it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



luvrdeo Apprentice

I'm a few years past 25 (not quite 30 lol), but can 100% relate to what you're going through! I've gone mis-diagnosed since high school, where I repeatedly got sent home for "anxiety attacks" which I now suspect were the beginning stages of celiac. I just got diagnosed 2 months ago, and on Monday got dairy, grains, and corn taken away on top of the gluten. There is nothing easy about this! Luckily for me, one of my best friends is also celiac, so I've had someone who's brain I could pick. The rest of the time, I try to relate on here...and like you, sometimes certain scenarios just don't fit my life at all!

shadowicewolf Proficient

I'm 22 if that helps any.

But, yep, it stinks when doctors and who have you don't listen to ya.

lisasanner22 Newbie

Age 17. ive been gluten-free for 5 years and i know what you mean by missing school and trying to tell your boyfriend or anyone for that matter that you cant eat this or that.. it really gets annoying after a while. you want people to understand but they dont.. i figured the best thing is to explain it like an allergy. and to be honest i told my boyfriend before i even started to date him that i was gluten free and he asked about it and it was hard to explain it to him because its like how do you explain so much to them in so little time. like to start with and that was hard, but i was glad i told him first that way i new later on that hes not leaving me for someone else because of celiac. and with missing school it happens at first and there is nothing you can do because you feel like crap or your throughing up or something. but the longer your on the gluten-free diet you realize that you dont really get sick anymore. in the past 3 and 1/2 to 4 years i havnt missed a day of school and thats because i totally live a gluten free diet and once my body got adjusted and is getting the nutrients now. my body is "back to normal" yes there will be changes but its life. and i hope this helped. but going to pray the best for you, if thats okay. i know that has helped me with so much!! Lisa <3

Hi all!

I've noticed that most people on this forum are well over the 25 age mark, but I'm curious to see if there are any younger people on the forum. I'm only 19, and although I find the advice and friendliness of all users to be extremely helpful and welcoming, I would like to talk to someone my own age who is going through this. Someone who knows what it's like to miss school because of celiac issues, or who understand how hard it is to explain your special diet to a potential boyfriend or new friends who weren't there during your diagnosis. Perhaps someone who hasn't dealt with being gluten free for 20+ years or who doesn't have a houseful of kids to feed, because I just can't relate to scenarios like that.

SO! If you're a pretty young person on the forums, let's talk! I've never met anyone my own age with celiac disease, and I'm curious to see how others have dealt with it.

hottati Newbie

Hey!

I am also 19 and have never met anyone else with Celiac. I have only been diagnosed for about a year and a half now and it is definitely a challenge when trying to go out to eat with friends (or like you said explaining to potential boyfriends). It would definitely be nice to have someone who understands to talk to.

inducedjoy Newbie

If anyone wants to talk, my email is aviola93@gmail.com. Shoot me a message and maybe we can chat on fb!

  • 2 weeks later...
hagermeister11 Newbie

Newly diagnosed here. 21 years old. After years of all kinds of issues, I finally went in for testing last week. I really didn't know what I would be getting myself into with changing my diet so drastically, but honestly, it isn't as bad as I figured it would be. I understand I'm still rather fresh on the change, but I do feel a bit better already. I'm sleeping better, I have more energy, no more headaches, and my outlook on life is back to where it used to be. I'm excited to keep up the changes and see how much better I feel after a few months.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AshBil Rookie

Hey there! I'm 20 and was just diagnosed two weeks ago exactly. It only took over 3 months for them to figure out why I was constantly nauseous and bloated. That nausea will be the death of me. It still likes to pop up on me and destroy my whole night even when I'm eating something I know is positively gluten free. But, I've only been gluten free for two weeks so I gotta give it some time. I was lucky enough to already be with my boyfriend for four months when this all started. He went with me to every appointment and every trip to the ER thinking I had appendicits or a heart attack (started having terrible chest pains with a racing heart, tingling and numbness in my right hand and foot and vomiting). So I didn't have to explain much to him since he was always there. And now we're at 8 months together and he helps me look at labels and do research. He's the greatest. I had an edoscopy and blood tests done all in September. Blood tests were actully normal except for one that he said wasn't always accurate but the biopsy from the endoscopy showed signs of it plus I have the gene for it too. So I'm still in my beginning stages here but I'm hopeful that I'll feel better soon because I'm not feeling much different with the constant nausea. It's be great to talk to someone my age with this considering the only person I know who does have it is my mom's best friend since elementary school!

  • 1 year later...
Hobbes Rookie

Hi all!

I've noticed that most people on this forum are well over the 25 age mark, but I'm curious to see if there are any younger people on the forum. I'm only 19, and although I find the advice and friendliness of all users to be extremely helpful and welcoming, I would like to talk to someone my own age who is going through this. Someone who knows what it's like to miss school because of celiac issues, or who understand how hard it is to explain your special diet to a potential boyfriend or new friends who weren't there during your diagnosis. Perhaps someone who hasn't dealt with being gluten free for 20+ years or who doesn't have a houseful of kids to feed, because I just can't relate to scenarios like that.

SO! If you're a pretty young person on the forums, let's talk! I've never met anyone my own age with celiac disease, and I'm curious to see how others have dealt with it.

 

I can definitely relate to how you feel. I've never met anyone my own age (or any age!) who has celiac. I'm pretty fortunate though because my girlfriend is very understanding, and won't even touch anything with gluten. I'm 20 btw, working as an intern at 2 different places this summer and it's been quite the challenge so far.  

  • 11 months later...
pghkid33 Rookie

Hi all!

I've noticed that most people on this forum are well over the 25 age mark, but I'm curious to see if there are any younger people on the forum. I'm only 19, and although I find the advice and friendliness of all users to be extremely helpful and welcoming, I would like to talk to someone my own age who is going through this. Someone who knows what it's like to miss school because of celiac issues, or who understand how hard it is to explain your special diet to a potential boyfriend or new friends who weren't there during your diagnosis. Perhaps someone who hasn't dealt with being gluten free for 20+ years or who doesn't have a houseful of kids to feed, because I just can't relate to scenarios like that.

SO! If you're a pretty young person on the forums, let's talk! I've never met anyone my own age with celiac disease, and I'm curious to see how others have dealt with it.

Not sure if you'll read this, but I'm 23 and I'm kind of in the same boat. I have a few friends that have Celiac, but they're not super close to me (both in terms of friendship and proximity) so we don't really talk to much. I'd love to have someone else to talk to, other than damn doctors or nutritionists haha. I know what it's like to miss school, or work, or social gatherings (it sucks). I'm on here a good bit, feel free to shoot me a msg

  • 3 weeks later...
MissMusician Newbie

Hey InducedJoy!

I completely understand what you're going through. 20yo F and my two celiac family members are the only celiacs I know in real life (but one family member lives an hour away and the other doesn't get symptoms so she doesn't take it seriously, while I am super sensitive). It's been almost a year since my celiac diagnosis and I've been gluten free/dairy free ever since, but still getting sick. Missing class because of symptoms is such a pain, not to mention having to miss social events too. Don't even get me started on dating! If you need someone to talk to, feel free to message me! Good luck with everything!  :)

  • 5 months later...
MissL101 Newbie

Hey! I'm Lisa Marie and I'm about to turn 22.

I'm still in the pre-stages of being actually diagnosed but since I went gluten free I'm feeling better. This stinks since now I have to be conscious about the places my friends want to go. Plus side: Gluten free cookies from publix = the bomb.com

  • 10 months later...
katesyl Apprentice
On October 10, 2012 at 11:14 AM, inducedjoy said:

SO! If you're a pretty young person on the forums, let's talk! I've never met anyone my own age with celiac disease, and I'm curious to see how others have dealt with it.

I am twenty-five now. I was diagnosed at age twenty-two. 

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,335
    • Most Online (within 30 mins)
      7,748

    johnfreirefr
    Newest Member
    johnfreirefr
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.