Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Getting Ready For Colonoscopy/endoscopy

KikiB

Recommended Posts

KikiB Explorer
KikiB
Posted

I am scheduled for Tuesday. My instructions say nothing by mouth after midnight. Does that include water? I don't think I can go without water for 12 hours!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

Call your GI doctors office and ask the nurse.

KikiB Explorer
KikiB
Posted
  • Author

Took forever for my doctor's office to call me back. I just wanted to know how everyone else has dealt with this. It's so close, but I'm so tempted to chicken out. The idea of the procedure is kind of freaking me out.

ravenwoodglass Mentor
ravenwoodglass
Posted

Sorry I couldn't be more helpful with your original query. It has been awhile since I had mine done and don't remember whether it was allowed or not.

Hopefully the dr's office gave you a clear answer.

Try not to worry about the tests. The prep is not pleasant but the procedures are usually very easy. Most don't remember anything of them except going to sleep and waking up in the recovery room. Just do be sure someone goes with you as you won't be allowed to drive for the rest of the day.

Celiac Mindwarp Community Regular
Celiac Mindwarp
Posted

I was really scared before mine last month but it was fine. Just a few more days it will be out of the way x

GottaSki Mentor
GottaSki
Posted

Hi Kiki - water is fine!

The usual instructions say clear liquids and jello fine -- just no red, blue, purple jello! I didn't feel like anything but water during the prep.

Honestly, the colon prep is the worst part of the whole deal. You will likely be given sedation meds - not anesthesia - that will make you sleepy and forget most of the procedure.

The information to be gained is very much worth having them done. If you don't have them done there will be a lot of unanswered questions hanging out there.

Even if the tests end up showing nothing or negative - at least you know any damage to your system was not severe.

You have already passed the most important test - you know your health improves gluten-free - these tests will give you more info and I think that info will be comforting in the months and years to come.

Hang in there - only a few more days and you'll be able to remove gluten completely :)

KikiB Explorer
KikiB
Posted
  • Author

I was really scared before mine last month but it was fine. Just a few more days it will be out of the way x

Thank you! I'm a little surprised at how nervous I am!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


KikiB Explorer
KikiB
Posted
  • Author

Even if the tests end up showing nothing or negative - at least you know any damage to your system was not severe.

You have already passed the most important test - you know your health improves gluten-free - these tests will give you more info and I think that info will be comforting in the months and years to come.

Hang in there - only a few more days and you'll be able to remove gluten completely :)

Thanks, Lisa! I didn't think I was going to be such a chicken about it. I'm not looking forward to the prep, but I'm also nervous about the procedures. My insurance company approved the anesthetic, so I'll be out, but definitely feeling like a scaredy-cat. :blink:

GottaSki Mentor
GottaSki
Posted

You are neither chicken nor scaredy-cat. What rational person would not be nervous about doctors sending cameras into places that are generally better left alone. :blink:

I was the first time, but not any of the subsequent times. Just the unknown getting to you - I'd bet on Wednesday you'll be ready to tell others with similar fears that it really was much easier than you thought it would be.

Just imagine Mushroom waving pom poms, IrishHeart jumping up and down and me doing cartwheels to entertain you as you drift off into la-la land on Tuesday :P

KikiB Explorer
KikiB
Posted
  • Author

Just imagine Mushroom waving pom poms, IrishHeart jumping up and down and me doing cartwheels to entertain you as you drift off into la-la land on Tuesday :P

That's so sweet, it made me tear up. That's exactly what I'm going to think about! :wub:

nicoleashley Rookie
nicoleashley
Posted

nothing by mouth after midnight means just that, nothing by mouth after midnight. You can have clear liquids up until midnight. You can only have sips of water to take medication like blood pressure medication if you absolutely need it. Don't worry about becoming dehydrated, they will start an IV and give you fluids as soon as you get to wherever the endoscopy is being done. Good luck.

KikiB Explorer
KikiB
Posted
  • Author

I had my tests yesterday. Should have results in 10 days or so. I had gluten free chicken soup when I got home, but my stomach has hurt ever since. Still hurts. Is that normal?

GottaSki Mentor
GottaSki
Posted

Hmmmm....what type of hurt/pain? One of my endos I felt some discomfort when I ate for a day or so after - not sure but thought it might be where they took samples. Do you know if they took samples from different parts -- like your stomach in addition to small intestine?

KikiB Explorer
KikiB
Posted
  • Author

Hmmmm....what type of hurt/pain? One of my endos I felt some discomfort when I ate for a day or so after - not sure but thought it might be where they took samples. Do you know if they took samples from different parts -- like your stomach in addition to small intestine?

I do know she took samples from other areas, but I don't know where, although I thought it was the colon. But I don't really know. Maybe that explains it though.

Of course, she told me about the biopsies when I was coming out of the anesthesia -- so no wonder I don't remember!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. asaT
      - asaT replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      nothing has changed

      Scott, I am mostly asymptomatic. I was diagnosed based on high antibodies, low ferritin (3) and low vitamin D (10). I wasn't able to get in for the biopsy until 3 months after the blood test came back. I was supposed to keep eating gluten during this time. Well why would I continue doing something that I know to be harmful for 3 more months to just get...
    2. nanny marley
      - nanny marley replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      IBS-D vs Celiac

      I have had a long year of testing unfortunately still not diagnosed , although one thing they definitely agree I'm gluten intolerant, the thing for me I have severe back troubles they wouldnt perform the tests and I couldn't have a full MRI because I'm allergic to the solution , we tryed believe me I tryed lol , another was to have another blood test after...
    3. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      45

      Supplements for those Diagnosed with Celiac Disease

      I was undiagnosed for decades. My ferritin when checked in 2003 was 3. It never went above 10 in the next 20 years. I was just told to "take iron". I finally requested the TTgIgA test in 2023 when I was well and truly done with the chronic fatigue and feeling awful. My numbers were off the charts on the whole panel. they offered me an endoscopic biopsy ...
    4. par18
      - par18 replied to Woodster991's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Is it gluten?

      Scott, I agree with everything you said except the term "false negative". It should be a "true negative" just plain negative. I actually looked up true/false negative/positive as it pertains to testing. The term "false negative" would be correct if you are positive (have anti-bodies) and the test did not pick them up. That would be a problem with the "test...
    5. SilkieFairy
      - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      IBS-D vs Celiac

      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,342
    • Most Online (within 30 mins)
      7,748
    Muhammad
    Newest Member
    Muhammad
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • asaT
      nothing has changed

      By asaT · Posted

      Scott, I am mostly asymptomatic. I was diagnosed based on high antibodies, low ferritin (3) and low vitamin D (10). I wasn't able to get in for the biopsy until 3 months after the blood test came back. I was supposed to keep eating gluten during this time. Well why would I continue doing something that I know to be harmful for 3 more months to just get this test? So I did quit gluten and had the biopsy. It was negative for celiacs. I continued gluten free with iron supps and my ferritin came back up to a reasonable, but not great level of around 30-35.  Could there be something else going on? Is there any reason why my antibodies would be high (>80) with a negative biopsy? could me intestines have healed that quickly (3 months)?  I'm having a hard time staying gluten free because I am asymptomatic and i'm wondering about that biopsy. I do have the celiacs gene, and all of the antibody tests have always come back high. I recently had them tested again. Still very high. I am gluten free mostly, but not totally. I will occasionally eat something with gluten, but try to keep to a minimum. It's really hard when the immediate consequences are nil.  with high antibodies, the gene, but a negative biopsy (after 3 months strict gluten-free), do i really have celiacs? please say no. lol. i think i know the answer.  Asa
    • nanny marley
      IBS-D vs Celiac

      By nanny marley · Posted

      I have had a long year of testing unfortunately still not diagnosed , although one thing they definitely agree I'm gluten intolerant, the thing for me I have severe back troubles they wouldnt perform the tests and I couldn't have a full MRI because I'm allergic to the solution , we tryed believe me  I tryed lol , another was to have another blood test after consuming gluten but it makes me so bad I tryed it for only a week, and because I have a trapped sciatic nerve when I get bad bowels it sets that off terribly so I just take it on myself now , I eat a gluten free diet , I'm the best I've ever been , and if I slip I know it so for me i have my own diagnosis  and I act accordingly, sometimes it's not so straight forward for some of us , for the first time in years I can plan to go out , and I have been absorbing my food better , running to the toilet has become occasionally now instead of all the time , i hope you find a solution 🤗
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      I was undiagnosed for decades. My ferritin when checked in 2003 was 3. It never went above 10 in the next 20 years. I was just told to "take iron". I finally requested the TTgIgA test in 2023 when I was well and truly done with the chronic fatigue and feeling awful. My numbers were off the charts on the whole panel.  they offered me an endoscopic biopsy 3 months later, but that i would need to continue eating gluten for it to be accurate. so i quit eating gluten and my intestine had healed by the time i had the biopsy (i'm guessing??). Why else would my TTgIgA be so high if not celiacs? Anyway, your ferritin will rise as your intestine heals and take HEME iron (brand 4 arrows). I took 20mg of this with vitamin c and lactoferrin and my ferritin went up, now sits around 35.  you will feel dramatically better getting your ferritin up, and you can do it orally with the right supplements. I wouldn't get an infusion, you will get as good or better results taking heme iron/vc/lf.  
    • par18
      Is it gluten?

      By par18 · Posted

      Scott, I agree with everything you said except the term "false negative". It should be a "true negative" just plain negative. I actually looked up true/false negative/positive as it pertains to testing. The term "false negative" would be correct if you are positive (have anti-bodies) and the test did not pick them up. That would be a problem with the "test" itself. If you were gluten-free and got tested, you more than likely would test "true" negative or just negative. This means that the gluten-free diet is working and no anti-bodies should be present. I know it sounds confusing and if you don't agree feel free to respond. 
    • SilkieFairy
      IBS-D vs Celiac

      By SilkieFairy · Posted

      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have 4 kids, and I really want to know. If I really do have it then they may have increased risk. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.