Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Should I Be Doing More To Help My Son?

krisb

Recommended Posts

krisb Contributor
krisb
Posted

Since Kevin's colonoscopy and scope the Dr. said to start the gluten free diet. I did that but is there more I should do to help him heal? He is anemic, I'm assuming from his ulcerated intestine's. I wonder if he should have a suppliment or probiotic. I have a multi vitamin w/flouride but they are so brightly colored and I'm not sure if they have gluten. I don't give them to him. I feel like he needs something but the GI didn't say. I go back to her in 3 weeks.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


nettiebeads Apprentice
nettiebeads
Posted
Since Kevin's colonoscopy and scope the Dr. said to start the gluten free diet. I did that but is there more I should do to help him heal? He is anemic, I'm assuming from his ulcerated intestine's. I wonder if he should have a suppliment or probiotic. I have a multi vitamin w/flouride but they are so brightly colored and I'm not sure if they have gluten. I don't give them to him. I feel like he needs something but the GI didn't say. I go back to her in 3 weeks.

<{POST_SNAPBACK}>

I'm sure you can call your GI and leave a message with her nurse with all of these questions. It does take time to heal, youth is on his side. Just make sure his calories are high protein/high iron to help his anemia, with vita C to help his body absorb the iron. And because of his malabsorption, you may want to ask about a multi vitamin/multi MINERAL supplement. Minerals are often overlooked, but very important too. Is he starting to feel better, I hope?

krisb Contributor
krisb
Posted
  • Author
Is he starting to feel better, I hope?

He says he is feeling better. He hasn't had any belly aches and it looks like he gained 2 pounds already! He hasn't been very gassy either. My younger boys were diagnosed the same time as Kevin. There belly aches are getting better too. They didn't go as long as my oldest with celiac so I believe there damage isn't as bad.

nettiebeads Apprentice
nettiebeads
Posted
He says he is feeling better. He hasn't had any belly aches and it looks like he gained 2 pounds already! He hasn't been very gassy either. My younger boys were diagnosed the same time as Kevin.  There belly aches are getting better too. They didn't go as long as my oldest with celiac so I believe there damage isn't as bad.

<{POST_SNAPBACK}>

Very glad to hear that! But I would try to leave some questions for your GI; if she's a good dr. she would understand your concerns and worries and address them w/o waiting for your next appt by having her nurse call you back or leave a written recommendation with the receiptionist for you to pick up later.

hilaryw Newbie
hilaryw
Posted
Since Kevin's colonoscopy and scope the Dr. said to start the gluten free diet. I did that but is there more I should do to help him heal? He is anemic, I'm assuming from his ulcerated intestine's. I wonder if he should have a suppliment or probiotic. I have a multi vitamin w/flouride but they are so brightly colored and I'm not sure if they have gluten. I don't give them to him. I feel like he needs something but the GI didn't say. I go back to her in 3 weeks.

<{POST_SNAPBACK}>

My daughter (newly diagnosed) is also anemic. We are supposed to be giving her iron. She couldn't tolerate it in liquid form so we give her Solaray cherry chewable multivitamins that have an adequate amount of iron. I called Soloray, they are gluten free. My daughter will have another CBC in 6 weeks, but I think her iron level must be better b/c she looks and feels so much better already. I would definitely want an iron supplement of some form if I were you. Call the doctor, I'm surprised he/she didn't prescribe something. Our doc. was concerned about the anemia (hemoglobin 9.6.)

krisb Contributor
krisb
Posted
  • Author
My daughter (newly diagnosed) is also anemic.  We are supposed to be giving her iron.  She couldn't tolerate it in liquid form so we give her Solaray cherry chewable multivitamins that have an adequate amount of iron.  I called Soloray, they are gluten free.  My daughter will have another CBC in 6 weeks, but I think her iron level must be better b/c she looks and feels so much better already.  I would definitely want an iron supplement of some form if I were you.  Call the doctor, I'm surprised he/she didn't prescribe something.  Our doc. was concerned about the anemia (hemoglobin 9.6.)

<{POST_SNAPBACK}>

He doesn't go back to the GI until the end of October. She is on vacation. Maybe I will bring him to the ped in the meantime. I have a lot of questions that aren't getting answered. I worry about him. I feel like he has so many Dr.'s but they all assume the other is taking care of him.

Kasey'sMom Enthusiast
Kasey'sMom
Posted

My dd Dr. suggested that I give her chlorophyl drops for low iron levels. He said she would probably not like the taste. :P I did however find a company that makes a mint flavored version and they confirmed it is gluten-free and soy free. Here's the company that has the mint chlorophyl.....

Open Original Shared Link

I haven't been able to confirm that Desouza's chlorophyl is gluten-free but the have a wonderful article about chlorophyl.

Open Original Shared Link

Also Probiotics can be very helpful for the intestines. :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


tarnalberry Community Regular
tarnalberry
Posted
Since Kevin's colonoscopy and scope the Dr. said to start the gluten free diet. I did that but is there more I should do to help him heal? He is anemic, I'm assuming from his ulcerated intestine's. I wonder if he should have a suppliment or probiotic. I have a multi vitamin w/flouride but they are so brightly colored and I'm not sure if they have gluten. I don't give them to him. I feel like he needs something but the GI didn't say. I go back to her in 3 weeks.

<{POST_SNAPBACK}>

If he's iron-deficient anemic, then a multi-vit with iron is a good idea, or making sure he drinks orange juice or something else with vit C with meat or eggs. He shouldn't need flouride in his multi-vit, particularly if you live in an area where your water is flouridated, so I wouldn't worry about that. There are a lot of vitamins (without colors and additives), so you might want to spend a little while browsing a local health food store for something YOU are happy with. (The workers there can help, but they are not the fountain of knowledge that many try to pass themselves off as.)

Guest nini
Guest nini
Posted

When my dd first went gluten-free, we gave her a chewable multi vitamin that I had confirmed was gluten-free... I found it at Dollar Tree of all places... She also drank Pediasure (didn't really like it that much).

I have found a company (Market America) that has a line of supplements (Isotonix) that come in a powder form and you mix them with water in a pre measured cap/cup. They have a childrens "Might A Mins" and I take a digestive enzyme and b-12. Google Market America and you can find a rep through the website. It's kinda like Mary Kay or Avon, you have to find someone who sells it.

Indea88 Newbie
Indea88
Posted

Our Ped GI said Flinestones? There has to be a better multi for kids that is gluten-free. Ive been on the hunt as well. Havent found one yet....

Guest Lucy
Guest Lucy
Posted

don't flinstones contain gluten? I don't have a bottle handy, but I thought they did?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,782
    • Most Online (within 30 mins)
      7,748
    BH1951
    Newest Member
    BH1951
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • nanny marley
      Manitol and mri

      By nanny marley · Posted

      Hi I've been told I need a MRI on my bowels , I was booked for a colonoscopy, but because of my sever back issues and trapped nerve it can't be done , the nurse told me I will have to have a manitol drink a hour before the scan , I'm just a bit worried has I have issues with sweeteners like even a little,  I get a weird throat and ears and I've read it is a similar substance , not sure if anyone has had one of these scans or could give me some advise on the drink prep thanks in advance 😄
    • Colleen H
      Ibuprofen

      By Colleen H · Posted

      Ok thank you.  Me either 
    • Colleen H
      Celiac attack confusion and anxiety

      By Colleen H · Posted

      Hi all ! Can a celiac attack be so intense that it causes your entire body to work in reverse? Meaning really bad pain,  neuropathy and muscle,  jaw pain,  the stomach issues , Horrible anxiety and confusion??  I had a Tums and you would think I ate poison. My jaw and stomach did not like it . Not the norm for me. Things that are simple are just out of control. Anyone ever have this happen??  I'm trying to figure out what I ate or did to bring on a celiac like attack. I had an idea before but yesterday I didn't have any gluten unless it was in a medication ?! Any positive suggestions ??  Thank you 
    • Scott Adams
      Gluten free stuff

      By Scott Adams · Posted

      The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
    • trents
      Gluten free stuff

      By trents · Posted

      Tammy, in the food industry, "gluten free" doesn't mean the same thing as "no gluten". As Scott explained, the FDA (Food and Drug Administration) allows food companies to use the "gluten-free" label as long as the product does not contain more than 20 ppm (parts per million) of gluten. This number is based on studies the FDA did years ago to determine the reaction threshold for those with celiac disease. And the 20 ppm figure works for the majority of celiacs. There are those who are more sensitive, however, who still react to that amount. There is another, stricter standard known as "Certified Gluten Free" which was developed by a third party organization known as GFCO which requires not more than 10 ppm of gluten. So, when you see "GFCO" or "Certified Gluten Free" labels on food items you know they are manufactured with a stricter standard concerning gluten content. Having said all that, even though you may read the disclaimer on a food item that says the spices may contain wheat, barley or rye (the gluten grains), you should be able to trust that the amount of gluten the spices may contain is so small it allows the total product to meet the requirements of gluten free or certified gluten free labeling. I hope this helps.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.