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Gabapentin 100 Mg Mfg By Actavis

TiaMichi2

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TiaMichi2 Apprentice
TiaMichi2
Posted

This is the generic for Neurontin, and I have just been prescribed it for FM. Wondering if it is gluten-free, on the Alpha Drug List it is listed, but it does not reference this manufacturer.

Any help will be greatly appreciated, thanks :)

Miriam

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mushroom Proficient
mushroom
Posted

Hi Miriam: I would suggest firing off an email to them: Open Original Shared Link and asking them.

TiaMichi2 Apprentice
TiaMichi2
Posted
  • Author

Hi Miriam: I would suggest firing off an email to them: Open Original Shared Link and asking them.

Thanks Mushroom, I will send them an email, I have their phone number also but I was hoping of being able to take one tonight. No choice but to wait until tomorrow, It's unfortunate that we have to go through all this hassle over medications.

Miriam

love2travel Mentor
love2travel
Posted

I used to take it and it was gluten free. However, you must contact the manufacturer for every batch just to be sure. Hope it works for you. Unfortunately it did absolutely nothing for me. :( Let us know how it goes - I am always curious about others who are prescribed it.

TiaMichi2 Apprentice
TiaMichi2
Posted
  • Author

Thanks for the update Kuhar, I am still waiting for a response from Activis. If it is gluten-free and it works, I'll post about it. :)

love2travel Mentor
love2travel
Posted

Thanks for the update Kuhar, I am still waiting for a response from Activis. If it is gluten-free and it works, I'll post about it. :)

Yes - please do! I wish you great success with it. :)

GF Lover Rising Star
GF Lover
Posted

I took up to 2000 mg a day. No help after 9 months. I still have a bunch I try every so often when I'm in more pain then usual.

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love2travel Mentor
love2travel
Posted

I took up to 2000 mg a day. No help after 9 months. I still have a bunch I try every so often when I'm in more pain then usual.

Same here. The 2000 mg did nothing but make me feel like a stumbling dork, bumping into walls and such. I tried another again two nights ago (I am always hopeful!) and it did not help.

TiaMichi2 Apprentice
TiaMichi2
Posted
  • Author

2000mg wow.....that's quite a bit, I get relief from Flexeril, I am thinking of sticking with it.

love2travel Mentor
love2travel
Posted

Really? Flexeril did absolutely zero for me, either. Happy it works for you! Hopefully some day I can find something that helps - I've tried over 20 meds. :mellow:

TiaMichi2 Apprentice
TiaMichi2
Posted
  • Author

Really? Flexeril did absolutely zero for me, either. Happy it works for you! Hopefully some day I can find something that helps - I've tried over 20 meds. :mellow:

Yes, guess I am lucky in that sense, I can not take any narcotics. I also have a very high tolerance for pain, as long as the medications takes some of the edge off, I have learned relaxation/meditation techniques that help me manage the rest. It took a long time to learn how to truly relax, but so far so good.

I have Osteoarthritis, Bursitis, FM and a lot of other issues, it all started about 7 years ago, at the same time that my body rejected "the evil Wheat", I always had some symptoms of Celiac, but never to the degree that it presented itself then.......Perimenoupase, and Celiac came at the same time :wacko:

Have you ever tried relaxation/meditation?

GF Lover Rising Star
GF Lover
Posted

Really? Flexeril did absolutely zero for me, either. Happy it works for you! Hopefully some day I can find something that helps - I've tried over 20 meds. :mellow:

Hi Love2Travel

Have you tried Tizanidine? It's an alternative to Flexeril (muscle relaxer ). It works some for me. Along with some tramadol it takes the edge off.

Colleen

love2travel Mentor
love2travel
Posted

Hi Love2Travel

Have you tried Tizanidine? It's an alternative to Flexeril (muscle relaxer ). It works some for me. Along with some tramadol it takes the edge off.

Colleen

Hi, Colleen. I've used both Tizanidine and Tramadol together and it did nothing. I could not even tell I was taking anything! <_<

But my pain goes well beyond FMS. I have chronic back pain from herniated disks, IT band syndrome, chostocondritis (chest), arthritis, etc. And I am still young (relatively). :( I go for weekly massages, have seen the chiro when necessary, done pilates, swim, had laser therapy, physiotherapy, acupuncture and so on. I was hoping that once I was gluten free things would improve but they have become worse the last few months.

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  • Posts

    • captaincrab55
      Finding gluten free ingredients

      By captaincrab55 · Posted

      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      Food and environmental allergies involve IgE antibodies.  IgE antibodies provoke histamine release from mast cells.   Celiac disease is not always visible to the naked eye during endoscopy.  Much of the damage is microscopic and patchy or out of reach of the scope.  Did they take any biopsies of your small intestine for a pathologist to examine?  Were you given a Marsh score? Why do you say you "don't have intestinal damage to correlate with lifelong undiagnosed celiac disease"?   Just curious.  
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