Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

16 Month Old Just Got Diagnosed With Celiac. Now What?!


Mizyellow

Recommended Posts

Mizyellow Rookie

Hello all,

My name is Raegan and my son Harrison was just diagnosed with celiac. He was born fussy. He had colic, vomiting, gas, foul stools, and most recently weight loss and failure to thrive. He has a mild IGa deficiency and due to continued weight loss the drs at Children's performed a scope Monday morning (not my favorite morning) and we got the results back today as indicative for celiac. I am actually fairly familiar with celiac and understand the basics. However I am unsure of how throuough I need to be. Do I get rid of my toaster? I am planning to just be gluten free in this house at least at first to minimize the accidental exposure. I am nursing so i know I need to be strictly gluten-free until i am done. If someone could give me a few pointers on what to do specfifically around the kitchen to prepare for this new lifestyle. We are already egg and dairy free due to allergies so the actual food part will be easy enough. Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



shadowicewolf Proficient

Yep, you'll need a new toaster. And you also should replace anything thats been scratched (such as pans and pots), colenders that have been used for wheat pasta, wooden spoons, plastic utenciles, and such.

Look at the bright side, it got caught relatively early :)

mommida Enthusiast

As a nursing mother to a Celiac you need to check your health care items too. (skin lotions, deodorant, shampoo and conditioner) My son loved to grab my hair and my daughter would pet my face when they were nursing. :rolleyes:

You need to be as careful as you can be. There just is no way to tell you how much exposure is safe. It is the amount your son's immune system recognizes as gluten that triggers the response. Some people are very sensitive with violent gut reactions and some people have really no sysptoms and get diagnosed later in life for anemia.

It is going to be a bit harder with the egg free- dairy free restrictions for gluten free, but it is doable. :)

Ollie's Mom Apprentice

Just wanted to say that if you suspect you may have a problem with gluten as well (or even if you don't!) You should request a full celiac blood panel for yourself asap. Celiac is hereditary. If you go gluten-free for nursing, then realize some of your "symptoms" go away, it would be awful if you couldn't consume gluten for a challenge at a later time. Just some food for thought.

Mizyellow Rookie

Lotions? How do I check those out? I never thought about those. I went shopping this evening to try to replace MY ENTIRE kitchen's worth of foods and I was incredibly overwhelmed. If it didn't have gluten, it had egg. The magnitude it starting to set in. I am terrified to accidentally poison him with gluten. H e puts EVERYTHING in his mouth still. Does it mean that it is really bad if it showed up this early?

StephanieL Enthusiast

We are dairy, egg, gluten and all nut free. My DS was dx at 3. The age at which they are dx doesn't mean it's any worse BUT it is great because the sooner it's found and the sooner your little one goes gluten-free, the better for him!!

Takala Enthusiast

You can check out lotions, etc, by doing a search engine query of:

gluten free name of item you are wanting to purchase

such as "gluten free baby lotion"

I have very sensitive skin :rolleyes: and have been known to react to unknown ingredients in some baby stuff :angry: such as the (probably) cross contaminated cornstarch in non-talc baby powders, some "natural" deodorants <_< , shampoos with wheat (triticum) or cross contaminated oats (sativa), etc. I got so frustrated with some of these expensive, supposedly "allergy-free" baby product companies which kept changing their ingredients lists from one status to another, (yes, I am pointing to you, "Burt's Bee's, and that soy crap you now use, because I have a dog with allergies and I don't want to cross contaminate HIM if he licks me) I have an emergency fallback system of using just a few ingredients and actually getting BETTER results, anyway.

Deodorant in a pinch: dry baking soda. It seems this would not work, but it works really, really well.

Hair rinse: pure apple cider vinegar, mixed 1 part to 7 parts water, (and in a spray bottle for a detangler) this corrects the pH and makes hair shiny and ease to comb out, and it's CHEAP, besides that

hair conditioner: pure shea butter or pure coconut oil, a tiny pea sized dab rubbed into your hands and then thru your hair, after the cider rinse

moisturizer: pure shea butter or pure coconut oil or pure almond oil

Soap: been using some Alaffia African liquid soaps (some of these are labeled gluten free) or the Dr. Bronner's liquid soaps, or plain Ivory bar soap. There are other shampoos and soaps that are also gluten free, but these are available at the places I am purchasing the gluten free ingredients I use in baking, and they will lather in our well water, which is another characteristic that most people here are not having to deal with.

My husband uses Dove brand shampoos because they are supposed to call out the gluten on their labels, but, they really a bit too perfumey for me. He has super short hair so he isn't having to deal with my hair, which is longer, thicker, more ornery, drier, colored, and seemingly water and soap repellant, trying to get something shampoo- like to actually make suds in it. :rolleyes: Good Gosh, I would have to use a quarter cup of shampoo and half the water heater tank to then get it out ! Some people with this type of hair will just rinse their hair with plain water daily, or a little bit of baking soda in water, then condition it, which works well in the summer for me. (You can also visit the Long Hair Community blog, category "natural hair care," or "co conditioning" for more ideas, which also work for shorter hair. Uh oh, I just checked their site and they are having an ongoing upgrade right now which has made some of their old threads disappear. Anyway, some people don't use shampoo very often, as I have explained, just conditioned and then rinsed well with water and then used vinegar and a small amount of oil. )

__________

As for the kitchen, if you are having to work thru your kitchen items, at the minimum get a new toaster and the toaster oven is handy as the racks can be washed or scrubbed. New colander for gluten free pasta. New cutting board. New spatula. New dish sponge/scrubbie type of thing. If your old sharp knife holder is full of crumbs, out it goes. New plastic storage type containers for leftovers. (if you like Cool Whip, you're in luck, as these make handy ones). I also got new potholders and new bakeware, but not all at once, just what I had to have. If you have old teflon, it goes bye- bye. If you have old cast iron, burn off the old finish in the oven, and re- season it. (I clean dedicated cast iron with water, baking soda, and cider vinegar and a paper towel). As you purchase these, get a pack of sharpie pens and make each new item gluten-free or GLUTEN FREE so there is no question by other people on its status. If you need to roll out a pie crust, use wax paper and a regular drinking glass, this will save you having to replace the rolling pin right away.

If you want to test out recipes for breads and cakes, I suggest using the bun-in-a-cup type recipes (with the substitute for egg, of course) that are baked in the microwave in about a minute and a half, using small, single serving ceramic dishes which are easy to clean. This will keep you from making a large batch of something that you end up not liking, and then spending a big gob of money on it. This way, also, if you keep the ingredients on hand, you can then quickly make up a fresh sandwich bun or two if you are far away from the store and need it in a hurry.

Gluten free rice cakes and corn tortillas are very versatile and can be used for most bread situations in a pinch, as can rice pasta, so don't worry. This is do- able.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,166
    • Most Online (within 30 mins)
      7,748

    melindakathleen
    Newest Member
    melindakathleen
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • DAR girl
      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...