Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Very Hungry

glutenfree015

Recommended Posts

glutenfree015 Rookie
glutenfree015
Posted

Hey everyone!

I’ve been gluten free for 4 months now( soy and dairy free for 2.5 months), and though I struggled a lot at first, things finally seem to be settling down. I do have a quick question for everyone: now that I have been gluten free for 4 months, I am hungry all of the time! I never used to eat much before going gluten free, and even for the first few months gluten free I didn’t have much of an appetite. I lost about 10 pounds. Now, if I don’t eat a lot of calories and a lot of carbs, I get dizzy, irritable, weak, and exhausted. My legs also cramp up, which is weird. It tends to get worse if I consistently eat fewer than 2500 calories per day; if that happens I get really sick and have to spend the whole day eating to correct it.

I have a doctor’s appointment in a few weeks, but if this has happened to any other celiacs, I would love to know.

Thanks!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


bartfull Rising Star
bartfull
Posted

Vitamin deficiencies?

glutenfree015 Rookie
glutenfree015
Posted
  • Author

I am anemic and vitamin D deficient, but taking supplements! Everything else looks good.

Hala Apprentice
Hala
Posted

I've only been gluten-free for 6 weeks but I'm feeling the same way....it's really annoying!

Lizanne Newbie
Lizanne
Posted

Hi- I know how you feel! I found out I had Celiac Disease in July, so I've been gluten free about 5 months now. I am constantly hungry, even after I eat a meal I feel starving. I went from 140 lbs to 110 currently. Dr said I would level off with my weight, but so far keep losing pounds. Bloodwork is fine, no deficiencies.

rosetapper23 Explorer
rosetapper23
Posted

I'd add potassium, magnesium, and chelated manganese to the supplements you're taking. They may alleviate the cramping.

  • 2 weeks later...
Trelliemae Newbie
Trelliemae
Posted

I was hungry all the time after switching to gluten-free. I have always been low-iron. My hematologist prescribed intravenous iron. I'm not hungry all the time any more. I have more energy than ever and I don't chew ice all the time!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • 2 weeks later...
KristenS Rookie
KristenS
Posted

I was hungry all the time after switching to gluten-free. I have always been low-iron. My hematologist prescribed intravenous iron. I'm not hungry all the time any more. I have more energy than ever and I don't chew ice all the time!

I feel like I am STARVING all day every day! My iron infusions are in 3 weeks and you have given me hope that they may help aleviate this insatiable hunger.

Opa3 Apprentice
Opa3
Posted

Eat more protein.

1desperateladysaved Proficient
1desperateladysaved
Posted

I ran out of iron supplement lately and got insatiable appetite. I don't understand all of it, but I think I have hypoglycemia issues going along with it. Maybe it is just because I have been succombing to eating alot of fruit.

Diana

tarnalberry Community Regular
tarnalberry
Posted

One hallmark of hypoglycemia is feeling hungry again 1-2hrs after eating. Especially if those meals/snacks are high in carbs.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,704
    • Most Online (within 30 mins)
      7,748
    Beth Clower
    Newest Member
    Beth Clower
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Grahamsnaturalworld
      Refractory celiac disease

      By Grahamsnaturalworld · Posted

      Where can I find a gastro in adelaide who can diagnose refractory celiac disease have seen 3 so far and don't understand the most obvious question, why my celiac symptoms did not resolve on a gluten free diet the symptoms just got worse as it is attacking my nervous system. 
    • ShariW
      GliadinX/Tolerase G

      By ShariW · Posted

      I recently traveled to Spain and Portugal. I was with a tour group, they knew I needed to be gluten-free and made sure the kitchens preparing the group meals were aware. But just in case, I took Gliadin-X with me and took it for every evening meal - and most other meals. The one time I got glutened was from lunch early in the trip - had to be from cross-contamination. I had not taken Gliadin-X before that meal, which made for a pretty miserable day. Learned my lesson... 😞 
    • Hummer01
      Diagnosis confusion

      By Hummer01 · Posted

      Hi trents, thanks for the response.  The 2nd opinion doctor said that if my CRP is still elevated at that time, he would advise me to look at Crohns/UC or another autoimmune issue. The colonoscopy I had this year seemed to rule those 2 out for now so he still believed celiac may explain it. No previous doctors have suggested any explanation for it even after calling to tell me it was a concerning result.  I guess it feels tough knowing I have positive blood testing, permissive genetics, and visible duodenum changes... and somehow it's NCGS instead of celiac. I'm still surprised the biopsies came back negative when the doctor was so sure they would be positive.
    • trents
      Diagnosis confusion

      By trents · Posted

      "He also said that my CRP should return to a normal level at this time if the culprit was inflammation in the small intestine due to celiac." But with if the elevated CRP levels are caused by some other inflammatory process going on in your body? "She also said that my positive EMA isn't valuable because it has "a high false positive rate." Totally wrong! This is a highly accurate test for celiac disease, that requires specialized expertise to perform and interpret, and it is more expensive than other blood tests. It is generally used as a last test to confirm celiac disease after a positive tTG-IgA test. The sensitivity of a test refers to its ability to correctly identify individuals with the condition. For the EMA-IgA blood test, the sensitivity is generally very high, ranging from 90% to 98%. This means that the test can accurately detect celiac disease in a significant percentage of people who have the condition. The specificity of a test refers to its ability to correctly identify individuals without the condition. For the EMA-IgA blood test, the specificity is also high, typically around 95% to 100%. This indicates that the test can effectively rule out celiac disease in individuals who do not have the condition. Taken from the following article: Looking at the whole picture, I am wondering if you are transitioning from NCGS to celiac disease. Some experts in the gluten disorder field believe NCGS can be a precursor to celiac disease.
    • Hummer01
      Diagnosis confusion

      By Hummer01 · Posted

      Hi all, just wanted to post an update.  I have been gluten free for about 1.5 months now and seeing improvement already in the bathroom.  Recently I had a visit with another GI doctor for a 2nd opinion. He said that while my blood tests and scope are not a "slam dunk" for celiac, he believes it's more likely than not that I have it. His advice was to stay with a celiac-level gluten free diet (no CC) for 6-12 months then retest to make sure TTG-IGA is still negative. He also said that my CRP should return to a normal level at this time if the culprit was inflammation in the small intestine due to celiac.  Today I had a follow up with the original GI that performed the scope. She is confident it is NCGS and says I can still have gluten sometimes. When I asked about the visible duodenum damage, she said it is just "irritation" from gluten because the biopsies were negative. She also said that my positive EMA isn't valuable because it has "a high false positive rate."  I guess I'm having trouble reconciling the totally different advice from these 2 GI's. I want to believe the new doctor more at this point because what he said just makes more sense to me, and he gave an actionable timeline for possible next steps. Feeling lost and disappointed at this point and wanted to write it down here in case anyone has input. Thank you.   
×
×
  • Create New...