Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Feeling Great But Can't Eat!


AshBil

Recommended Posts

AshBil Rookie

Since I was diagnosed in October, I've been doing really well on this diet. In the beginning, I was still feeling terrible and thought I was doing something wrong but then I did more research and saw that you won't feel better overnight so I held out hope. I started getting better at reading labels and knowing what to look for and realized that I wasn't eating some of the right stuff. So October and November were still very iffy for me. That darn nausea just wouldn't leave me alone! But finally and happily during the last couple of weeks of December, I felt so much better. No sharp stomach pains and no extreme nausea. It has been glorious to not feel like dying everyday again. I'm finally healing and it's amazing. I got thrown a curveball though the week before Christmas. I had almost a full week of no nausea and then got a stomach bug so that was no fun at all haha. Once that went away, I went back to feeling just fine. I still do! I'm so happy at the way I feel. And since being on this diet and not being able to eat all the fast food and junk i used to eat, I've lost 13 pounds. I can finally live my life again without pain all the time. It's amazing. But one thing has been happening lately ever since I started feeling better and not feeling sick anymore. I get full so quick. Way too quick. I eat a couple of bites of something and get so full that I feel like I ate a five course meal. Like yesterday, I ate a small bowlfull of Tostitos (my fave go-to snack lately) in the afternoon. It was the first thing I ate yesterday. It filled me up for the rest of the night. We had cheesburgers for dinner and mac n cheese (mine obvioulsy with gluten free pasta) and I couldn't even eat it. I was still so full hours later from the chips that I took two bites of the macaroni and ate only half of one of the cheeseburgers when we each could have three and was ready to burst i felt so full. Is this normal when you start feeling better? Is it normal at all? I know I heard that usually when you go on this diet you actually start to feel really hungry but it seems I'm in the other direction. I feel like I'm barely eating everyday because any little thing I eat fills me up for the rest of the day. And after all that, I woke up today still feeling full from yesterday. I'm forcing some food into me right now because I have to eat obviously but I don't really want it. Just wondering if anyone has any insight to this. Thanks!! And happy new year!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cavernio Enthusiast

My celiac symptoms included bloating, although I would still cram food in there and feel hungry despite my bloated stomach :-p

You may feel better being lactose free. Bloating is a sign of lactose intolerance which you've probably heard a million times by now, is standard problem for celiacs.

tarnalberry Community Regular

Those are very calorie dense foods... Do you feel the same if you have a bit of salad or some carrots?

AshBil Rookie

I'm not bloated, I just have that feeling as if I ate a lot when I only ate a small amount of chips. It's the full feeling on the inside without the bloat. It's just weird that a small amount of chips could fill me up so quick and last so long. It's like that with anything I eat lately. The first thing I eat that day no matter what it is, it intantly fills me up for the rest of the day. Like I said, those Tostitos filled me up so much I couldn't even eat the cheeseburger or the mac n cheese. I had to force small bites down. It's been going on for the last couple of weeks maybe.

nvsmom Community Regular

I find that I get full much much faster than before I was gluten-free. I usually only eat off salad plates because I get enough from that... I'm going with it since I ate too much before. ;)

LauraB0927 Apprentice

Have you tried taking digestive enzymes? It might be able to help you break down the food more...

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,549
    • Most Online (within 30 mins)
      7,748

    Blough
    Newest Member
    Blough
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.