Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Coming To Terms


Chase From ATL

Recommended Posts

Chase From ATL Newbie

Hello everyone. I'm Chase From Atlanta and I have come to the realization that I may be a Celiac sufferer.

It all really started in 2002 when I was living in Sandy Springs, GA. I had to make several trips to the bathroom which made me very late for work on numerous occasions. I hadn't been eating that much since my income was paying the bills and my then-fiancee was ill with ovarian cysts. Once I lost the job at the hospital, I went to work for various security companies both as a courtesy officer and an armed guard. In 2003-2004 my symptoms had gotten worse.

I figured it was lactose intolerance so I cut out ALL dairy products. It gave me only limited relief. Since that time, I was "bandaging a bullet wound" by readjusting my schedule in order to cope with my toilet trouble. It's 3 BM within two hours before I can go ANYWHERE. Due to this, I get around 5 hours of sleep on work nights. Some places in ATL make it dang near impossible to use a restroom unless you are a paying customer.

Still not accepting the fact that it may be gluten, I kept eating my favorite foods: fried chicken, burgers, fried shrimp and my Kryptonite: Glazed Honey Buns! My appetite can be ridiculous! I crave sugar, bread, fried foods and starch. I've had panic attacks recently including this irritating sensation known as globus, where it feels as though I have a knot jammed in my throat!

Other symptoms I have include brain fog, lack of concentration, mood swings, low energy, insomnia, muscle cramps, depression, bloating, and oily stools. Due to this condition, along with the chronic diarrhea, it has become VERY difficult for me to even CONSIDER a career in law enforcement! I have also dropped out of college; since it's difficult to stay in class without having to find the latrine or stay awake. I also remember being diagnosed with asthma back when I was 14.

In August 2012, my symptoms have worsened to the point I resigned from my last security job. Since then, I've been anxious, depressed, irritable, and sleepless. The elephant in the room is that since I'm no longer employed, how am I going to be able to afford treatment? I'm going to miss grabbing a pizza or a juicy burger, but lurking around here I found out that people have nearly lost their lives from gluten/celiac contamination, and there ain't a single piece of food worth dying for!

Sorry for the novel, but I need advice. How do I go about getting tested? Life is worth living and I wanna live. Thanks for reading.

-- Chase


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Skysmom03 Newbie

Find a good doctor ( not necessarily someone you would just go too on the dour if the moment for the flu)!!! Tell him/her your concerns and symptoms and ask for a full celiac panel. Go from there. You are ahead of the game with the realization that food may be making you sick! I believe once you can accept that the rest will be a piece of cake. It will be difficult at first ( you are learning how to read labels doing research) but after a month or so it will be so much easier. Start out first with food you know have no gluten.... Salads, meats, rice, orators, fruits .... Ease yourself into products that are labeled'gluten free'.

1desperateladysaved Proficient

. You have already come through alot. Perhaps cutting gluten will bring relief to you. Probably the cheapest test is going gluten free, but then blood tests could false negative on you. Hopefully, you can find a doctor to help. I want for you to be able to get back to work and soon. It is hard to feel not depressed and worthwhile without work. PLease keep us up to date.

Diana

Chase From ATL Newbie

Find a good doctor ( not necessarily someone you would just go too on the dour if the moment for the flu)!!! Tell him/her your concerns and symptoms and ask for a full celiac panel. Go from there. You are ahead of the game with the realization that food may be making you sick! I believe once you can accept that the rest will be a piece of cake. It will be difficult at first ( you are learning how to read labels doing research) but after a month or so it will be so much easier. Start out first with food you know have no gluten.... Salads, meats, rice, orators, fruits .... Ease yourself into products that are labeled'gluten free'.

So how do I do that without money?

mushroom Proficient

So how do I do that without money?

Aye, there's the rub! Do you have a community clinic or some such thing that provides services on a sliding scale?

Skysmom03 Newbie

You can always try to call around about your situation and find out who would be willing to look into your situation and do the testing. Since you have no insurance, do you not qualify for any aid from the state? The only other option would be for you to go gluten free until you get a job again then reglutenize yourself and get tested.

You have to take care of yourself mentally though do you can get your life back on track. Once you do that, everything will work itself out! If you can accept that this may be what you have, you can work from there and things will improve, but you have to stick with it. Without an official diagnosis, I personally would have a harder time sticking to it since no one has actually told me I have it. You have to make the decision from the beginning that you aren't going to do that until you can get tested. It should be easier if you see improvements with the diet....... Oh and I would start with gluten first.... If you start getting rid of soy and diary and gluten all st once. You won't know what is actually doing the trick!

Chase From ATL Newbie

Aye, there's the rub! Do you have a community clinic or some such thing that provides services on a sliding scale?

My old job, but the service there is VERY slow and there is still animosity between me and other workers that led to my illegal termination.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,540
    • Most Online (within 30 mins)
      7,748

    Nina J
    Newest Member
    Nina J
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together.  Our bodies can make Taurine from meats consumed.  Our bodies cannot make Thiamine and must consume thiamine from food.  Meat is the best source of B vitamins like Thiamine.   Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine.  Seaweed is the best vegetarian source of taurine. Vegetarians may not consume sufficient Thiamine since few veggies are good sources.  Whole grains, legumes, and nuts and seeds contain thiamine.  Many of these sources can be hard to digest and absorb for people with Celiac disease.   You may find taking the forms of thiamine called Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) and a B Complex will give the benefits you're looking for better than taurine alone.  
    • knitty kitty
      @Jmartes71, I went to Doterra's site and had a look around.  The Doterra TerraZyme supplement really jumped out at me.  Since we, as Celiacs, often have digestive problems, I looked at the ingredients.  The majority of the enzymes in this supplement are made using black mold, Aspergillus!  Other enzymes are made by yeast Saccharomyces!  Considering the fact that Celiac often have permeable intestines (leaky gut syndrome), I would be very hesitant to take a product like this.  Although there may not be live black mold or yeast in the product, the enzymes may still cause an immune system response which would definitely cause inflammation throughout the body.   Skin, eyes, and intestines are all made from the same basic type of cells.  Your skin on the outside and eyes can reflect how irritated the intestines are on the inside.  Our skin, eyes, and intestines all need the same vitamins and nutrients to be healthy:  Vitamin A, Niacin B3 and Tryptophan, Riboflavin B2, Biotin B7, Vitamin C, and Omega Threes.  Remember that the eight B vitamins work together.  Just taking high doses of just one, vitamin like B12, can cause a deficiency in the others.  Taking high doses of B12 can mask a Folate B9 deficiency.  If you take B12, please take a B Complex, too.  Thiamine B1 can be taken in high doses safely without toxicity.  Thiamine is needed by itself to produce energy so every cell in the body can function, but Thiamine also works with the other B vitamins to make life sustaining enzymes and digestive enzymes.  Deficiencies in either Niacin, Vitamin C, or Thiamine can cause digestive problems resulting in Pellagra, Scurvy, and Gastrointestinal Beriberi.   If you change your diet, you will change your intestinal microbiome.  Following the Autoimmune Protocol Diet, a Paleo diet, will starve out SIBO bacteria.  Thiamine keeps bacteria in check so they don't get out of control as in SIBO.  Thiamine also keeps MOLDS and Yeasts from overgrowth.   Menopause symptoms and menstrual irregularities are symptomatic of low Vitamin D.   Doctors are not as knowledgeable about malnutrition as we need them to be.  A nutritionist or dietician would be more helpful.   Take control of your diet and nutrition.  Quit looking for a pill that's going to make you feel better overnight.  The Celiac journey is a marathon, not a sprint.   "Let food be your medicine, and let medicine be your food."
    • RUKen
      The Lindt (Lindor) dairy-free oat milk truffles are definitely gluten-free, and (last time I checked) so are the white chocolate truffles and the mint chocolate truffles. 
    • lmemsm
      I've used magnesium taurinate and magnesium taurate vitamins.  Didn't notice much of a difference when I used them.
    • Scatterbrain
      Anyone experimented with Taurine supplementation either via electrolyte powders or otherwise? Thanks
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.