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Gluten Free And Depressed..

lockerbear

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lockerbear Rookie
lockerbear
Posted

Hi everyone I'm new here and I was just hoping to get some advice on what is wrong with me.

I went gluten free (after being negative for celiac) about six months ago after having a lot of problems and it helped immensely- all of my problems went away, but I got cc'd a few times and then things never got better..

I was becoming intolerant to things i ate a lot and i figured I may have leaky gut so i went on a rotation diet to heal it. I was finally seeing some improvement, but then out of the blue I became constipated. My stomach ballooned up and i felt horrible I couldn't eat because I was so full and eventually i had to take a laxative to get rid of it. Unfortunately though my symptoms have not really gone away

I now have a constant bloated stomach. It doesn't matter if i do or don't eat it will be bloated. When i was having food intolerance problems it would go down if I didn't eat anything I'm sensitive to but now it is always there. It goes from the top half of my abdomen to the bottom. I am not constipated however I feel like I am not completely emptying my bowels...

I also always feel full, i burp a lot when i eat I get flatulence especially when I wake up and after i eat and my food just sort of sits in my stomach. It often comes out undigested

Does anyone know what this might be? I'm really depressed at this point because every time I start getting better something else comes up to bite me... I'm scared that even if i figure this out that something else will happen and it will never end. I have become very underweight since this all started and I'm very scared to go on diets. I've become intolerant to most of the high calorie foods from my leaky gut...

Any help would be appreciated

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mamaw Community Regular
mamaw
Posted

I can't dx'd you but here is a suggestion.

Have you tried digestive enzymes & Probiotics? I use Digest Gold for my enzyme & I like Dr. O'Hirra probiotic 12 professional formula .. One should not take the same probiotic for a lengthy time but swap to another brand or two .....but to start I like Dr. O'Hirra's.....

just a thought

lockerbear Rookie
lockerbear
Posted
  • Author

I can't dx'd you but here is a suggestion.

Have you tried digestive enzymes & Probiotics? I use Digest Gold for my enzyme & I like Dr. O'Hirra probiotic 12 professional formula .. One should not take the same probiotic for a lengthy time but swap to another brand or two .....but to start I like Dr. O'Hirra's.....

just a thought

Thanks for the reply :) I actually have been taking digestive enzymes for a while now with every meal, but it hasn't made much difference and probiotics haven't either unfortunately =\

1desperateladysaved Proficient
1desperateladysaved
Posted

Make sure you haven't added something to your diet that has agravated gluten or other intolerances. My tummy bloat was constant, next swung form high to low, and currently is debloating. In the meanwhile I have been grain free for 7 months, began digestive enzymes, and vitamin B recently.

I hope you will get it straightened out. I like babies, but I hate to be taken for pregnant when I am not. I guess that would be especially sad for males!

tarnalberry Community Regular
tarnalberry
Posted

You say that you are bloated whether or not you eat, which makes me suggest that you talk to a doctor. There may be non-digestive issues going on which are giving you your digestive symptoms.

lockerbear Rookie
lockerbear
Posted
  • Author

Thanks so much for the replies guys.

I'm not sure if it would be another intolerance or something.. I have been rotating food so I never eat the same thing for 4 days and my stomach is the same every day and the only grain i eat is rice =\ i could try cutting it out though. i did notice i sometimes have reactions to fruit, but most of the time i don't and it can be with low or high fodmaps.. so i don't really know what that means.. I've tried to make an appointment with a gastro as well, but they all just took off for a month for holidays and even though i faxed an urgent referral to them over a month ago i still apparently don't have an appointment.

My ultrasounds and xrays have been fine and I found a really good naturopathy clinic online but they have been closed as well until next week. I have ordered a test for SIBO just recently which I am doing at home (or else i would have to wait 3 months for a test >< so happy they have the at home option) and hopefully that will show something. The only person i've been able to see is a doctor who gave me an antacid, but i just ignored it.. not really looking for any quick fixes. I'm considering going to a gyno as well because my mum told me about something called endometriosis which can (uncommonly) grow on the intestines and honestly (TMI sorry) when i am menstruating the pain is comparable to when my appendix burst inside my stomach... I don't think i have it, but i want to rule everything out since doctors aren't any help. Man I can't believe I thought it was just "go gluten free and get better" doctors should really warn people about this stuff!

Sorry for posting my life story lol! if anyone has experience with anything i've mentioned or any more suggestions for me I'd be glad to hear it =]

JNBunnie1 Community Regular
JNBunnie1
Posted

It is entirely appropriate to check on the idea of endometriosis, that's a good avenue to explore.

Hopefully you get some answers and start feeling better soon!

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    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
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    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

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      Contact them.
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