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Blood Test Negative Endoscopy Yesterday Questions

bekkaz

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bekkaz Apprentice
bekkaz
Posted

Hi All - I have been VERY sick since the end of Nov. I have always has stomach issues, bloating, coughing, etc. I have lost over 20 lbs in the past month and have had a BILLION tests done. I won't get into it all because the story is so long. This week I had a HIDA Scan done which showed my gallbladder isn't functioning normally, 11%. It's supposed to be at least 35-40%. I was supposed to start a brand new job this coming Tue. and am now having surgery to remove my gallbladder on Monday. In the meantime both GI and General Surgeon recomended that I go through with yet another test and have the endoscopy done to rule out anything else. I did this yesterday. It showed that my stomach lining is inflammed and even starting to erode! The GI took biopsy's of this. To check for celiac and also a possible infection. I was doped up still from the procedure and don't remember everything he said. He told my Mom that he didn't think it was probably celiac because my intestines didn't look bad at all, just my stomach. He told me ideally he would like me to wait another week for surgery to see what the biopsy's come back with. However, I am also being told this gallbladder not functioning will NOT get better and will just continue to get worse. In an ideal world I would wait, however I cannot keep pushing my start date back on my new job. I don't want to have an surgery that I might not need, but I don't want to find out it's also celiac or a bacteria and 3 weeks into my new job, need my gallbladder out now. Also with the findings on this test could I be gluten intolerant but not celiac? My cousins daughter who was about 6 at the time, had an endoscopy as she was bleeding in her stools. They found her stomach had inflammation and they did tell her to remove gluten (but didn't confirm) celiac. I know they are also testing for H-Pylori (to which I have already had a negative blood test for, and negative stool test for, however I was on prilosec during the stool test which can produce false negatives) I would like to hear feedback from all of you. My syptoms have been chest pain/breathing difficulties (gone now), stomach burning, nausea, vomiting, diaherrea, constipation, green stool, high white blood count.

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GFinDC Veteran
GFinDC
Posted

Hi Bekkaz,

 

Gall bladder issues are somewhat common in people with celiac disease.  You can search the forum and find threads from people about them.  Wether the gall bladder would get better or not on a gluten-free diet is a good question.  I don't think there is any way to know without trying it.  I think you already had you gall bladder removed though so guess it will remain unknown.

 

I really just wanted to reply because it seems we missed your thread, sorry! :(

 

Here's an article about non-celiac wheat reactions.  The researchers don't know much about it's effects yet, or how to test for it, but they are learning.

 

Non-celiac wheat sensitivity article
https://www.celiac.com/articles/23033/1/Non-Celiac-Wheat-Sensitivity-It-Exists/Page1.html

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