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Extremely Confused Due To Symptoms.

ElianRiddell

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ElianRiddell Newbie
ElianRiddell
Posted

Hi all,

This amazing forum helped me diagnos myself (or at least help me put my doctor on the right track) I'm lucky enough to have my doctor be my uncle (so he actually listens to me and he's very open to my opinion and trying nearlly anything to get my skin under control) and finally after a year I had a blood test done and came back wheat intolerant (found out three months ago) so far he has me on an antibiotic for possible infection under my skin, I'm also on a wheat/dairy/fish free diet (blood test came back intolerant to all three) and so far it's certainly healing but recently I've started to question certain symptoms on my skin that are making the healing difficult.

The first and most confusing (haven't been able to find anything on it) are these varying in size (from a pimple to an inflamed mosquito/flea bite) lumps I get under my skin, they're close enough to the surface to see the lumps but when I squeeze them nothing really comes out they're also painless - just really itchy.

Sometimes they leak a fair bit of clear fluid, sometimes it's just blood (if I squeeze the blood blotches around the lump on my skin and takes a day or so to fade) one guess was that my skin tissue is becoming inflamed because when I squeeze these lumps they make a popping noise under the skin (it's quite loud as well) which I assumed was the sound of tearing my skin tissue.

They're situated almost everywhere on my body, but they cluster on the back side of my thighs, buttocks, tailbone/slighty above the buttocks, mid to lower back, shoulders and just above my belly button.

The ones that are worrying me however are defieantly the ones on my buttocks, thighs, tailbone and sides of thighs and belly because they itch ALL THE TIME where as the rest of my body only tends to itch on occasion.

Since they itch so much I end up scratching them off, making the skin in the area leak clear fluid (really wet) and leaving red "holes" that scab/bleed/itch even more, I'm confused because I haven't been able to find a close enough description of these symtoms anywhere - please help me identify what's wrong. (I'm thinking of asking my uncle/doctor to put me on dapsone?) Thanks.

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mushroom Proficient
mushroom
Posted

Did you have the celiac panel blood test, or the foods intolerance testing?

ElianRiddell Newbie
ElianRiddell
Posted
  • Author

Did you have the celiac panel blood test, or the foods intolerance testing?

I'll have to talk to my uncle, I'll be seeing him in the next week so I'll find out.

janpell Apprentice
janpell
Posted

I just wanted you to know that my sister has the exact same thing as you and was diagnosed with MRSA. She is frustrated with it because it takes awhile to heal but she pretty much is cleared up. She did a couple rounds of antibiotics but went to a more holistic approach which is working well for her.

A clean diet will do wonders for you. Myself, I go gluten, dairy, soy, sulphite, peanut, free. And have a huge list of foods that have to limited and rotated. Food is just a habit.

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    • trents
      celiac, chocolate and alcohol

      By trents · Posted

      So, you had both and endoscopy with biopsy and a colonoscopy. That helps me understand what you were trying to communicate. No, no! It never occurred to me that you were trying to mislead me. It's just that we get a lot of posters on the forum who are misinformed about what celiac disease is and how it is diagnosed so I need some clarification from you which you were so gracious to give.
    • barb simkin
      celiac, chocolate and alcohol

      By barb simkin · Posted

      I had both the genetic genes for celiac.  My gastroenologist advised he also took a biopsy during one of my colonoscopies and endoscopy and advised I had celiac disease, along with stomach ulcers from my esophagus stomach down to my small bowel. I was shown the ulcers on the catscan and endoscopy report.  I also had polyps in 3 places throughout my large bowel. I was on a strict diet for months following.  I am sorry if I didnt define how I was diagnosed with celiac disease.  I am sorry if you think I was misleading you. I also had to pay $150.00 for the genetic testing.
    • trents
      celiac, chocolate and alcohol

      By trents · Posted

      So, I'm a little confused here. I understand you to say that you have not been officially diagnosed with celiac disease. Is this correct?  You have had genetic testing done to check for the potential for developing celiac disease and that was positive. Is this correct? I think you meant to type "gluten sensitivity" but you typed "gluten insensitivity". Just so we are clear about the terminology, there is celiac disease and there is NCGS (Non Celiac Gluten Sensitivity). They are not the same but they have overlapping symptoms. Celiac disease causes damage to the small bowel lining but NCGS does not. NCGS is often referred to in short form as gluten sensitivity. However, people often use the terms celiac disease and gluten sensitivity interchangeably so it can be unclear which disease they are referring to. Genetic testing cannot be used to diagnose celiac disease but it can be used to establish the potential to develop active celiac disease. About 40% of the general population has one or both of  the genes that have been most strongly connected with the potential to develop active celiac disease but only about 1% of the population actually develops active celiac disease. This makes the genetic test useful for ruling out celiac disease but not for diagnosing it. A colonoscopy cannot be used to diagnose celiac disease because it doesn't permit the scope to go up into the small bowel where celiac disease does the damage. They use an endoscopy ("upper GI) for checking the small bowel lining for celiac damage.
    • barb simkin
      celiac, chocolate and alcohol

      By barb simkin · Posted

      I did nor read the chocolate pkg as it was of fered to me and I ate 2 pcs. I do know that only very dark chocolate and and a very few others are gluten free. Most alcohols contain gluten. I have several yrs of not knowing my celiac condition as docs would not do the test. After looking on the internet about my sufferings I insisted on the gene trsting which showed positive for gluten insensitivity and a biopsy on my next colonoscopy that also showed positive which could not help the damage done to my small bowel. So I very rarely have a glass of wine
    • trents
      celiac, chocolate and alcohol

      By trents · Posted

      @barb simkin, are you sure the chocolate products are gluten-free and not "manufactured on equipment that also handles wheat products and tree nuts", i.e., cross-contamination? And what kind of alcoholic beverages are we talking about? Most beers are made from gluten-containing grains. Just checking.
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