Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Casein Problems


GFreeMO

Recommended Posts

GFreeMO Proficient

What are your casein issues like? Is it the same as your gluten issues. I have been getting migraines since trying milk. Also cramping way down low.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



bisja Apprentice

I can tell the difference between gluten and casein for myself, with gluten I do not get cramps but anything that comes out of me is like pure acid even my tears get acid. Casein I get severe cramping and nausea also. Both are bad and both leave me in the bathroom for hours and hours.

Pegleg84 Collaborator

I don't get migraines, but it's like instant brain-fog, sometimes just mild dizziness and nausea, sometimes a headache. It really affects my sinuses. I don't usually get cramping, but often turns into bad C and/or D (yes, both at once sometimes. Sounds wrong, but it happens)

Like gluten, it causes different reactions in everyone.

cavernio Enthusiast

Mouth feels like cotton, especially tongue, and general blah feeling. Not sure if it's casein or just general milk protein, but it's all the same in terms of what I eat.

I should also note that this comes from sure experience. I haven't been nearly as careful about dairy as gluten, so I have quite a few examples of when I ate something with dairy that I shoudln't have. Most notably empire theatre popcorn.

Jen-1984 Apprentice

I get headaches with milk, I know I have a milk allergy, but not sure if it is the casein or whey protein or both that I am allergic to. I also get anxiety after ingesting milk. My gluten issues are not the same I don't think and honestly I don't know if my gluten issues are as bad as my dairy issues. I am still trying to sort all of it out though and right now it is a mess. ;)

  • 3 weeks later...
langone7 Apprentice

I have a hard time telling the difference.  I have been waffling for several week on whether I am or not.  I thought is made an improvement but then the day I had dairy might have just been a icky PMS day or something.  I have been off gluten for four months now and all my symptoms have gone away except for hormonal bloating (I am assuming) and sudden flared up acne after being off gluten for 2 months.  Maybe a need to wait longer than four months before messing with other food allergies.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Mell2's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Rectal pain

    2. - Celiac and Salty replied to Mell2's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Rectal pain

    3. - Rogol72 replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?

    4. - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?

    5. - MogwaiStripe replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Gluten Issues and Vitamin D


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,228
    • Most Online (within 30 mins)
      7,748

    BethA25
    Newest Member
    BethA25
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      I was suffering from PF just previous to being dx with celiac disease about 25 yr. ago but have not been troubled with it since. Not sure what the connection between the two is of if there is one. But I do know it is a very painful condition that takes your breath away when it strikes.
    • Celiac and Salty
      I have dealt with proctalgia fugax on and off for a year now. It feels almost paralyzing during an episode and they have started lasting longer and longer, sometimes 20+ minutes. I was recently diagnosed with celiac disease and wonder if the 2 are related. I did request a prescription for topical nitroglycerin for my PF episodes and that has helped tremendously!
    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.