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Wheat Free

prince caspian

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prince caspian Newbie
prince caspian
Posted

hello

i was recently told by my doctor that it is very likely i have celiac disease

i havent had any tests done yet but have started the gluten free diet anyways, so if i do in fact have the disease i will already be well on my way to dealing with it

i did some shopping at whole foods the other day and was unsure of what types of things i could buy

there were a lot of products labeled gluten free, and also a lot labeled wheat free. what is the difference? would i be able to eat a wheat free product, or would it depend on the ingredients? i was under the impression that products with no wheat in them, but perhaps with oats or rice flour or somthing similar, would be fine to eat, but i am confused and want to get it right so i can get on my way to feeling better. id appreciate any advice anyone could give me

-chris

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KaitiUSA Enthusiast
KaitiUSA
Posted

Wheat Free can't be considered gluten free because it most likely would have rye,barley, or oats in it which are not safe for celiacs.

Also, since you have gone gluten free you can't get accurate results unless you get back on gluten. You need to be on gluten for about 3 months before testing eating about equal to 2-3 pieces of bread a day.

Carriefaith Enthusiast
Carriefaith
Posted
there were a lot of products labeled gluten free, and also a lot labeled wheat free. what is the difference? would i be able to eat a wheat free product, or would it depend on the ingredients? i
Products that are labeled wheat free can still contain gluten such as rye, barely, or oats.

i was recently told by my doctor that it is very likely i have celiac disease

i havent had any tests done yet but have started the gluten free diet anyways, so if i do in fact have the disease i will already be well on my way to dealing with it

If you want accurate test results, you must go back to eating gluten ASAP. If you are not eating gluten, then your body eventually stops producing antibodies and stops damaging the intestine, which are what they test for in celiacs (the presence of IGA and IGG antibodies and villi damage).

Please keep us updated and if you need help on the diet or learning about celiac disease don't hesitiate to ask B)

prince caspian Newbie
prince caspian
Posted
  • Author

so can i basically just buy products labeled gluten free, or what? im used to the weird diet thing because im also vegan, and when i became vegan it was kinda like hey, heres a list of animal ingredients, dont eat any of them. but this seems a lot different, and im really confused on waht types of things i can and cant buy. thanks for the help guys!

Carriefaith Enthusiast
Carriefaith
Posted

Products labeled gluten free, would be fine. There are a lot of mainstream products that are gluten free but they don't indicate so on the label. I have a list if you are interested. You can email me at carriefj@hotmail.com and I'll give you the list.

KaitiUSA Enthusiast
KaitiUSA
Posted

Yep, the labels that say gluten free would be ok. You will find alot from health food stores marked gluten free but alot of mainstream in the regular store will not say gluten free even if they are.

The Delphi List is 79 pages long with gluten free status of many products and foods so if you do not have that you should.

Also, there are a list of mainstream brands that will not hide anything and clearly put wheat,rye,barley,oats on the label if it contains any. Those brands can be found on numerous places on this site or if you need them you can email me....my email is at the end of my signature so feel free to contact me anytime.

VydorScope Proficient
VydorScope
Posted
when i became vegan it was kinda like hey, heres a list of animal ingredients, dont eat any of them.

<{POST_SNAPBACK}>

This page is basicly the same idea for celiac disease:

https://www.celiac.com/st_prod.html?p_prodi...-00105362397.3e

Its based on America products though, so if your not in USA it might not be as accurate.

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jenvan Collaborator
jenvan
Posted

prince caspian--

do you eat vegan cheese? if so... galaxy's vegan products are gluten-free: Open Original Shared Link

jenvan Collaborator
jenvan
Posted

oh, these sites might help give you ideas on being vegan and gluten-free: Open Original Shared Link

Open Original Shared Link

Open Original Shared Link (ever eat Amy's frozen dinners? she has many that are vegan and gluten-free)

tarnalberry Community Regular
tarnalberry
Posted
so can i basically just buy products labeled gluten free, or what? im used to the weird diet thing because im also vegan, and when i became vegan it was kinda like hey, heres a list of animal ingredients, dont eat any of them. but this seems a lot different, and im really confused on waht types of things i can and cant buy. thanks for the help guys!

<{POST_SNAPBACK}>

There are things that aren't labeled gluten-free that are - and some of those might not really be due to cross contamination.

Basically, it's wheat, barley, rye, and oats that you are avoiding. The protein in these grains triggers an autoimmune reaction in your gut, and that's a bad thing. Take a look at the celiac.com safe/unsafe ingredient list - it will provide you with that list of ingredients to look for. It'll take some time to get used to the ingredients list (for a long time, I didn't realize that "gelatin" in something meant it was likely to not be vegan, for instance), but with your experience, I'll bet you'll catch on fairly quickly. :-)

prince caspian Newbie
prince caspian
Posted
  • Author

wow, thanks a lot guys! after the limited information my doctor gave me i was really confused and thought i would have a tough time with the disease, but im really glad i found this site.. youre all so helpful, thanks!

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    • trents
      Bob red mill gluten free oats

      By trents · Posted

      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      Disaccharide deficient, confusing biopsy results, no blood test

      By trents · Posted

      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Bob red mill gluten free oats

      By Paulaannefthimiou · Posted

      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      Disaccharide deficient, confusing biopsy results, no blood test

      By jenniber · Posted

      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      High TTG-IgG and Normal TTG-IgA

      By trents · Posted

      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
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