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Wheat Free


prince caspian

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prince caspian Newbie

hello

i was recently told by my doctor that it is very likely i have celiac disease

i havent had any tests done yet but have started the gluten free diet anyways, so if i do in fact have the disease i will already be well on my way to dealing with it

i did some shopping at whole foods the other day and was unsure of what types of things i could buy

there were a lot of products labeled gluten free, and also a lot labeled wheat free. what is the difference? would i be able to eat a wheat free product, or would it depend on the ingredients? i was under the impression that products with no wheat in them, but perhaps with oats or rice flour or somthing similar, would be fine to eat, but i am confused and want to get it right so i can get on my way to feeling better. id appreciate any advice anyone could give me

-chris


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KaitiUSA Enthusiast

Wheat Free can't be considered gluten free because it most likely would have rye,barley, or oats in it which are not safe for celiacs.

Also, since you have gone gluten free you can't get accurate results unless you get back on gluten. You need to be on gluten for about 3 months before testing eating about equal to 2-3 pieces of bread a day.

Carriefaith Enthusiast
there were a lot of products labeled gluten free, and also a lot labeled wheat free. what is the difference? would i be able to eat a wheat free product, or would it depend on the ingredients? i
Products that are labeled wheat free can still contain gluten such as rye, barely, or oats.

i was recently told by my doctor that it is very likely i have celiac disease

i havent had any tests done yet but have started the gluten free diet anyways, so if i do in fact have the disease i will already be well on my way to dealing with it

If you want accurate test results, you must go back to eating gluten ASAP. If you are not eating gluten, then your body eventually stops producing antibodies and stops damaging the intestine, which are what they test for in celiacs (the presence of IGA and IGG antibodies and villi damage).

Please keep us updated and if you need help on the diet or learning about celiac disease don't hesitiate to ask B)

prince caspian Newbie

so can i basically just buy products labeled gluten free, or what? im used to the weird diet thing because im also vegan, and when i became vegan it was kinda like hey, heres a list of animal ingredients, dont eat any of them. but this seems a lot different, and im really confused on waht types of things i can and cant buy. thanks for the help guys!

Carriefaith Enthusiast

Products labeled gluten free, would be fine. There are a lot of mainstream products that are gluten free but they don't indicate so on the label. I have a list if you are interested. You can email me at carriefj@hotmail.com and I'll give you the list.

KaitiUSA Enthusiast

Yep, the labels that say gluten free would be ok. You will find alot from health food stores marked gluten free but alot of mainstream in the regular store will not say gluten free even if they are.

The Delphi List is 79 pages long with gluten free status of many products and foods so if you do not have that you should.

Also, there are a list of mainstream brands that will not hide anything and clearly put wheat,rye,barley,oats on the label if it contains any. Those brands can be found on numerous places on this site or if you need them you can email me....my email is at the end of my signature so feel free to contact me anytime.

VydorScope Proficient
when i became vegan it was kinda like hey, heres a list of animal ingredients, dont eat any of them.

<{POST_SNAPBACK}>

This page is basicly the same idea for celiac disease:

https://www.celiac.com/st_prod.html?p_prodi...-00105362397.3e

Its based on America products though, so if your not in USA it might not be as accurate.


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jenvan Collaborator

prince caspian--

do you eat vegan cheese? if so... galaxy's vegan products are gluten-free: Open Original Shared Link

jenvan Collaborator

oh, these sites might help give you ideas on being vegan and gluten-free: Open Original Shared Link

Open Original Shared Link

Open Original Shared Link (ever eat Amy's frozen dinners? she has many that are vegan and gluten-free)

tarnalberry Community Regular
so can i basically just buy products labeled gluten free, or what? im used to the weird diet thing because im also vegan, and when i became vegan it was kinda like hey, heres a list of animal ingredients, dont eat any of them. but this seems a lot different, and im really confused on waht types of things i can and cant buy. thanks for the help guys!

<{POST_SNAPBACK}>

There are things that aren't labeled gluten-free that are - and some of those might not really be due to cross contamination.

Basically, it's wheat, barley, rye, and oats that you are avoiding. The protein in these grains triggers an autoimmune reaction in your gut, and that's a bad thing. Take a look at the celiac.com safe/unsafe ingredient list - it will provide you with that list of ingredients to look for. It'll take some time to get used to the ingredients list (for a long time, I didn't realize that "gelatin" in something meant it was likely to not be vegan, for instance), but with your experience, I'll bet you'll catch on fairly quickly. :-)

prince caspian Newbie

wow, thanks a lot guys! after the limited information my doctor gave me i was really confused and thought i would have a tough time with the disease, but im really glad i found this site.. youre all so helpful, thanks!

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    • par18
      Scott, I agree with everything you said except the term "false negative". It should be a "true negative" just plain negative. I actually looked up true/false negative/positive as it pertains to testing. The term "false negative" would be correct if you are positive (have anti-bodies) and the test did not pick them up. That would be a problem with the "test" itself. If you were gluten-free and got tested, you more than likely would test "true" negative or just negative. This means that the gluten-free diet is working and no anti-bodies should be present. I know it sounds confusing and if you don't agree feel free to respond. 
    • SilkieFairy
      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have 4 kids, and I really want to know. If I really do have it then they may have increased risk. 
    • par18
      Been off this forum for years. Is it that important that you get an official diagnosis of something? It appears like you had a trigger (wheat, gluten, whatever) and removing it has resolved your symptom. I can't speak for you, but I had known what my trigger was (gluten) years before my diagnosis I would just stay gluten-free and get on with my symptom free condition. I was diagnosed over 20 years ago and have been symptom free only excluding wheat, rye and barley. I tolerate all naturally gluten free whole foods including things like beans which actually helps to form the stools. 
    • trents
      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    • SilkieFairy
      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
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