Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

B12, Folic Acid And Iron


Jonoh

Recommended Posts

Jonoh Rookie

Hi again *waves*

Ok, so I've posted a few threads here and there about a few things, so I promise this'll be my last one lol. Well, I recently got the news that I'm b12 and folic acid deficient, and currently waiting to be referred to a gastroenterologist. I've done some research, and know that b12, folate and iron deficiencies are common findings in Celiac. But my iron levels are fine. Is it possible for Celiac to manifest in just a b12/folate deficiency and not iron? I find this pretty odd to be honest. Also, the doctor said I'm not anemic because my haemoglobin is fine, so again, is it possible for Celiac to present in this way? Non-anemic b12/folate deficiency?

Thanks if anyone knows the answer :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ninja Contributor

Have you had your ferritin checked? Ferritin measures iron stores. In the case of iron-deficiency anemia... ferritin is usually the first to start dropping. If your doctor is going solely off of your hemoglobin levels, he/she is being lazy. I'd be hesitant to call anybody with other vitamin deficiencies as not iron deficient without a more thorough workup.

Laura

Jonoh Rookie

Sorry if I wasn't clear in my first post. My iron (ferritin) levels are fine and within range.

mushroom Proficient

My iron levels were okay but B12, folate were low, and MCV (mean corpuscular volume) was too high - only just - meaning the red blood cells were not dividing normally and I was diagnosed with pernicious anemia. Took the B12 shots, and folate, and was fine.

Smylinacha Apprentice

My ferratin, B12 and Vit D was low and they wanted me to have shots. This was with my regular GP who never thought of celiac. My gastro told me those are symptoms. I have to have blood drawn again in 2 more months so I'll be looking forward to where I stand when that happens - been taking gluten free multi vitamins and on a gluten free diet now.

Jonoh Rookie

Thanks for the reply guys

My iron levels were okay but B12, folate were low, and MCV (mean corpuscular volume) was too high - only just - meaning the red blood cells were not dividing normally and I was diagnosed with pernicious anemia. Took the B12 shots, and folate, and was fine.

Mushroom, that's exactly how my blood tests read too.. I wasn't told I have pernicious anemia though :S I'm currently taking supplements, the doc said that I'd have to have the injections if they don't work. At least I know now that it could still be Celiac :)

mushroom Proficient

Thanks for the reply guys

Mushroom, that's exactly how my blood tests read too.. I wasn't told I have pernicious anemia though :S I'm currently taking supplements, the doc said that I'd have to have the injections if they don't work. At least I know now that it could still be Celiac :)

I only needed the B12 injections because I had a reaction to the sublinguals.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ninja Contributor

Oh, well I'm sure it's possible! Just depends on where the damage is and how your body is affected by it. After all, it seems like anything is possible with celiac. :blink: I was slightly iron-deficient, but had a more significant b12 deficiency. Folate was apparently fine.

Laura

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,796
    • Most Online (within 30 mins)
      7,748

    Raybo
    Newest Member
    Raybo
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • nanny marley
      Oh yes I can understand the tiredness after going threw all that, must be exhausting especially on the mind I have high aniexty so I can understand that , I wish there more easier ways for people to get help , I had a MRI on my spine some years ago without anything it was really quick and no prep , I understand the need for  them to see better with the bowel ,but you think they would use something a little less traumatic  for ibd sufferers on the bowels by now ,I hope your feeling better today 🙏
    • Colleen H
      The previous post did not come through right. I wonder if tingling burning feet are part of it.. I'm not sure if it's the med reaction that people with gluten intolerance get or the food we ate  It's frustrating because a person who did not want to admit to himself I had this condition wanted me to eat this chicken sandwich and now I'm stuck with a variety of symptoms plus now I'm hungry on top of it..  I'm new to this so I forget that "one bite" of the wrong thing can hurt us.😔. Do we stop eating if someone exposed us to gluten ??  My stomach is rumbling but my joints hurt ...  It's weird because I can feel the anxiety coming on.  I get joint problems ,  I don't know if anyone ever got hot flashes?? I suppose if it affects people head to toes you can get that too.   It's weird...hard to decipher what is what.   Also how long do I have to deal with this attack??  Makes me feel like not getting up out of bed.  I get too many symptoms which  horrible.  Thank you for your response..  
    • Colleen H
      Hello  I was glutened by a person that knew it.  I'm having 
    • wellthatsfun
      as my last post stated, i was diagnosed via endoscopy on the 14th of june. i have been eating amazing home cooked meals, luckily, mainly cooked by my boyfriend who is extremely careful about contamination (and is an incredible cook at that). however, i find myself in a mental rut still. being 18, this is the time in my life where i should be exploring things, going out, having fun. yet every corner i turn i'm tortured by the amazing smell of something i can't have anymore. the wonderful sight of such yummy foods. it's near torture. if my boyfriend and his friend who lives with us buy something i can't have, they'll usually eat it outside of the house or the car or wherever we are - which is greatly appreciated - but even seeing a burger or chips or a sausage roll in their hands guts me almost beyond repair. i just wanna have it again too. i miss it. i feel left out and it makes me very sad all the time. it's not their fault. they are allowed to eat whatever they want to, whatever their intestines will allow. it just stings, bad. and i feel so ungrateful given i basically have a private chef who is doubly the love of my life. but it's just so hard. i know i'll adapt. i haven't given up hope.i just wanted to vent. thank you for reading
    • RDLiberty
      Thank you. I must have misinterpreted a study or something. Thank you for the clarification. Much appreciated. Almost three years into my celiac diagnosis and I'm still learning new things. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.