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What Vitamins Help With Celiac?


Smylinacha

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Smylinacha Apprentice

About a year ago my GP said I was deficient in b12, D, and folic acid. He wanted me to have b12 shots. Never mentioned celiac to me although I had many symptoms and my gastro said I would feel better going gluten free which I have done. Now I am supposed to get glutened for a while in order to get an endoscopy which I don't want to go near gluten. In trying to read up on celiac I am learning many have vitamin deficiencies. Is anyone taking special or extra supplements that help? Currently I take women's gluten free multi vitamin gummies and a magnesium pill. I get my potassium with bananas and eat lots of chicken, eggs and beans for protein.


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mushroom Proficient

I hope you won't think me flippant when I respond to your topic question with "Whatever you are deficient in."  Because it is true.  If you are not deficient in a vitamin, it is not going to help you.  You are deficient in B12, D and Folic acid, that we know of, but you may be deficient in others by now, too.  You need a full nutrient panel run, including all the vitamins, iron/ferritin, potassium, zinc, magnesium (sometimes it is not well absorbed).  Taking a multivitamin normally does not provide you with sufficient to refill your tank -- it just gets you to the next gas station -- and more is initially required, then you can go on a maintenance dose. :)   Usually, B12 can be rectified with a sublingual pill (be sure it is methylcobalamin).  Vit.A normally requires doses of 50,000 iu to start. 

 

Good luck with your testing.  You might want to have the nutrient panel run before you start supplementing so that you know what to pay particular attention to. :)

Smylinacha Apprentice

Guess I will need more blood work again but I will do it. I do have the stick under your tongue b12 but I will get it all checked out.

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    • trents
      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
    • trents
      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
    • Ello
      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes inflammation and produces antibodies that can be detected in the blood by specific tests like the TTG-IGA test you had. Over time, if gluten is not withheld, this inflammation can cause severe damage to the lining of the small bowel and even result in nutrient deficiency related health issues since the small bowel lining is organ where all the nutrition found in our food is absorbed.  The other is NCGS (Non Celiac Gluten Sensitivity or just "gluten sensitivity") which we know less about and are unsure of the exact mechanism of action. It is not an autoimmune disorder and unlike celiac disease it does not damage the lining of the small bowel, though, like celiac disease, it can cause GI distress and it can also do other kinds of damage to the body. It is thought to be more common than celiac disease. Currently, we cannot test for NCGS. Celiac disease must first be ruled out to arrive at a diagnosis of NCGS. Both disorders require elimination of gluten from the diet.  Either of these disorders can find their onset at any stage of life. We know that celiac disease has a genetic component but the genes are inactive until awakened by some stress event. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% develop active celiac disease. The incidence of NCGS is thought to be considerably higher. I hope this helps.
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