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What Vitamins Help With Celiac?

Smylinacha

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Smylinacha Apprentice
Smylinacha
Posted

About a year ago my GP said I was deficient in b12, D, and folic acid. He wanted me to have b12 shots. Never mentioned celiac to me although I had many symptoms and my gastro said I would feel better going gluten free which I have done. Now I am supposed to get glutened for a while in order to get an endoscopy which I don't want to go near gluten. In trying to read up on celiac I am learning many have vitamin deficiencies. Is anyone taking special or extra supplements that help? Currently I take women's gluten free multi vitamin gummies and a magnesium pill. I get my potassium with bananas and eat lots of chicken, eggs and beans for protein.

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mushroom Proficient
mushroom
Posted

I hope you won't think me flippant when I respond to your topic question with "Whatever you are deficient in."  Because it is true.  If you are not deficient in a vitamin, it is not going to help you.  You are deficient in B12, D and Folic acid, that we know of, but you may be deficient in others by now, too.  You need a full nutrient panel run, including all the vitamins, iron/ferritin, potassium, zinc, magnesium (sometimes it is not well absorbed).  Taking a multivitamin normally does not provide you with sufficient to refill your tank -- it just gets you to the next gas station -- and more is initially required, then you can go on a maintenance dose. :)   Usually, B12 can be rectified with a sublingual pill (be sure it is methylcobalamin).  Vit.A normally requires doses of 50,000 iu to start. 

 

Good luck with your testing.  You might want to have the nutrient panel run before you start supplementing so that you know what to pay particular attention to. :)

Smylinacha Apprentice
Smylinacha
Posted
  • Author

Guess I will need more blood work again but I will do it. I do have the stick under your tongue b12 but I will get it all checked out.

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    • AlwaysLearning
      Gluten related ??

      By AlwaysLearning · Posted

      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
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      Gluten related ??

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      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
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      My only proof

      By Jmartes71 · Posted

      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      My only proof

      By AlwaysLearning · Posted

      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      Gluten related ??

      By AlwaysLearning · Posted

      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
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